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Father, Fighter, Founder, Designer: Chris Flynn on Saving Aria
What would you do if your child’s life depended on money, not science?
Aria Flynn is four years old and one-in-8-billion: she has a unique LONP1 mitochondrial mutation with no UK NHS treatment path. Her parents, Chris and Adriana, are looking for solutions. They know exactly where to go to get Aria the help she needs when they have the necessary funds. In this conversation, Chris (founder of Flynn Product Design) shares Aria’s story, and the plan that could change her trajectory: drug repurposing now, ASO development next, and gene therapy in the longer term. The blocker? Funding.
If you’re in the ideas business - creatives, founders, producers, researchers, philanthropists - this episode is your brief. We’re looking for:
• Introductions to labs, foundations, or major donors
• Creative ideas to reach the people who can move millions
• Media opportunities to amplify Aria’s story
And time matters.
CHAPTERS
1 Introduction and Aria's Story - 00:00:00
2 Understanding Aria's Condition - 00:03:00
3 Challenges with the NHS - 00:09:00
4 Global Treatment Options - 00:15:00
5 The Role of Community Support - 00:21:00
6 Call to Action and Future Hopes - 00:27:00
ABOUT THE HOST
Tracey Burnett is the founder of Leads to Success Global and host of Marketing Momentum for Agencies (Top 5% of podcasts globally, ListenNotes). With decades of experience in lead generation, marketing and sales, including client-side roles at Unilever and Barclays Bank, she helps agency and consultancy founders sharpen their positioning, build trust with the right buyers, and create more consistent pipelines.
Tracey is known for practical, straight-talking advice and deep platform expertise, particularly on LinkedIn, where she’s invested thousands of hours refining what drives attention and real sales conversations.
Her consultancy has supported marketing and communications teams across government and a wide range of agencies, including creative-led, video production, and UX specialists, as well as leadership, HR, and interior design consultancies. Outside work, she’s passionate about food and health.
LinkedIn: www.linkedin.com/in/traceyburnett
Website: www.leadstosuccessglobal.com
Got a question? Give me a call: 0044 7877 042 804
Book a call: https://bit.ly/leadstosuccess-book
Email: [email protected]
Donate to Aria: https://www.justgiving.com/campaign/solesurvivor
Learn about LONP1: https://www.curelonp1.com/ [email protected]
Connect with Chris: https://www.linkedin.com/in/flynnproductdesign/
View all episodes
By Tracey BurnettWhat would you do if your child’s life depended on money, not science?
Aria Flynn is four years old and one-in-8-billion: she has a unique LONP1 mitochondrial mutation with no UK NHS treatment path. Her parents, Chris and Adriana, are looking for solutions. They know exactly where to go to get Aria the help she needs when they have the necessary funds. In this conversation, Chris (founder of Flynn Product Design) shares Aria’s story, and the plan that could change her trajectory: drug repurposing now, ASO development next, and gene therapy in the longer term. The blocker? Funding.
If you’re in the ideas business - creatives, founders, producers, researchers, philanthropists - this episode is your brief. We’re looking for:
• Introductions to labs, foundations, or major donors
• Creative ideas to reach the people who can move millions
• Media opportunities to amplify Aria’s story
And time matters.
CHAPTERS
1 Introduction and Aria's Story - 00:00:00
2 Understanding Aria's Condition - 00:03:00
3 Challenges with the NHS - 00:09:00
4 Global Treatment Options - 00:15:00
5 The Role of Community Support - 00:21:00
6 Call to Action and Future Hopes - 00:27:00
ABOUT THE HOST
Tracey Burnett is the founder of Leads to Success Global and host of Marketing Momentum for Agencies (Top 5% of podcasts globally, ListenNotes). With decades of experience in lead generation, marketing and sales, including client-side roles at Unilever and Barclays Bank, she helps agency and consultancy founders sharpen their positioning, build trust with the right buyers, and create more consistent pipelines.
Tracey is known for practical, straight-talking advice and deep platform expertise, particularly on LinkedIn, where she’s invested thousands of hours refining what drives attention and real sales conversations.
Her consultancy has supported marketing and communications teams across government and a wide range of agencies, including creative-led, video production, and UX specialists, as well as leadership, HR, and interior design consultancies. Outside work, she’s passionate about food and health.
LinkedIn: www.linkedin.com/in/traceyburnett
Website: www.leadstosuccessglobal.com
Got a question? Give me a call: 0044 7877 042 804
Book a call: https://bit.ly/leadstosuccess-book
Email: [email protected]
Donate to Aria: https://www.justgiving.com/campaign/solesurvivor
Learn about LONP1: https://www.curelonp1.com/ [email protected]
Connect with Chris: https://www.linkedin.com/in/flynnproductdesign/