FASD Hope

FASD Hope

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FASD Hope episodes

  • 169 - FASD Legislative Update and Upcoming FASD United Events with Jennifer Wisdahl
    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 20 years of living experience.
     
    Episode 169 is a BONUS EPISODE with Jennifer Wisdahl , COO of FASD United . Jenn shares an IMPORTANT FASD Legislative Update about The FASD Respect Act and upcoming events with FASD United, which include:
     
    -  The FASD Respect Act S.1800 / H.R. 3946 which has been introduced in both the     US Senate and US House of Representatives
    -  The Vancouver Conference in Seattle in Spring 2024
    -  The National FASD Impact Week / FASD at 50 - September 18-21, 2023
    -  The FASD and Education Survey
    -  Run FASD 2023 Virtual 5K
     
    EPISODE RESOURCES - 
     
    FASD United -
    https://www.fasdunited.org
     
    The FASD Respect Act
    https://nofaspolicycenter.org/the-fasd-respect-act/
     
    The Vancouver Conference in Seattle
    https://fasdunited.org/the-vancouver-conference-in-seattle/
     
    National FASD Impact Week -
    https://fasdunited.org/national-fasd-impact-week/
     
    FASD & Education Survey -
    https://www.surveymonkey.com/r/FASDEducation
     
    Run FASD Virtual 5K
    https://www.runfasd.org
     
     
    FASD Hope -
    Instagram - https://www.instagram.com/fasdhope/
    Facebook - https://www.facebook.com/fasdhope1
    Twitter - https://twitter.com/fasdhope
    LinkedIn-
    https://www.linkedin.com/in/natalie-vecchione-17212160
    HOPE FOR THE FASD JOURNEY MEMBERSHIP COMMUNITY with Sandra Flach and Natalie Vecchione - 
    https://www.justicefororphansny.org/hope-community
    47 min
  • 168 - CAMP FASD - A Conversation with Nicholas Tassone and Emma Melendez-Scherer
    FASD Hope is a podcast about FASD (Fetal Alcohol Spectrum Disorder), through the lens of parent advocates with over 20 years of living experience. 
     
    Episode 168 highlights CAMP FASD with Nicholas Tassone (President and Co-Founder) and Emma Melendez-Scherer (Chief Administrative Officer). The purpose of CAMP FASD is to provide children with FASD a positive and safe environment in which to build skills that will assist them in everyday life. Accordingly, their contributions are recognized and appreciated, thereby creating a constructive experience and increased self-image. The vision of CAMP FASD is to be recognized as a leading resource for FASD by children and their families, demonstrated by the differences made in their lives. (Source - CAMP FASD) 
     
    In this episode, Nick and Emma share: how CAMP FASD was formed, the growth of CAMP FASD, details about the CAMP FASD experience and how listeners can learn more about CAMP FASD for 2024. (Note -The Registration for this year's 2023 CAMP FASD is full.)
     
    Episode Resources :
    CAMP FASD - 
    Instagram: https://www.instagram.com/fasdcamp (@fasdcamp)
    Facebook: https://www.facebook.com/fasdcamp @ CAMP- A FASD Community)
    Website link: https://www.fasdcamp.org/
     
    Direct Link for Camp FASD Registration Form:
    https://forms.gle/6jG7d1LkRzSnYrSA7
     
    Donation Link for CAMP FASD:
     https://www.fasdcamp.org/contribute
     
     
    FASD Hope -
    Instagram - https://www.instagram.com/fasdhope/
    Facebook - https://www.facebook.com/fasdhope1
    Twitter- https://www.twitter.com/fasdhope
     
    HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione - 
    https://www.justicefororphansny.org/hope-community
    36 min
  • 167 - FASD Legislative Update AND Run FASD 2023 with Jennifer Wisdahl and Rebecca Tillou
    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder, through the lens of parent advocates with over 20 years of living experience.
     
    In this two part episode, Jennifer Wisdahl, COO of FASD United first shares an IMPORTANT FASD Legislative Update and upcoming happenings of FASD United. Part 2  of this episode is a kick off for the Run FASD 2023 registration and information discussion with Rebecca Tillou of Run FASD. The Run FASD Virtual 5K (your way!) will be held from September 9-17, 2023
     
    EPISODE RESOURCES -
     
    FASD United -
    https://www.fasdunited.org
    Instagram - https://www.instagram.com/fasdunited/
    Facebook - https://www.facebook.com/fasdunited
     
    Run FASD -
    https://www.runfasd.org
    Instagram - https://www.instagram.com/runfasd/
    Facebook - https://www.facebook.com/groups/489485015438968
     
    FASD Hope -
    Instagram - https://www.instagram.com/fasdhope/
    Facebook - https://www.facebook.com/fasdhope1
    Twitter - https://www.twitter.com/fasdhope
     
    HOPE FOR THE FASD JOURNEY MEMBERSHIP COMMUNITY with Sandra Flach and Natalie Vecchione - 
    https://www.justicefororphansny.org/hope-community
    39 min
  • 166 - All About FASD - Excessive Sugar Consumption and FASD with Dr. Jerrod Brown

    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of living experience.

    Episode 166 welcomes back Dr. Jerrod Brown with our "series within the series" - All About FASD. This month's topic is "Excessive Sugar Consumption and FASD. 

    Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher, and consultant with multiple years of experience in teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS and the Editor-In-Chief of Forensic Scholars Today (FST).

    This episode is a deep dive into excessive sugar consumption and FASD. Some of the topics covered in this episode include: how excessive sugar consumption is detrimental to physical / emotional / cognitive/ regulatory aspects of health, how Prenatal Alcohol Exposure can affect the ability to metabolize sugar, why excessive sugar consumption is craved by individuals with brain-based / whole body diagnoses (particularly FASD) and potential resources and strategies to implement a healthier eating lifestyle.

    * NOTE - This episode is for informational purposes and resource sharing purposes only. It is NOT intended to take the place of a medical professional who is knowledgeable in nutrition and FASD.*

    EPISODE RESOURCES - 

    Dr. Jerrod Brown - [email protected]

    American Institute for the Advancement of Forensic Studies (AIAFS) - 

    https://aiafs/com/

    Facebook - https://www.faceboook.com/AIAFSTraining

    Instagram - https://www.instagram.com/aiafsassoc/

    Twitter - https://twitter.com/AIAFS2011

     

    FASD Hope Resources - 

    Instagram - https://www.instagram.com/fasdhope/

    Facebook - https://www.facebook.com/fasdhope1

    Twitter - https://twitter.com/fasdhope

    HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione -

    https://www.justicefororphansny.org/hope-community

    54 min
  • 165 - Mom, Author and Navigator - A Conversation with Laura Bedard

    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 20 years of living experience.

    Episode 165 welcomes back Laura Bedard (Ep. 149 / September 2022) of MASSFAS, an FASD United Affiliate. Laura recently published her second book titled "My FASD Feelings: A Guide to Children's Experience with Fetal Alcohol Spectrum Disorders". Laura is also a Family Navigator with FASD United.

    In this hope-filled episode, Laura shares: her family's FASD journey, the inspiration behind her second book, how this book is a resource on different levels, FASD United's "Family Navigator" program (and how many people have been assisted through the Family Navigator program), advocating in the trenches of her family's FASD journey and words of encouragement and hope.

    "FASD United Family Navigator is, confidential, and free. We help caregiver, parents, birth parents, professionals, and individuals with FASD. This also includes people who are pregnant or intending to become pregnant that may have questions about alcohol or substance use. We offer one-on-one peer support, referrals to resources and services, information about prenatal alcohol exposure."

    EPISODE RESOURCES -

    FASD United - https://fasdunited.org

    Family Navigator Program through FASD United -

    https://fasdunited.org/family-navigator/

    The Family Navigator Phone Number that Laura shared in this episode is -

    202-785-4584

    Mondays - Fridays between 9 am and 10 pm Eastern Time

    Laura's Books -

    "My FASD Feelings: A Guide to Children's Experience with Fetal Alcohol Spectrum Disorders" by Jennifer Robinson, Ph.D, LMHC and Laura Bedard, MFA

    https://www.amazon.com/FASD-Feelings-Childrens-Experience-Disorders/dp/1977260489/ref=sr_1_1?crid=2NIMHG3V6G0DP&keywords=my+fasd+feelings&qid=1683310079&sprefix=my+fasd+feelings%2Caps%2C89&sr=8-1

     

    "My Adoption Feelings: A Guide to Children's Experience with Adoption" by Jennifer Robinson, LMHC and Laura Bedard, MFA

    https://www.amazon.com/My-Adoption-Feelings-Childrens-Experience/dp/1478773057/ref=sr_1_1?crid=TR63PXTZVMNX&keywords=my+adoption+feelings&qid=1683310147&sprefix=my+adoptin+feelings%2Caps%2C100&sr=8-1

     

    FASD Hope Resources - 

    Instagram - https://www.instagram.com/fasdhope/

    Facebook - https://www.facebook.com/fasdhope1

    HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione -

    https://www.justicefororphansny.org/hope-community

     

    35 min
  • 164 - Welcome Back - We Need More Hope! A Conversation with Jennifer Wisdahl and Natalie Vecchione

    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder, through the lens of parent advocates with over 20 years of living experience.

    It's been over 6 months since Natalie Vecchione has released an episode, which was thought to be the last episode. After much prayer and contemplation, Natalie realized that FASD Hope was needed in the FASD Community, even if the frequency of episodes would be reduced.

    In this episode, Natalie has a heart to heart conversation with Jennifer Wisdahl, COO of FASD United. Natalie shares her heart and her journey of the past 6 months and what pulled her back to FASD Hope.  Jennifer shares a FASD Legislative Update, the MANY new programs and updates with FASD United and upcoming happenings of FASD United.  Welcome back to FASD Hope!

    "Hope is being able to see that there is light despite all of the darkness."

    - Bishop Desmond Tutu

     

    EPISODE RESOURCES -

    FASD United -

    https://www.fasdunited.org

    FASD Hope -

    Instagram - https://www.instagram.com/fasdhope/

    Facebook - https://www.facebook.com/fasdhope1

     HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione - 

    https://www.justicefororphansny.org/hope-community

     

    1 hr 1 min
  • 163 - Be Still - Our Final Episode

    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.

    Episode 163 is our FINAL episode of FASD Hope. For over two years, we have been blessed to be a voice for giving IMPORTANT guests a platform to share their journeys, experience, research, clinical work, legislative activity, philanthropy and inspiration for the FASD Community!  Thank you for listening to our small but mighty family podcast about FASD. We're certainly not experts and we're still on this journey, too. It’s now time for us to focus even more on our family, navigate what lies ahead, and face uncertainty with faith and fortitude. 

    We're SO thankful to be ending this amazing journey by leaving over 160+ episodes of FASD Hope! Thank you for listening, take care and always have HOPE!

    "The LORD will fight for you; you need only to be still." - Exodus 14:14

    Sincerely,

    Natalie and John Vecchione

    FASD Hope 

     

     

    7 min
  • 162 - The Families and The Kids That We’ve Left Behind - A Conversation with Best Selling Author, Andrew Bridge

    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.

    November is National Adoption Month and FASD Hope is honored to highlight Andrew Bridge in Episode 162. 

    Leaving foster care at eighteen, Andrew Bridge attended Wesleyan University, then graduated from Harvard Law School and he was awarded a Fulbright Fellowship. He began his legal career representing children in mental health facilities across Alabama. His work as an attorney and an advocate enforced children's constitutional rights to be free from staff abuse and to receive meaningful psychiatric care.

    Andrew returned home to Los Angeles as the CEO of The Alliance for Children's Rights. He defended children at MacLaren Hall, where he was once confined. He won the right for Los Angeles' 60,000 foster children to speak publicly about their treatment. He investigated the excessive removal of African-American babies from their parents, which led to one of the first government initiatives to stop it. Andrew is the Co-Founder of National Adoption Day. He went on to lead one of California's largest recruiters of foster and adoptive parents.

    Called to address the unjustified placement of foster children in mental institutions, Andrew has served as a Senior Advisor to the State of Illinois. His educational work resulted in the creation of New Village Girls Academy, California's first all-girls high school for parenting teens. Andrew serves on Arizona's Foster Care Review Board and he consults with child welfare systems and foundations.

    Andrew is also the author of the New York Times AND Los Angeles Times BEST SELLER book, "Hope's Boy: A Memoir". The Washington Post named "Hope's Boy" one of it's Best Books of the Year, with a review that called it "filled with vivid scenes and empathetic description...compulsively readable".

    In this THOUGHT-PROVOKING episode, Andrew shares: his personal journey and lived experience as a foster child in the Los Angeles Foster Care System, his journey in becoming an attorney and child rights advocate, insights and discussion points from "Hope's Boy", the punitive nature that was / still exists in child welfare systems, his thoughts on how to educate those in the child welfare system about FASD and other brain-based diagnoses, the beginnings of "National Adoption Day" in 2000 and how it's grown, his current work and initiatives and words of hope and encouragement.

    EPISODE RESOURCES -

    Andrew Bridge - 

    Hope’s Boy - https://hopesboy.com 

    LinkedIn - https://www.linkedin.com/in/andrew-bridge-667860210/

     

    FASD Hope Resources -

    https://www.fasdhope.com/

    Instagram - https://www.instagram.com/fasdhope/

    Facebook - https://www.facebook.com/fasdhope1

    Twitter - https://twitter.com/fasdhope

    LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

    “HOPE FOR THE FASD JOURNEY COMMUNITY”, CO-LEAD BY NATALIE VECCHIONE AND SANDRA FLACH

    TO LEARN MORE ABOUT “HOPE FOR THE FASD JOURNEY” COMMUNITY OR TO SIGN UP, VISIT THE BELOW LINK - 

    https://www.justicefororphansny.org/hope-community

     

    Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy

    BUY IT NOW!

    1 hr
  • 161 - FASCETS Friday - A Family’s Transformation with Lynn and Clare Alsup

    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.

    Episode 161 is the FINAL FASCETS Friday Episode in which Episode 81 Guest, Lynn Alsup of FASCETS and her daughter, Clare, share how their family was transformed by the FASCETS Neurobehavioral Model. Lynn was our first "FASCETS Friday" guest in Episode 81 - airdate September 14, 2021. 

    In this ENLIGHTENING episode, Lynn and Clare share the following:  Lynn's work in FASCETS and the progress of her upcoming memoir, their family's FASD journey / life before Clare's FASD diagnosis, learning about the FASCETS Neurobehavioral Model and how it TRANSFORMED their family, how their family is doing now, Clare's accomplishments / important insight and words of hope and encouragement.

    FASCETS RESOURCES -

    FASCETS Website - https://fascets.org/

    Facebook - https://www.facebook.com/FASCETS

    Instagram - https://www.instagram.com/fascets_inc/

    Twitter - https://twitter.com/FASCETS2

     

    FASD Hope Resources -

    https://www.fasdhope.com/

    Instagram - https://www.instagram.com/fasdhope/

    Facebook - https://www.facebook.com/fasdhope1

    Twitter - https://twitter.com/fasdhope

    LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

    “HOPE FOR THE FASD JOURNEY COMMUNITY”, CO-LEAD BY NATALIE VECCHIONE AND SANDRA FLACH

    TO LEARN MORE ABOUT “HOPE FOR THE FASD JOURNEY” COMMUNITY OR TO SIGN UP, VISIT THE BELOW LINK - 

    https://www.justicefororphansny.org/hope-community

     

    Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy

    BUY IT NOW!

    42 min
  • 160 - The Fellowship of Rural FASD - A Conversation with Rob More

    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.

    Episode 160 celebrates the AMAZING advocacy, work and fellowship of the Rural FASD Support Network (Ontario, CA). The Rural FASD Support Network was founded by a small group of volunteers with personal knowledge of & lived experience with FASD in rural Ontario (Canada). Today's conversation is with Rob More, Secretary of Rural FASD. Rob and his wife Shelley are proud parents of three amazing young adult children impacted by FASD. Rob, Shelley and four other dedicated volunteers are the co-founders of the Rural FASD Support Network of Eastern Ontario, which is currently the largest, nonprofit, lived disability experience in Canada following "Nothing For Us Without Us".

    In this HOPE-FILLED EPISODE, Rob shares the following:  the history of the Rural FASD Support Network, the exponential growth & key developments of Rural FASD, the diversity & representation of Rural FASD, the exciting legislative update of the National FASD Framework Legislation in Canada (and how Rural FASD and others advocated on Parliament Hill on October 20th), the blessings (and challenges) of living in a rural area as a family of those with FASD and words of hope and encouragement.

    "As you have therefore have received Christ Jesus the Lord, so walk in Him, rooted and built up in Him and established in the faith, as you have been taught, abounding in it with thanksgiving." 

    - Colossians 2: 6-7

     

    EPISODE RESOURCES - 

    Rural FASD -

    https://ruralfasd.ca/

    Instagram - https://www.instagram.com/ruralfasd/

    Twitter - https://twitter.com/FasdRural

     

    FASD Hope Resources -

    https://www.fasdhope.com/

    Instagram - https://www.instagram.com/fasdhope/

    Facebook - https://www.facebook.com/fasdhope1

    Twitter - https://twitter.com/fasdhope

    LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

    “HOPE FOR THE FASD JOURNEY COMMUNITY”, CO-LEAD BY NATALIE VECCHIONE AND SANDRA FLACH

    TO LEARN MORE ABOUT “HOPE FOR THE FASD JOURNEY” COMMUNITY OR TO SIGN UP, VISIT THE BELOW LINK - 

    https://www.justicefororphansny.org/hope-community

     

    Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy

    BUY IT NOW!

    1 hr 11 min

About FASD Hope

From the publisher's feed

FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. The mission of FASD Hope is to bring…