Once again... fell asleep before getting the chance to publish podcast.Β
For the individual who unsuccessfully tries playing PHD without being an oncologist, a patient nor holding a degree. Here is some educational information for you from those who have the degree. Never downplay what patients experience nor try pivoting one patient against the other. As you as well, fully knew the location of my treatments/what hospital and even asked how the construction was coming along on hospital additions. My radiation was COMPLETELY DIFFERENT, as you knew this for years.
Mine is AGGRESSIVE. You are referring to another individuals medical, oncology case who was fortunate to not have a 7 inch size tumor that had a chance to grow for years. Their type of radiation was completely different. Nor did their treatment team have to max their radiation treatments out. I was sick for years. You also knew this. Everyone knew this. It has now grown back with many complications. My medical team do their damn best to help me... to the best of their ability, through each unforseen complication.
As a patient, they don't place you under hospital oncology care nor comfort care, desperately trying to gain control over the pain, doing their best to make one comfortable, while letting you know with as much compassion for you as they possibly can, " I am sorry, but there is nothing else we can do," for no good reason nor as a mere joke. Stressing the hell out of someone who is bravely fighting for years doesn't help any patient, and rightfully so. Patients who get to the point of screaming are doing so because they are sick, and there are people who walk among us that refuse to understand and are in mental denial of those who are sick. Never do that to anyone who is sick.
No one should have to get to the point of screaming to be heard that they need help, emotional support. People scream, per trauma therapists, "To be heard, as a last ditch desperate attempt."Β To get to that point is desperation, because other forms of communication failed. Screaming is a last ditch effort. But sadly, if someone is not willing to listen to what you are saying, not caring enough to hear you. Screaming won't help either. It however, for many patients, is a great release when under the circumstances, it would do far-more-harm to bottle all that hurt in.
"As decent human beings, you should be there providing unconditional support for the patient."
Patients, all brave warriorsΒ deserve unconditional love... unconditional support. If you can't do that for a patient, then at least have some decency for yourself and respect to let the patient who is already suffering enough know, you can not, nor are willing to be there for them. Don't instead intentionally continue causing a patient further grief. I am speaking on behalf of far-too-many patients who were neglected, abandoned by those who had a moral responsibility to be of great support to the patient who is bravely on their own, unique oncology journey. Not because they asked for cancer... but because they want to live. That's why they choose experimental treatments, oncology treatments. They signed all those legal, medical forms to proceed with oncology treatments because they want to LIVE. All patients deserve to be loved, supported during and after enduring treatments... unconditionally.
A patient's journey, doesn't end after oncology treatments. For many patients, like myself... those treatments, regardless of oncologists maximizing all efforts, sadly fail. That unconditional support should be provided by loved ones for the remainder of their life. No questions asked.
Accelerated radiation refers to when the total dose is maximized, administered over a shorter period of time than usual. This involves more frequent doses, than once daily, to administer the maximum dose over a shorter period of time. This can be useful in some types of cancer that require a more aggressive treatment regimen.
Free Yourself...My Journey