Freewheelin with Carden

A Lion Ate My Legs with Paralympian Krige Schabort hosted by Carden Wyckoff

Transcript https://rb.gy/vwttls

Who is Krige Schabort?

Krige was born and raised in Cape Town, South Africa. He was an all-round sportsman excelling in athletics, rugby, squash and surfing.

In 1987 Krige lost both his legs during a military skirmish in Angola. He's a 6 time paalympian. Soon after Krige lost his legs he found his passion in wheelchair racing and transformed tragedy into victory. His first professional tour was in 1991, traveling for six months in Europe to race. In 1997 Krige and his wife relocated to the USA where Caron (Krige’s wife) works as an occupational therapist. Krige raced professionally for 27 years and is now developing his new company, Able Sport.

Paralympic Experience2012 Paralympic Games - 10th (marathon)2000 Paralympic Games - silver medal (marathon)1992 Paralympic Games - bronze medal (marathon)

Career Highlights2014 ITU Paratriathlon World ChampionTwo-time ITU Paratriathlon World Championships silver medalist (2016, 2015)2013 ITU Paratriathlon World Championships bronze medalist2015 ESPY Award winner, Best Male Athlete with a Disability2013 USA Paratriathlon National Champion2012 USA Triathlon All-AmericanBroke the IRONMAN World Championship world record in 2011 2002 IPC World Track Championships, silver medal (marathon)1998 IPC World Track Championships, gold medal (10000m)

Resources

https://able-sport.com/about/

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Think Inclusive Education with Tim Villegas hosted by Carden Wyckoff

Transcript https://rb.gy/ddanbw

Who is Tim Villegas?

Throughout his sixteen-year career as a special education teacher, Tim advocated for the inclusion of students with significant disabilities in general education classrooms and systems change in schools and districts. Tim spent thirteen years as a classroom teacher and three years as a district-level program specialist supporting students with autism spectrum disorder (ASD), emotional and behavioral needs, and intellectual disabilities. He joined MCIE in 2020 as the Director of Communications to advance the vision that neighborhood schools be the foundation of inclusive communities. He is also the Founder of Think Inclusive, now MCIE’s official blog, that serves to build a bridge between families, educators, and people with disabilities to advocate for inclusive education by publishing news, opinion, and educational articles. Tim earned a bachelor’s degree in psychology from Azusa Pacific University, and later a teaching credential for moderate to severe disabilities from California State University Fullerton. Tim’s ultimate goal is for people to learn, live, and play in an inclusive community. 

Resources

https://www.thinkinclusive.us/author/tim/

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Inclusive Playgrounds with Art Aston hosted by Carden Wyckoff

Transcript https://rb.gy/pt7aat

Who is Art Aston?

Arthur Aston is a son, brother, uncle and friend. Arthur is the founder and primary consultant of Our View. He was born in November of 1981 with a birth defect called Spina Bifida. This diagnosis would present many challenges for Arthur; impairment to his mobility being the most significant challenge.

As a result of his Spina Bifida diagnosis, Arthur uses leg braces and crutches to walk. He also uses a wheelchair at times. Although at birth, Arthur was not given the best projected outcome, now as an adult, Arthur is a living testament to know what it means to have life and to truly live.

Arthur has a passion for learning. He holds and Bachelors degree in Psychology from Stockton University and a Master’s degree in Psychological Counseling from Monmouth University.

Since October 2013, Arthur has served as Executive Director of Build Jake’s Place a New Jersey Nonprofit organization that creates accessible play experiences for individuals of all abilities (www.buildjakesplace.org). He also serves as General Manager of the Camden County New Jersey Miracle League, a baseball league for children and adults who have disabilities (www.ccnjml.org). 

Arthur currently resides in Collingswood, New Jersey. He enjoys spending time with family and friends, writing poetry, reading, attending concerts, Broadway shows, and traveling.

Resources

Facebook: @Ourview4life

Instagram: @ourview4life

Twitter: @ourview4life 

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Starting a Student Disability Club with John Scurto hosted by Carden Wyckoff

Transcript https://rb.gy/pt7aat

Who is John Scurto?

John Scurto, 23, is from Boca Raton, FL and has a form of muscular dystrophy called spinal muscular atrophy. He is currently an MBA student at the University of Florida. He also serves as a Board of Directors Member for a nonprofit organization called Laughing At My Nightmare, which provides equipment to individuals living with muscular dystrophy.

Resources

Instagram: @john_scurto 

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Intergenerational Disability Advocacy with Judy Heumann hosted by Carden Wyckoff

Transcript https://rb.gy/o4jc6o

Who is Judy Heumann?

Judith (Judy) Heumann contracted polio in 1949 in Brooklyn, NY and began to experience discrimination at five years old when she was denied the right to attend school because she was a "fire hazard." Her parents played a strong role in fighting for her rights as a child. Heumann determined that she, working in collaboration with other disabled people, had to play an increasing advocacy role as she and others experienced continuous discrimination because of their disabilities. She is now an internationally recognized leader in the disability rights community and a lifelong civil rights advocate. As a Senior Fellow at the Ford Foundation, she is currently working to help advance the inclusion of disability in the Foundation’s work and is leading a project to advance the inclusion of disabled people in the media.  

President Obama appointed Heumann as the first Special Advisor for International Disability Rights at the US Department of State, where she served from 2010-2017. Prior to this position, she served as the Director for the Department on Disability Services for the District of Columbia, where she was responsible for the Developmental Disability Administration and the Rehabilitation Services Administration.

From June 2002- 2006, Heumann served as the World Bank's first Adviser on Disability and Development. In this position, she led the World Bank's disability work to expand the Bank’s knowledge and capability to work with governments and civil society on including disability in the global conversation. From 1993 to 2001, Heumann served in the Clinton Administration as the Assistant Secretary for the Office of Special Education and Rehabilitative Services in the Department of Education. She was also responsible for the implementation of legislation at the national level for programs in special education, disability research, vocational rehabilitation and independent living, serving more than 8 million youth and adults with disabilities.

Heumann graduated from Long Island University in Brooklyn, NY in 1969 and received her Master’s in Public Health from the University of California at Berkeley in 1975. Her goal in life is to continue to advance the rights and empowerment of ALL disabled people around the world. She is also currently building an online presence through The Heumann Perspective which can found on Facebook, YouTube and Twitter.

Resources

https://www.ted.com/talks/judith_heumann_our_fight_for_disability_rights_and_why_we_re_not_done_yet?language=en

https://www.amazon.com/Being-Heumann-Unrepentant-Disability-Activist/dp/0807019291

https://twitter.com/judithheumann

https://www.youtube.com/channel/UCB7pemkbDQYezB6PeDFXTvg

https://www.facebook.com/TheHeumannPerspective/

 

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Wheelchair Accessible Van Conversion with Cara Elizabeth Yar Khan hosted by Carden Wyckoff

Transcript https://rb.gy/pcolzy

Who is Cara Yar Khan?

Cara Elizabeth Yar Khan is an entrepreneurial humanitarian and disability advocate who has had an invigorating career, spanning ten countries, so far. In 2001, Cara embarked on her international travels to work in Ecuador with the United Nations World Food Programme where she served for two years as a Fundraising and Communications Officer. Her many years with the United Nations Children's Fund (UNICEF) started in Private Sector Partnerships. When she also took on the role of disability focal point during the Earthquake Emergency Recovery Operation in Haiti it launched a successful public speaking career. Cara has a masters degree from Johns Hopkins University, School of Advanced International Studies which she pursued in Italy. She is gifted in languages, fluent in Spanish, conversational in basic Mandarin Chinese and has working knowledge of French and Portuguese. At the age of 30, Cara was diagnosed with a rare muscle wasting disease, called HIBM that leads to quadriplegia. Since then she has used her platform to break glass ceilings. As part of her advocacy work, she is also producing a documentary film with the legendary Sam Pollard and is writing her first memoir with Carol Mann Agency. Today Cara lives in Smyrna, GA with her husband, U.S. Army SSG. (Ret.) John Masters and Southern cat, Bubba and kitten Moon.

Resources

https://www.carayarkhan.com/ https://www.hibmthefilm.com/ https://www.linkedin.com/in/cara-e-yar-khan/ https://www.facebook.com/cara.e.yarkhan/ https://www.instagram.com/cara_yarkhan/

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Black Disabled Lives Matter with Founder Jermaine Greaves hosted by Carden Wyckoff

Transcript https://rb.gy/pcolzy

Who is Jermaine Greaves?

Jermaine Greaves is a creative powerhouse with skills in Event Planning, Marketing, and Artist Manager. He is the founder of the movement Black Disabled Lives Matter. He has done volunteer work for Afropunk and Brooklyn Music Festival as an Event Coordinator. From 2013 to 2017 years he has been organizing a team of 10 people to help promote the festival. Jermaine has also done Instore-Festivals, several independent artists release parties and also had hands-on in picking the talent for the Brooklyn Music Festival. His duties consist of selecting and looking through artist submissions, organizing the lineup, as well as setting time slots for the artists. He has also promoted several different clubs in New York City i.e. (Lit Lounge, Electric Warehouse, Webster Hall and multiple art galleries). Jermaine has also partnered with a clothing line brand called, "Not Like The Other Kids"  (www.notliketheotherkids.com); where we give back a portion of the proceeds to kids with disabilities. He is also experienced in putting together sponsorship packages and have several di fferent sponsors and relationships with people in the industry as well as sponsors. I have been featured on good morning America nbc4 telemundo and onmogul buzzfeed and other social media below is the dance video that is still going viral the video has amassed 40 million views.

Resources

https://jermainegreaves.com/

@blackdisabledlivesmatters

@jermainegreaves

https://notliketheotherkids.com

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Hey it's me, your host Carden interviewed by Allison Hare of Culture Changers Podcast

Who is Carden Wyckoff?

Carden Wyckoff is an Atlanta native, disability advocate, wheelchair roller, change maker and adventure seeker. She is known for bringing strategy to organizations and she does this most frequently by being able to come up with innovative ideas which leads to creating efficiencies. She currently serves on the Board of Directors for the FSHD Society and works in the city for a Fortune 500 company. Local advocacy orgs she is aligned with include Atlanta Bike Coallition, iAccess Life, Illimitable, MARTAarmy and PEDS.

Diagnosed at the age of 8, Carden has a form of muscular dystrophy (FSHD) which is a progressive muscle wasting disease. Instead of letting the disability define her, she instead transforms the community to be a more accessible place. Her strengths are ideation, strategic thinking, activation, relationship building and learning. Carden is a force of nature! When Carden has an idea, she will turn it into reality. 

During her free time, Carden works day in and day out to make the world a more accessible place and break down barriers for individuals with disabilities. She contacts local business management to provide feedback on accessibility and has turned into making the Atlanta community more accessible. She provides awareness for the able bodied community to be supportive allies. She documents traveling with a disability to empower those who are hesitant to face the unknown. You may have seen her family piggyback her on the Appalachian Trail, advocated to make the University of Georgia’s Arch wheelchair accessible at graduation, or her brother competing on American Ninja Warrior for her disease. Her most recent initiative has been launching an accessibility podcast called “Free wheelin with Carden” to share stories of people with various disabilities and educate the public on accessibility related topics. Together we can build a more empathetic community and break down barriers.

What makes her disability unique is that she has experienced a variety of mobility challenges throughout her life. From being able to run and play competitive sports then only walking then avoiding stairs and long distances then using assistive braces to walk then using a scooter for mobility then transitioning full time to a power wheelchair. She sees the world thru a wide lens and can relate to a vast number of disabilities.

She’s always thinking what can I do to make the world a better place. While she operates at 100mph and always is go go go, she makes forming deep relationships with her community a priority. She is compassionate, trustworthy and quirky, yet calm.

 

Resources

Allison Hare https://www.allisonhare.com/

@allison__hare

@thepodcastersjourney

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Type 1 Diabetes with Tom Lennon hosted by Carden Wyckoff

Transcript https://rb.gy/ist1oh

Who is Tom Lennon?

Since being diagnosed with Type 1 Diabetes at the age of 35, creator and Personal Trainer Tom Lennon decided that he wasn't going to let this devastating news  keep him from reaching his fitness goals. Through his t-shirt company, Tom wanted to send the message that you can still do amazing things even if you have Type 1 (or Type 2) Diabetes. Working in a local children's hospital already, Tom would see children come in on a daily basis that were newly diagnosed with the disease or who were already living with it. He then decided that he wanted to donate a portion of his t-shirt proceeds to the Children's Diabetes Foundation in hopes of making a difference.

Resources

Type1lifting Instagram, Twitter, Tiktok, and Facebook

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Tourette Syndrome Awareness with Britney Wolf hosted by Carden Wyckoff

Transcript https://rb.gy/psoy5q

Who is Britney Wolf?

Britney Wolf is a 31 year old woman living with Tourette Syndrome. She has had a mission of spreading education and awareness about the very misunderstood disorder ever since she was a child and has since found more ways to amplify her voice and her fight over the years. Although some days are harder than others, she continues to push forward with a smile on her face and stay positive.

Resources

Facebook: Facebook.com/oneticatatimeYouTube: Youtube.com/britneywolfInstagram: _britneywolfWebsite: britneywolfspeaks.com

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Use referral code 'Carden' when downloading iAccessLife mobile app.