There’s a campaign gathering attention online right now calling for a life-changing medication to be made available in Ireland. 28 year old Emily Felix, who is living with a rare neuromuscular condition called Friedreich’s Ataxia, is calling for the government to make the drug Skyclarys accessible in Ireland.   

 This treatment has been approved in other countries and could help slow the progression of the condition, and Emily joins us now to tell us more about her story and what she feels needs to be done.