Flying Through Fog: A Podcast for PANS/PANDAS Caregivers

Getting a PANS/PANDAS diagnosis is only half the battle—the other half is fighting insurance companies for treatment coverage.

In this episode, Krystal and Lindsey sit down with Dr. Warris Bokhari, co-founder of Claimable, an AI-powered platform that's helping families overturn insurance denials for IVIG therapy with an 80% success rate.

Dr. Bokhari shares his journey from emergency medicine in London to taking on the US healthcare system, and reveals why insurance companies routinely deny legitimate claims—often using unqualified reviewers and cherry-picked evidence.

Learn the critical mistakes families make when appealing denials, discover the hidden rights you have under federal and state law, and find out why copying your CEO on your appeal letter could be a game-changer.

Whether you're facing your first denial or your tenth, this episode gives you the roadmap and resources to fight back and win.

Read the full transcript of this episode at PANDASMichiana.com.

RESOURCES:
Surviving The Flares: An Emotional Toolkit For PANS/PANDAS Caregivers — Available wherever you listen to podcasts

Claimable https://www.getclaimable.com/ 

PANDAS Michiana https://pandasmichiana.com/ 

PANDAS Physician Network https://www.pandasppn.org/ 

PANDAS Network https://pandasnetwork.org/understanding-pandas/ 

Angela Henry, LCSW https://angelahenrylcsw.com/services/pandas-pans-ae 

ASPIRE PANS PANDAS Advocacy, Community & Support Aspire

Neuroimmune Foundation Neuroimmune Foundation | Inflammatory Brain Conditions

Mind Global Council https://www.mindglobalcouncil.com/

OCD Family Podcast https://www.ocdfamilypodcast.com/

Hornets and Hippos Workbook: https://margaretjessoppsyd.com/hornets-and-hippos/ 

Parenting Resources:

Dr. Ross Greene https://drrossgreene.com/ 

Dr. Becky Kennedy https://www.goodinside.com/about/ 

Dr. Dan Siegel https://drdansiegel.com/ 

Brene Brown (professor and researcher of shame, vulnerability, courage and empathy) https://brenebrown.com/ 

See omnystudio.com/listener for privacy information.

What happens when a simple strep infection transforms your child into someone you don't recognize?

Flying Through Fog dives deep into the hidden world of PANS/PANDAS — a condition where common infections trigger autoimmune responses that attack the brain, causing sudden personality changes, severe anxiety, and behavioral issues that leave families desperate for answers.

In our first episode, meet our hosts Krystal Vivian and Lindsey Forsyth. Lindsey shares the story of how her son, age 7 at the time, went from being an "even-keel" kid to experiencing daily meltdowns, irrational fears, and emotional breakdowns. She had no idea what to do — but then a conversation with a school nurse changed everything.

Read the full transcript of this episode at PANDASMichiana.com.

RESOURCES:
Surviving The Flares: An Emotional Toolkit For PANS/PANDAS Caregivers — Available wherever you listen to podcasts

PANDAS Michiana https://pandasmichiana.com/ 

PANDAS Physician Network https://www.pandasppn.org/ 

PANDAS Network https://pandasnetwork.org/understanding-pandas/ 

Angela Henry, LCSW https://angelahenrylcsw.com/services/pandas-pans-ae 

ASPIRE PANS PANDAS Advocacy, Community & Support Aspire

Neuroimmune Foundation Neuroimmune Foundation | Inflammatory Brain Conditions

Mind Global Council https://www.mindglobalcouncil.com/

OCD Family Podcast https://www.ocdfamilypodcast.com/

Hornets and Hippos Workbook: https://margaretjessoppsyd.com/hornets-and-hippos/ 

Parenting Resources:

Dr. Ross Greene https://drrossgreene.com/ 

Dr. Becky Kennedy https://www.goodinside.com/about/ 

Dr. Dan Siegel https://drdansiegel.com/ 

Brene Brown (professor and researcher of shame, vulnerability, courage and empathy) https://brenebrown.com/ 

See omnystudio.com/listener for privacy information.