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By Erika Vasquez
5
33 ratings
The podcast currently has 10 episodes available.
Listen to our interview with these two amazing parents. Elizabeth and Jay both Fragile X parents of their son Zach whom has Fragile X. Elizabeth is the author of Fragile X Fragile Hope .
Find her book here @ https://www.amazon.com/Fragile-Hope-Finding-Parenting-Special/dp/1932096167/ref=sr_1_1?crid=36K6HTOCW6O8&keywords=fragile+x+fragile+hope&qid=1679947242&sprefix=frgaile+x+fragile+hope%2Caps%2C142&sr=8-1
Check out Elizabeth great website @ https://elizabethgriffin.com/
https://elizabethgriffin.com/
Join us as I interview Kirsten Fowler mom of four children, and author of the book Family, Faith & Fragile X.
Kirsten tells us all about what is like to raise three children with Fragile X Syndrome.
Why she decided to write her book and share her story.
Book can be found @ https://www.amazon.com/Family-Faith-Fragile-Special-Children-ebook/dp/B09ZF19C9K
https://www.barnesandnoble.com/w/family-faith-and-fragile-x-kirsten-fowler/1141735489
Find Kirsten Fowler @https://kirstenfowler.com/
If you would like to be a guest on Fragile X Dad & Mom Podcast email @[email protected]
Our Son Emmett turned 5 years old in March and he is still consider non-verbal. Emmett probably has less than 5 words in his verbal vocabulary. We have tried several different forms of communication for Emmett. We found that using a AAC device (Augmentative and AAC are tools or technology that help people communicate if they can’t (always) rely on speech) was the most helpful for him. Having a non-verbal child is very difficult you don't know when they are hurting and sometimes we do not understand what he needs. Emmett having a form of communication has been a priority for us. With his AAC device he is able to communicate some of his basic needs. This has relief Emmett of frustrations and meltdowns. His meltdowns decreased so much after he started to learn how to use his AAC device.
More information on AAC Device meaning etc. https://www.asha.org/public/speech/disorders/aac/
The program we use for Emmett is called Proloquo2go : https://www.assistiveware.com/learn-aac
Find Us on Facebook: https://www.facebook.com/erika.amaya0815 Instagram: https://www.instagram.com/ourfragilexlife/ Youtube at OurFragileXlife: https://www.youtube.com/channel/UCLkcITGVgGUvA4cgghC49Yw?view_as=subscriber Email: [email protected] Blog: https://www.ourfragilexlife.com Intro&ClosingMusic By:SongTwo-Chord Terror - Pictures (Garage)@ clipdaddy.com
The podcast currently has 10 episodes available.