Wes Michael had the idea in 2000. He didn't start the company until 2013.
What finally moved him wasn't a business plan — it was his wife landing a job with health insurance, right as his employer asked him to work a few months without pay.
Thirteen years later: 12,000 studies, 1,500 conditions, and more than $18
million paid directly to patients and caregivers for sharing their stories.
Earlier this year he sold Rare Patient Voice to Canova.
In this episode Wes breaks down how a client telling him "no" became the entire business model, why he pays people cash instead of gift cards, how LinkedIn became his primary client channel without a sales team, and why he named the company for the patients instead of the buyers.
If you're building something that serves two completely different audiences, this one's for you.
CHAPTERS
00:00 Meet Wes Michael
00:59 What Rare Patient Voice actually does
02:23 Why they pay cash instead of gift cards
03:27 Why drug companies need to hear from patients
05:08 From Wheaties and McCormick to healthcare
06:50 The hemophilia project that started everything
07:50 The client who said "no" — and gave him the idea
08:25 Why he waited 13 years to launch
09:20 12,000 studies, $18M paid, and the exit
10:10 The most invigorating part of the work
13:42 What he wishes more people knew
15:36 Marketing to patients and clients at the same time
16:39 Why LinkedIn works better than a sales pitch
18:25 Conferences, events, and the referral partner model
21:02 What retirement looks like
22:13 Peanut butter, peaches, and small portions
CONNECT WITH WES
Rare Patient Voice: https://rarepatientvoice.com
LinkedIn: search "Wes Michael"
Patients and caregivers — any condition, not just rare — can sign up at
rarepatientvoice.com to take part in paid, confidential surveys and interviews.
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Fix My Fees is the podcast where merchant processing is so boring, we bring on interesting people and ask them about their business instead.
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