Everything Cancer

What really happens behind the scenes in the world of national policy and legislative cancer survivorship advocacy? Dr. Panagiotou pulls back the curtain and takes us on an enlightening tour of NCCS’s mission, shedding light on how they’re ensuring the voices of survivors shape the future of cancer care at the highest levels. She keeps the conversation real and relatable. 

Join us on Everything Cancer as we explore the world of cancer survivorship advocacy with Dr. Veronika Panagiotou, the strategically dynamic Advocacy and Program Manager at the National Coalition for Cancer Survivorship (NCCS). 

Dr. Panagiotou shares her inspiring journey from being diagnosed with non-Hodgkin's lymphoma to becoming an advocate for cancer survivors across the nation through the NCCS.

One of the most crucial roles NCCS plays is ensuring that the survivor's voice is heard at the crucial legislative and policy levels. 

Dr. Panagiotou shares how the NCCS annual Survivorship Survey has made a significant impact by providing vital data that directly informs policy decisions.  You can be a part of this by participating in the survey!

Dr. Panagiotou highlights the transformative tools and resources NCCS offers, including the Survivorship Checklist, to help survivors navigate their journey with confidence and clarity. 

Whether you're a cancer survivor, a caregiver, or simply someone who wants to understand the impact of advocacy on cancer care, this episode is packed with insights and inspiration. Dr. Panagiotou’s passion for her work, her personal experience, and her dedication to championing survivors truly shine through, making this a must-listen.

Note: My podcast producer, Elijah, did his best to "studio-ize" my recording from my makeshift studio during disaster mitigation efforts at my home. 

NCCS

Survivorship Survey

Survivorship Checklist - NCCS - National Coalition for Cancer Survivorship (canceradvocacy.org)

Resources - NCCS - National Coalition for Cancer Survivorship (canceradvocacy.org)

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at [email protected]

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Join us on this episode of Everything Cancer as we welcome the insightful and genuine Harriet Cabelly, a grief therapist, positive psychology coach, cancer thriver, speaker, and author. Harriet shares her profound journey from being a school social worker to her true calling in grief therapy. She candidly discusses her own experiences with grief, from dealing with her daughter's disabilities and her own cancer journey.

Harriet emphasizes the importance of intentionality and finding small joys, even during the darkest times. She shares how she used imagery and worked with a creative therapist to navigate her cancer journey. Her creative coping strategies, including making and using inspirational coping cards, provided her with comfort and focus. Harriet relates how the art of Kintzugi—finding beauty in brokenness—offers valuable insights for anyone facing life's challenges. Tune in for an episode filled with wisdom, resilience, and practical advice on navigating grief and finding meaning after trauma.

Harriet’s Website Rebuild Life Now

Harriet’s Non-Hodgkin’s Lymphoma Patient Story on YouTube 

Harriet’s email address [email protected]

Harriet’s LinkedIn 

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at [email protected]

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

In this episode, we explore the benefits of lubricants for cancer survivors, focusing on how lubricants can enhance sexual pleasure, make penetration easier with decreased penile firmness, relieve vaginal dryness, reduce pain during penetration, and decrease performance anxiety. 

• Avoid lubricants containing irritants such as  chlorhexidine gluconate
   polyquaternium 
   fragrances
   glycerin
   propylene glycol
   parabens
   spermicide 
   menthol
   capsaicin
   flavors
   numbing agents like lidocaine

We hope this episode helps you feel more comfortable and informed about choosing and using lubricants to enhance your intimate experiences. Enjoy exploring together! 

Let’s Slide Into Lubricants After Cancer: Solutions for Sexual Health 

Leave comments or email us with your experiences and recommendations for intimate products. Stay tuned for future episodes on related topics. Thank you for listening to Everything Cancer!

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at [email protected]

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Dr. Cynthia Aks, retired integrative breast surgical oncologist, certified yoga therapist, energy healer, integrative health coach, and oncology nutrition counselor, joins us. 

Dr. Aks shares her extensive knowledge of integrative health. Cynthia discusses how nutritional values in food impact our well-being. She explains the importance of individualized nutritional therapy and practical steps for maintaining a balanced diet. She also explores how integrative and healthcare team collaboration can enhance the quality of life during and after cancer treatment.

This episode provides valuable insights and practical tips for cancer survivors looking to enhance their health and well-being through better nutritional choices and how to work with an integrative health coach and their oncology care team.

Key Points:

1. Nutritional Therapy:

   - Importance of nutrient-rich diets for health and healing.

   - High-energy foods: Plants and their role in providing essential nutrients.

   - Low-energy foods: Processed foods and their lack of nutritional value.

2. Individualized Nutrition:

   - Bio-individuality: One diet does not fit all.

   - The importance of personalized dietary plans based on genetic makeup.

   - Example of MTHFR gene mutation and its impact on nutrient metabolism.

3. Supplements vs. Food:

   - The preference for food over supplements when possible.

   - The need for high-quality supplements when necessary.

   - Ensuring supplement quality by looking for certifications and reputable brands.

4. Integrative Health Approach:

   - Importance of trust and communication between patients and their care team.

   - Collaboration with healthcare team members

5. Practical Advice:

    - Taking baby steps to implement dietary changes.

    - Educating and involving children in healthy eating habits.

Cynthia Aks Contact Info:
[email protected]

If you would like to read more on this topic:

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at [email protected]

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Slower

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at [email protected]

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

🦷 Do you experience dry mouth or that awful metallic taste? Want to know a great way to soothe mouth sores and help them heal quickly? Dr. Rajiv Saini has your answer!

Welcome to the "Everything Cancer" podcast.  Today, we're delving into the vital topic of mouth care with Dr. Rajiv Saini, Chief Science Officer at H2Ocean. 

Dr. Saini discusses why good, gentle oral health is crucial during cancer treatment and survivorship. 

Rajiv explains how chemotherapy and radiation can make the mouth sensitive and prone to sores and infections. He emphasizes the need for gentle, effective oral care routines. 

Dry mouth can occur for any number of reasons. It can persist for months or even years after radiation and some chemotherapy treatments. H2Ocean’s Healing Sea Salt Rinse can help alleviate that sensation for several hours. Jill describes H2Ocean as a “Spa Day for your mouth.”

Rajiv explains the science behind H2Ocean's patented formula, containing Red Sea salt, lysozyme, and xylitol, and its benefits in maintaining a healthy oral microbiome. Rajiv shares his passion for the product and H2Ocean's commitment to supporting cancer communities by donating mouthwash to cancer care organizations.

Rajiv is also a dentist, periodontist, Harvard-trained in Healthcare Operations, and a participant in oral care research and development in multiple settings.

Tune in to learn how a spa day for your mouth can enhance your well-being, whether you're in treatment or focusing on daily care.

📌 Show Notes:

• Dr. Rajiv Saini: Dentist, Periodontist, Harvard Medical School Health-Care Operations, over 175 publications, research and development in several settings, and Chief Science Officer at H2Ocean.
• Importance of oral care during and after cancer treatment.
• Benefits of H2Ocean's sea salt-based mouthwash.

👂 Thank you for joining us on this episode of Everything Cancer. Stay healthy and take care of your mouth!

www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Slower

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at [email protected]

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Self-described mom, wife, cyclist, and plant-killer, Ellen Goodwin’s fascinating journey from the CIA to cancer advocacy will inspire. 

Ellen talks with Jill about how she grapples with survivor's guilt but has found purpose in advocating for breast cancer research through Komen. She shares with the audience how much the community and support of her local breast cancer support chapter means to her. 

Ellen’s telling blends emotional depth with practical advice and personal anecdotes. Through this interview, she shows she has not lost her sharp wit.

Key Topics

Ellen’s experience advocating for herself and the importance of having a supportive medical team.

The role of her nurse navigator in her care.

Survivor’s guilt and the realization that everyone’s cancer journey is personal.

Empathy for others with more challenging journeys and her drive to advocate for others.

Ellen introduces her company, Artifcts, which helps people preserve meaningful memories through photos, videos, and stories.

Her involvement with Susan G. Komen and the rewarding experience of supporting research and providing direct financial assistance to those in need

What community and feeling connected in the cancer journey has come to mean for her.

Ellen concludes with a dark but funny pun about her journey, emphasizing the importance of humor in healing... this poignant moment highlights how humor can be a powerful tool for coping with the challenges of cancer.

Artifcts 

ELLEN GOODWIN'S ARTIFCTS
Wife, mother, friend, cyclist, book lover, plant killer, & world explorer + co-founder of Artifcts! 

Slower

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at [email protected]

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Meet Amanda Ferarro: Dive into Amanda's powerful journey as a cancer survivor, healthcare influencer, and bestselling author. Amanda tells it like it is and pulls no punches! Yet she offers real hope, humor, authenticity, and advocacy. 

TEDx Speaker: Hear about Amanda's impactful TEDx talk, sharing her story and advocating for cancer survivors: Through Pain Comes Optimism 

Advocacy and Resources: Learn about Amanda's website, cancerisanasshole.com, offering resources, patient advocacy, and support for cancer patients and their families.

Healing Through Advocating for  Others: Hear how offering patient advocacy services through her website soothes Amanda’s soul. 

Personal Struggles and Triumphs: Amanda opens up about her challenges with chemo brain, neuropathy, and the emotional toll of cancer treatment. 

The Power of Journaling: Amanda discusses the healing power of journaling through her journey

Heroic and Creative Son: Discover how Amanda and her son, Isaac, created cancerisanimposter.com to help kids understand and cope with a family member's cancer diagnosis. 

Inspiring Resilience: Amanda shares how she maintains her fighting spirit and spreads hope, even amidst never-ending health challenges.

Wisdom for Survivors: Insightful tips on navigating the cancer journey, the importance of second opinions, and leveraging support networks.

Amazing Off-the-Cuff Answer: Hear Amanda’s inspiring and incredible answer to Jill’s surprise interview-closing question.

Amanda’s TikTok Channel: Cancer Patient Advocate 

Join us for an inspiring and heartfelt episode that underscores the strength and resilience of cancer survivors, providing valuable insights and resources for those on their own survivorship journey.

Slower

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at [email protected]

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Tim Sohn, a CML cancer survivor, hosts and produces the weekly live-stream show, “Showing Up: Perspectives on Cancer”.  Tim and his survivor guests prove how valuable the shared experience can be. 

Jill and Tim discuss the challenges of engaging in life with an “invisible illness”.

Today, Tim joins the podcast and shows us his gift of making us feel like we are talking at his kitchen table.

He got real with us and sharing how the survivors he welcomes to his show impact his life and perspective.

Tim gives us a glimpse of his vulnerable side as he recalls the challenge of going from remission to recurrence of his Chronic Myeloid Leukemia (CML).  

We are suspended in time with Tim as he recounts the uplifting and meaningful support he received from two members of his audience while sharing his personal sense of devastation with recurrence of CML on “Showing Up”.

He sheds light on the inspiring aspect of the survivors supporting each other as he recounts his shift from a private cancer story private to sharing it publicly in 2021 …
"Showing Up: Perspectives on Cancer," was born.

“Showing Up” is a live show airing Wednesdays at 8 PM Eastern on LinkedIn, then is posted on YouTube. The show provides a safe space for cancer patients, survivors, and supporters to share their stories, fostering a sense of community and understanding.

Showing Up: Perspectives on Cancer on YouTube - https://www.youtube.com/@perspectivesoncancer/featured

On Amazon, Tim has published inspiring survivor stories,
Perspectives on Cancer: Cancer Patients, Survivors & Supporters Share Their Stories
https://a.co/d/0VSgpjm

Perspectives on Cancer: Stories of Healing, Hope, and Resilience
Volume 2 https://a.co/d/dlyNrDU 

Enjoy this episode as we turn the hosting tables on Tim and have him in the Everything Cancer Podcast guest seat.

If you are interested in attending or supporting Tim’s Showing Up: Perspectives On Cancer In-Person Event, which is Oct. 5 & 6,

Slower

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at [email protected]

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

• Understanding the Role: Mark sheds light on why your Clinical Oncology Pharmacist is worth your time and attention.
• Supplement Safety: Insight into how supplements can interact with cancer treatments and the importance of informing your healthcare team about any non-prescribed substances you are taking.
• Immunotherapy Insights: Learn about the potential side effects of immunotherapy, how they are managed, and the importance of patient education in ensuring safe and effective treatment.
• Future of Oncology: Discover advancements in BITE therapy, making cutting-edge treatments more accessible in community settings.
• Michigan’s POEM Initiative: Mark’s investment in exceptional patient care is evident through his involvement in the POEM initiative. He invites Michigan Oncology Pharmacists to join.
• Survivorship Clinic Plans: The need for expert survivorship care is apparent. Mark shares his collaboration with oncology care experts and the initiative to launch a Survivorship Clinic staffed by a Clinical Oncology Pharmacist and an Advanced Practice provider.
• Empowering Patients: The importance of communication and education in empowering patients to take an active role in their treatment and care.

Slower

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at [email protected]

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...