Feeling This Life

Feeling This Life

By VIPS (Vision Interventions and Parental Support)ParentingKids & Family
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Feeling This Life episodes

  • You're not fixing it, but you can fix the way you think about it with Amanda Jaksha

    Dr. Cathy talks with Amanda, mom to Ava, about embracing life when parenting a child with complex needs. Amanda shares vast wisdom and perspective about what it means to embrace life as a parent and about how to help your child thrive.   Jenny, Paige, and Dr. Cathy then reflect about Amanda’s attitude and story, the impact of involving family in home visits and therapy, taking breaks, and not vacuuming for your home-based providers.


    International Foundation for CDLK5 Research:

    https://www.cdkl5.com/about-cdkl5/

    Amanda Jaksha would like to share the following resources for parents learning about complex needs.

    Family friendly resources about infantile spasms:

    Https://infantilespasms.org/families/is-it-is

    Resources to learn more about AAC for children with brain-based visual impairment:

    Https://praacticalaac.org/tag/cvi/

    https://communicationmatrix.org/Community/Posts/Content/15817


    Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw

    Make a Donation to-

    VIPS: https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495

    Anchor Center: https://www.anchorcenter.org/get-involved/donate/

    Get in touch with us!

    Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife

    www.anchorcenter.org

    www.vips.org

    34 min
  • What happens when your vision changes? with Juanita Miles

    Juanita Miles, preschool director at VIPS, shares the story of how her vision has changed as she lost, gained, and then lost her sight.  She shares insights she gained along the way, opens up about how it felt to lose vision and how she accomplished her goals when she wasn’t sure she could.  Jenny, Paige, and Dr. Cathy reflect about Juanita’s resilience.

    Link to Juanita’s life hacks: https://vipsorg.sharepoint.com/:i:/s/FeelingThisLife/EWyyatlxPQBMvls1mt0vG2sBDqd-4iSy1xKXGoHOMHMjZg

    Accessible version of Juanita’s life hacks: https://vipsorg.sharepoint.com/:w:/s/FeelingThisLife/Eb19gjLTWN1DjzL_xpbyhJkBhgPuVUMBXMFZPITrOGErbg


    Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw

    Make a Donation to-

    VIPS: https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495

    Anchor Center: https://www.anchorcenter.org/get-involved/donate/


    Get in touch with us!

    Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife

    www.anchorcenter.org

    www.vips.org

    43 min
  • Book Talk: “For The Benefit of Those Who See”

    Jenny, Dr. Cathy, and Paige reflect on reading “For the Benefit of Those Who See”, by Rosemary Mahoney.  Topics that come up include learning about the world using all our senses and blind content creators.  Jenny touches on how the students at Braille Without Borders (the school where Mahoney teaches) validate her experiences.


    Purchase and learn more about “For the Benefit of Those Who See” book: https://www.rosemarymahoney.net/for-the-benefit-of-those-who-see

    Blindsight Documentary on Vimeo: https://vimeo.com/508621901

    Video: A Journey from Germany to Kerala: Sabriye Tenberkenat TEDxTrivandrum: https://www.youtube.com/watch?v=yy4FvPAEtJ0

    Book - “Echolocation and FlashSonar” by Daniel Kish and Jo Hook

    https://www.aph.org/product/echolocation-and-flashsonar/


    Just a few blind content creators we follow:

    Molly Burke: https://www.mollyburkeofficial.com/

    Lucy Edwards: https://www.lucyedwards.com/

    Anthony Ferraro: https://asfvision.com/

    Christine Ha: https://www.youtube.com/user/ChristineHaTube

    Dan Mancina: https://www.instagram.com/danthemancina/?hl=en

    James Rath: https://jamesrath.la/

    Catarina Rivera: https://www.catarinarivera.com/

    Sam Seavey: “The Blind Life”: https://www.youtube.com/c/TheBlindLife

    https://www.perkinselearning.org/technology/posts/popular-blind-youtubers


    Episode Transcript: s2e4_Book Talk transcript (1).txt


    Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw


    Make a Donation to-

    VIPS: https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495

    Anchor Center: https://www.anchorcenter.org/get-involved/donate/


    Get in touch with us!

    Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife

    www.anchorcenter.org

    www.vips.org

    29 min
  • A Full Life with Jamie Shake

    Jenny interviews mom and physical therapist Jamie Shake, who is visually impaired.  Jamie shares how her visual impairment impacted her schooling, and how her vision is just a regular part of her day at work.  Jamie shares her love of mowing grass.  Jamie and Jenny talk about the use of a smartphone as a low vision device.  Paige, Jenny, and Dr. Cathy reflect on Jamie’s wisdom as they discuss smartphones for accessibility and their own lived experiences with advocacy.

    Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw

    Episode transcript: s2e3 Jaime Shake transcript- Smyth edit.txt

    Make a Donation to-

    VIPS: https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495

    Anchor Center: https://www.anchorcenter.org/get-involved/donate/


    Get in touch with us!

    Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife

    www.anchorcenter.org

    www.vips.org

    32 min
  • Will orientation and mobility help my child? with Dr. Phangia 'Nana' Dewald

    Dr. Cathy interviews Dr. Phangia “Nana” Dewald, an orientation and mobility specialist.  Cathy and Nana talk about the importance of orientation and mobility in a child’s early years and the impact that service can have on a child’s development.  Jenny reflects on her experience advocating for orientation and mobility services for her daughter, and how she felt as she spoke up.  Cathy, Jenny, and Paige then share their thoughts about how orientation and mobility, grief, and advocacy intersect.

    Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw

    Make a Donation to-

    VIPS: https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495

    Anchor Center: https://www.anchorcenter.org/get-involved/donate/

    Get in touch with us!

    Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife

    www.anchorcenter.org

    www.vips.org

    36 min
  • My child's vision stumps me! with Carrie Garnett

    Jenny interviews Carrie Garnett, her daughter’s teacher of the visually impaired.  They discuss their experiences around confusion when a child is able to see something they “shouldn’t” be able to, and when a child struggles with seeing something they “should” be able to both at home and at school.  Paige, Dr. Cathy, and Jenny reflect about the factors that influence a child’s functional vision.  Jenny shares how her feelings of need for control have been impacted by being “stumped”.

    One of the things we can observe in young (and not so young) children is the presence of "visual fatigue". It is just one more hidden visual condition that affects individuals with visual impairment in their daily lives. As we learn more about how the brain works, scientists are starting to unravel the mystery of visual fatigue. Here is a link for understanding that research better: https://www.perkins.org/the-science-behind-visual-fatigue-and-cvi/

    Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw

    Make a Donation to-

    VIPS: https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495

    Anchor Center: https://www.anchorcenter.org/get-involved/donate/

    Get in touch with us!

    Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife

    www.anchorcenter.org

    www.vips.org

    29 min
  • Season 2 Teaser

    Season 2 episodes will be released the first Monday of each month at 7:00AM Eastern. 


    Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw


    Purchase and learn more about “For the Benefit of Those Who See” book: https://www.rosemarymahoney.net/for-the-benefit-of-those-who-see


    Make a Donation to-

    VIPS: https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495

    Anchor Center: https://www.anchorcenter.org/get-involved/donate/


    Get in touch with us!

    Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife

    www.anchorcenter.org

    www.vips.org

    2 min
  • What to expect when fostering your child’s social skills

    Paige interviews Hailee Raymer, mom of a daughter with a visual impairment and complex needs.  Hailee talks about how her time at the pool with her daughter taught her a new way to connect, and gives advice to other families about what to expect when fostering social skills in their children.  Jenny, Dr. Cathy, and Paige talk about the potential for each moment to become an opportunity for building a strong foundation for social development.

    TeachingVisuallyImpaired.com: Social Interactions: https://www.teachingvisuallyimpaired.com/social-interactions.html#:~:text=Students%20who%20are%20blind%20or%20visually%20impaired%20may%20not%20be,to%20act%20in%20various%20situations.

    Perkins: Developing Social Skills in Children Who Are Blind or Visually Impaired:

    https://www.perkinselearning.org/videos/webcast/developing-social-skills-children-who-are-blind-or-visually-impaired


    Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw

    Make a Donation to-

    VIPS

    Anchor Center

    Get in touch with us!

    Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife

    www.anchorcenter.org

    www.vips.org

    27 min
  • What to expect when helping your child learn to get from place to place

    Dr. Cathy interviews Dr. Penny Rosenblum about what to expect when teaching your child orientation and mobility skills. Dr. Rosenblum is a professional in the area of visual impairment, and has a visual impairment herself.  She shares practical ideas for helping your child to become an active traveler.

    https://www.blindsquare.com/

    https://www.bemyeyes.com/

    https://www.microsoft.com/en-us/research/product/soundscape/

    https://aira.io/

    https://www.perkinselearning.org/sites/elearning.perkinsdev1.org/files/perkins-downloads/nondriving-strategies-freebie.pdf


    Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw

    Make a Donation to-

    VIPS

    Anchor Center

    Get in touch with us!

    Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife

    www.anchorcenter.org

    www.vips.org

    31 min

About Feeling This Life

From the publisher's feed

This podcast dives deep into the triumphs, challenges, and strategies that are part of the lives of those who care for young children with blindness and visual impairment, building an audio community…