Every Patient's Right: Ending Isolation In Healthcare, a podcast of The NEVER Alone Project

Welcome to another episode of Every Patient's Right, the podcast from the Never Alone Project, where we explore the real-life impact of medical isolation during the COVID-19 pandemic and the urgent need for compassionate care policies. In this heartfelt conversation, host Steve Reiter sits down with KC Netzke, who shares the moving story of her father, Carroll Netzke—a Minnesota farm boy, a devoted family man, and someone who, like many others, spent his last days isolated in a hospital room due to strict no-visitor policies. KC takes us through the ripple effects of being separated from a loved one in their most vulnerable moments, the struggles her family faced in trying to communicate with hospital staff, and the emotional aftermath of not being able to say goodbye as a family. Her reflections on her father's character, their cherished family memories, and the deeply felt loss give a personal face to a problem that affected thousands. Join us as we talk about what was lost during pandemic-era patient isolation, the flaws in hospital visitation policies, and why it's vital to advocate for legislation that ensures no one has to die alone.

Outline: (00:02) Ending Isolation in Healthcare (05:39) "Random Testing During Holidays" (08:29) Media Confusion in Early 2020 (13:02) Chaos and Concern Over Dad's Care (14:12) Support the Never Alone Project (18:30) "Pandemic Struggles and Family Separation" (20:54 "Uncertain Recognition in Final Moments" (26:09) Colorado Legislation for Pandemic Preparedness (27:40) "Intimate Knowledge of Loved Ones" (30:58) "Dad's Sudden Exits"

About the Guest: KC Netzke's story is rooted in the heartland of Minnesota, where they were shaped by their father's independent and inventive spirit. As one of ten siblings on a farm, KC's dad became resourceful out of necessity—turning discarded items into treasures and making do with limited resources. Known by everyone in their small town for his knack for finding value where others saw waste, KC's father instilled a sense of resilience, creativity, and self-reliance. Growing up in a close-knit community, KC carries forward these values, connecting deeply with the ingenuity and determination of their family's rural roots.

About The Host: Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every Patient's Right, Ending Isolation and Healthcare." He lost his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation that began in March 2020, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery.

Share your story, learn more, listen, and subscribe at: neveraloneproject.org

Laura Jensen is interviewed by Steve Reiter. Welcome to "Every Patient's Right" by the Never Alone Project. On today's Every Patient's Right episode, host Steve Reiter sits down with Laura Jensen for a powerful and deeply personal conversation. Laura shares the heart-wrenching story of her husband, Gary, a vibrant and larger-than-life man who passed away after weeks in the hospital during the early days of the COVID-19 pandemic. As Laura recounts her family's experience—how her requests to be with Gary were repeatedly denied and how hospital isolation policies kept them apart during his most vulnerable days—we explore the dire consequences of forced medical isolation. Laura's story is filled with love, loss, and frustration, but also important lessons and calls for change. Together, Steve and Laura dig into why human connection is essential in healing, how current policies failed patients and families, and what needs to happen so that no one is ever forced to face critical illness alone. This episode is a testament to the resilience of families and a reminder of what's at stake as we fight to end isolation in healthcare.

Outline: (00:02) Finding Urgent Care Amid Crisis (04:46) Midnight Emergency: A Quick Decision (07:30) Hospitalization and Slow Recovery Hope (11:50) Lung Complications and Oxygen Struggles (15:12) Struggles with Health and Separation (24:32) COVID Hospital Visit Restrictions (28:30) Witnessing a Loved One's Decline (33:22) Antibiotic Response Uncertainty (39:58) Unanswered Questions About His Death (42:09) Regrets About Being More Vocal (47:06) "Missing Him: A Proud Moment" (49:20) Compassionate Policy Making Matters

About the Guest: Laura Jensen's story begins with a shared household ordeal: a severe bout of flu that struck her family one after the other. Laura was the first to fall ill, soon followed by her daughter, and together they quarantined themselves upstairs, battling waves of exhaustion. Her husband was the last to get sick, but his illness progressed quickly, affecting his lungs just days after symptoms began. Laura's sense of responsibility and care kept them together as each family member succumbed, even as the fatigue dragged on. Through it all, Laura's resilience and dedication shone as she navigated her family through a challenging time with compassion and unity.

About The Host: Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every Patient's Right, Ending Isolation and Healthcare." He lost his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation that began in March 2020, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery.

Share your story, learn more, listen, and subscribe at: neveraloneproject.org

Steve Reiter speaks with Scott Schara, whose daughter, Grace, born with Down syndrome, tragically passed away in October 2021 following forced medical isolation during a hospital stay. Scott shares Grace's joyful spirit, how their family navigated hospital protocols, and how his advocacy seeks to protect others from experiencing the same injustice. Together, they discuss the limits of patient rights, the shortcomings of the ADA, and the importance of love and humanity in healthcare.

Outline:

00:00 April Fool's Day Memories

03:26 "Unexpected Joy in Grace's Birth"

07:18 Welcoming Parenthood and Down Syndrome

11:34 "Negligence Led to Grace's Death"

16:18 Hospital Negotiation and Disability Lawsuit

17:14 ADA Critique: "Dog and Pony Show"

22:41 Pulse Oximeter Discrepancy Dispute

26:34 "Morning Hospital Incident with Grace"

30:25 Caution: Respiratory Risks with Medication

34:02 Unanswered Questions After Hospital Death

38:02 Uncovering Hospital Malpractice

38:58 Hospital Refuses Meeting After Fatality

42:31 Judgment Against Unwanted DNR Order

46:03 "Grace's Legacy of Love"

50:52 "Loving the Unlovable"

52:01 "Embracing Joy and Connection"

About The Guest:

Scott Schara is a passionate advocate for patient rights and disability justice. After losing his 19-year-old daughter, Grace, to questionable hospital practices during forced medical isolation in October 2021, Scott became deeply involved in legislative and educational efforts to prevent similar tragedies. He shares Grace's story nationwide in Wisconsin to champion "No Patient Left Alone" legislation and the importance of compassion in healthcare.

About The Host: Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every Patient's Right, Ending Isolation and Healthcare." He lost his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation that began in March 2020, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery.

Share your story, learn more, listen, and subscribe at: neveraloneproject.org

Chelsey Hellwege and Calley Riste are interviewed by Steve Reiter. Welcome to "Every Patient's Right" by the Never Alone Project. In this episode, sisters Chelsey Hellwege and Calley Ristee share the heartbreaking experience of losing their father, Driggs Jessup, to COVID-19 in September 2021. They recount the isolation he faced in the hospital, despite being a fit and active community figure known for his work as a pastor and school resource officer. Chelsey and Calley discuss the difficulties of advocating for their father's care and dealing with the healthcare system while feeling helpless and shut out. Tune in as we explore their story to highlight the need for compassionate care in hospitals and work towards preventing such isolation in the future.

Outline: (00:03) "Beloved Father and 'RoboCop'" (04:36) False Assurances, Medical Emergency Discovery (07:23) Plea for Dad's Hospital Visitation (11:25) Flu Shot Dilemma for Sick Patient (13:49) Hospital Visit Connections (19:10) Dismissed Concerns on Ivermectin (20:42) Denied Farewell in Final Moments (23:08) "No Ventilation Without Family Present" (27:40) Activism After Father's Death (32:33) Federal Support for Hospital Decisions (36:04) Distrust in Politicized Medical Practices (37:50) "My Dad: A Beloved Presence"

About the Guest: Chelsey Hellwege was distressed when she noticed something was amiss with a loved one, despite assurances that everything was fine. Concerned and proactive, Chelsey decided to visit him, only to find his condition worse than she expected. Sensing the urgency, she quickly obtained a pulse oximeter, which revealed alarmingly low readings. Understanding the seriousness of the situation, Chelsey contacted a doctor friend for advice, who recommended immediate emergency assistance. Her responsiveness and decisive actions reflect her deep concern and commitment to those around her in times of need.

About The Host: Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every Patient's Right, Ending Isolation and Healthcare." He lost his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation that began in March 2020, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery.

Share your story, learn more, listen, and subscribe at neveraloneproject.org

Host Steve Reiter engages in a poignant conversation with Gregory Gandrud, a man whose firsthand experience with the complexities of healthcare isolation during the COVID-19 pandemic offers a critical lens on the intricacies of patient care. Gregory, who was hospitalized with COVID-19 at the age of 60 and faced a prolonged period of isolation, recounts the harrowing journey through intensive care and his subsequent recovery. His story highlights the trauma of being ventilated without the presence of loved ones, the psychological impact of hallucinations, and the challenges of navigating a healthcare system influenced by both medical protocols and financial incentives. As Gregory shares his road to recovery and the lasting effects of his experience, this episode underscores the vital importance of patient advocacy, informed consent, and the need for compassionate healthcare practices that prioritize the human element of healing. Join us as we delve into Gregory's journey and explore how his story can contribute to a broader understanding of ensuring no patient is ever left alone in their time of need.

Outline: (00:03) Ending Isolation in Healthcare (05:56) Post-Quarantine Convention Leads to Illness (15:16) Oxygen Dependency and Medical Uncertainty (18:52) "Conforming Under Medical Pressure" (22:24 Drug-Induced Medical Paralysis Experience (27:00) ICU Delirium and Isolation Effects (36:31) Return to Work After Hospital (37:50) Driving Independence Post-Hospitalization (45:35) "Remdesivir Controversy and Financial Motives" (51:39) Supportive Spouse in ICU Needed (54:30) Governor's Veto and Patient Rights (01:02:45) ER Staff Income Concerns During COVID

About the Guest: Gregory Gandrud maintained an active and health-conscious lifestyle, prioritizing nutritious foods and regular exercise, even into his later years. At the age of 60, Gregory was recognized by his doctors for his exceptional health, often being told he appeared ten years younger than his chronological age. In addition to his daily walks to work and consistent workout routine, Gregory was diligent about his vaccinations, ensuring he was protected whenever necessary, such as before traveling to the jungles of South America. This commitment to health and wellness has been a defining aspect of Gregory's life, even as he approaches his 64th birthday.

About The Host: Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every Patient's Right, Ending Isolation and Healthcare." He lost his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation that began in March 2020, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery. Through his podcast, Steve shares powerful stories, such as that of Tracy Bird, whose late husband Jeff experienced isolation in December 2021, deeply affecting his health and ultimately leading to his untimely death. Steve's dedication to this cause highlights his commitment to advocating humane treatment in healthcare settings.

Share your story, learn more, listen, and subscribe at: neveraloneproject.org

In this episode of Every Patient's Right, host Steve Reiter speaks with guest Steve Dettel about his experiences during forced medical isolation during the COVID-19 pandemic. Steve Dettel shares the challenges he and his late wife faced while being isolated in the same hospital, even though they both had the same illness. Their story emphasizes the effects of such isolation, highlighting the obstacles to human connection and care during a difficult time. As they discuss Steve's journey, listeners will learn about the strength and hope he found after his loss, including his support from a community of widows and widowers and the new relationship he formed with another COVID-19 widow, Kat. Join us for this insightful discussion on loss, recovery, and the need for changes in healthcare protocols.

Outline: (00:03) "Ending Isolation in Healthcare" (05:09) Hospital Communication Challenges (08:51) Confusion in Hospital's COVID Ward (11:22) Playing Dumb with Blood Thinners (19:29) Caregiving Challenges and Family Support (21:22) Chaotic Hallway Dragging Incident (25:42) "Hospital Encounter with Security Threat" (31:12) Recovering from COVID Incrementally (33:32) Overmedication Concerns and Seeking Answers (36:53) Censorship in COVID-19 Discussions (41:23) "Emerging from the Cave" (44:25) Huberman Podcast Explores Grief Science (46:36) "Overcoming Exhaustion for Family"

About the Guest: Steve Dettel found himself in an unusual and unsettling situation. Amid a chaotic environment filled with confusion and urgency, Steve faced a medical emergency that seemed to involve numerous doctors, each seemingly unaware of his circumstances. After receiving treatment for five days, during which he began to feel somewhat better, Steve decided to take matters into his own hands. Venturing into the hospital hallways, he discovered an eerie emptiness, even as he explored what appeared to be a COVID ward on the Fifth Floor. Despite his best efforts to call for attention, his shouts echoed unanswered—a surreal moment highlighting the isolation and disarray of his experience.

About The Host: Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every Patient's Right, Ending Isolation and Healthcare." He lost his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation that began in March 2020, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery.

Share your story, learn more, listen, and subscribe at neveraloneproject.org

In this episode of "Every Patient's Right" Ending Isolation and Healthcare Podcast, host Steve Reiter speaks with Gail Seiler, her husband, Brad Seiler, and their daughter, Angela Haynes, about Gail's hospitalization experience in late 2021.

Gail shares her story of being admitted to a Texas hospital for COVID-19 and facing significant isolation due to restrictive visitation policies. Brad, a former RN, and Angela discuss their efforts to advocate for Gail's care from outside the hospital. They discuss their challenges, including difficulties in ensuring proper medical treatment and overcoming strict COVID-19 regulations that kept them from being by Gail's side.

The episode explores the impact of Texas legislation intended to protect patients but ultimately contributed to Gail's isolation. The family emphasizes the importance of clear legislative language and the need for family presence in healthcare settings to provide support and advocacy.

Listeners will hear about the steps Brad and Angela took to bring Gail home for care, including navigating legal and logistical hurdles. The conversation will highlight the critical role of family advocates in patient care and provide insights into how listeners can become involved in legislative processes to support patient rights.

Key Points:

Gail's hospitalization and isolation experience during COVID-19 in Texas. The importance of family advocacy in ensuring proper patient care. The challenges of navigating hospital policies and state legislation. Steps the Seiler family took to bring Gail home safely. Encouragement for listeners to engage in advocacy and legislative efforts.

For more information and support, or to share your own isolation story, visit: neveraloneproject.org

Email: [email protected]

Join us to learn more about Gail's story and the need for reform to prevent isolation in healthcare settings.

In today's episode, we have Dr. Stephen Guffanti, a former emergency room physician turned holistic medicine practitioner and literacy advocate. Dr. Guffanti shares his harrowing hospital experience, where both he and his roommate faced severe mistreatment. He exposes systemic flaws in corporate healthcare, criticizes the COVID protocols, and emphasizes the crucial role of patient advocates. Dr. Guffanti also discusses the potential for health savings accounts to empower patients and calls for essential reforms in the relationship between doctors and hospitals. Join us to hear Dr. Guffanti's compelling story and explore actionable solutions for improving patient rights and healthcare quality. This episode is essential listening for anyone dedicated to patient-centered care. Stay tuned!

Outline: (03:32) Hospital priorities over patient care and research. (09:30) Games engage kids, fostering reading interest. (11:11) COVID ignored led to hospitalization; not contagious. (14:22) All lung viruses are initially unfamiliar. (18:52) Reduced oxygen, observing struggling roommate's breathing. (21:47) Denied doctor's name: HIPAA violation concerns raised. (23:55) Mystery behind hospital's undisclosed doctor and isolation. (30:45) Free doctors prioritize healthcare over corporate profit. (34:57) Calm babies may indicate serious breathing issues. (38:46) Passion for medicine and financial incentives influence. (41:11) Chest pain is diagnosed as thoracic strain, and treatment is required. (44:13) Criticizing ineffective mask policies in hospitals. (51:21) Being vigilant can help notice undiagnosed issues.

About the Guest: Stephen Guffanti, known for his academic brilliance, began his medical career with a pioneering spirit. During his internship in California, he noticed the absence of a specialty in emergency medicine. Undeterred, he crafted his path by working in the emergency room of the LA County Jail for three months. This intense environment, dealing with the harsh realities of gang violence, opened his eyes to a critical societal issue: 80% of gang-involved youth might leave the gangs and stop the violence if they could read at their grade level. Fueled by a passion for emergency medicine, which he admired for its ever-changing challenges, Stephen has advocated for literacy to prevent youth violence and foster better futures.

About The Host: Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every Patient's Right, Ending Isolation and Healthcare." He lost his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation that began in March 2020, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery.

Steve Reiter interviews Debbie Shivers. Welcome to this episode of "Every Patient's Right: Ending Isolation and Health Care" by the Never Alone Project. Welcome to "Every Patient's Right," a podcast examining the effects of forced medical isolation and advocating for essential healthcare policy reforms. This episode focuses on the case of Rodney Shivers, who faced severe medical challenges during the COVID-19 pandemic. The episode compares his hospitalization experiences in 2013 and 2020, highlighting the stark differences caused by isolation policies. It covers the attempts to bypass these restrictions through legal channels and the emotional impact on the Patient and family due to enforced sPatienton during critical health episodes. The discussion extends to legislative efforts inspired by these experiences and the broader implications for patient rights. This episode emphasizes the need for changes to ensure no patient endures medical isolation alone. Stay tuned for an insightful exploration of these crucial issues.

Outline: (04:39) Horrific hospital experience with restricted access. (06:38) Frustration with John Deere's customer service communication. (12:43) Patient was intubated before arrivalPatient H1N1. (14:58) Intubation was intended for rest; recovery took longer. (19:20) Feeling unwell, tested positive, previous lung issues. (22:25) Lacking equipment led to transferring COVID-19 patients. (24:37) Needed charger to FaceTime, stayed supporting him. (29:33) He was my rock until the end. (33:36) Retired teacher praises man's resilience and expertise. (35:59) Intubation notified; prior refusal, potential consent. (39:52) Firmly defend personal rights; refuse opposition. (43:51) Ending forced medical isolation, ensuring awareness.

About the Guest: Debbie Shivers is a resilient and determined individual who, against all odds, survived despite preexisting conditions that should have precluded her from doing so. Her story is one of both struggle and fortitude, particularly during a period when access to loved ones was denied, leaving patients without much-needed support. Debbie's emotional journey includes grappling with her inability to confront her yet loved one's medical records, a task that brings too much pain but is something she is willing to share with those who are ready to face it. Debbie spent countless hours at Swedish Hospital, often in an intensive care unit, where some compassionate nurses allowed her to stay beyond the official visiting hours, understanding she wasn't a disruption. Her experience is a testament to the importance of unwavering support and the human spirit's resilience in the face of adversity.

About The Host: Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every Patient's Right, Ending Isolation and Healthcare." He lost his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery. The show is a platform for exploring the balance between medical needs and the basic human care that aids patient recovery. Steve's dedication to this cause highlights his commitment to advocating humane treatment in healthcare settings. Steve's work underscores the critical importance of human connection in healthcare, making his podcast a significant platform for addressing these pressing issues.

Share your story, learn more, listen, and subscribe at: neveraloneproject.org

Host Steve Reiter converses with Patti Giliano, a seasoned psychiatric nurse practitioner, about the intense challenges faced during the early stages of the COVID-19 pandemic. Tune in as Patti recounts the widespread hospital shutdowns influenced by corporate and CDC directives, which led to significant nurse layoffs and halted crucial medical operations. She shares her personal COVID-19 battle, struggles for necessary care, and recovery using alternative treatments. Patti also explores the impacts of patient isolation, the supply chain crisis, and the community's incredible response. Her story highlights the clash between following guidelines and upholding patient well-being, advocating for family presence in patient care. Join us for an eye-opening discussion about the realities of Healthcare during the pandemic and the fight to uphold every patient's right.

Outline: (00:03) Healthcare visiting policies relaxed significantly pre-pandemic. (06:52) Relocation before COVID pandemic panic and preparations. (15:47) Questioning mandates and restricting family visits' necessity. (23:33) Inconsistent iPad use and ignored nurse concerns caused resignations. (27:59) Overly incentivized nurse travel led to issues. (36:40) Limited nurse interaction; improper equipment use concerns. (39:36) Hospital discharge despite unchanged condition; miscommunication occurred. (45:23) Sought off-label medication, fearing long-haul symptoms. (53:15) Masks hinder human connection and empathy negatively. (54:40) Post-COVID: Human connection lost to digital communication. (01:01:23) Prioritize patients over profits; rethink healthcare priorities.

About the Guest: Patti Giliano began her nursing career over 38 years ago as a fresh-faced nurse in the mid to late eighties. Initially unsure of what the profession would hold, she quickly adapted and thrived in various healthcare environments. Throughout the eighties and nineties, Patti focused primarily on the perioperative arena, amassing a wealth of experience in various surgeries, including orthopedics, cardiovascular, and neurosurgery. Her dedication and expertise naturally propelled her into leadership roles, marking an exciting and impactful career in nursing.

About The Host: Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every Patient's Right, Ending Isolation and Healthcare." He lost his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery. The show is a platform for exploring the balance between medical needs and the basic human care that aids patient recovery. Steve's dedication to this cause highlights his commitment to advocating humane treatment in healthcare settings. Steve's work underscores the critical importance of human connection inHealthcaree, making his podcast a significant platform for addressing these pressing issues.

Share your story, learn more, listen, and subscribe at neveraloneproject.org