From Stares to Support: Navigating Public Reactions and Guiding Loved Ones in Caring for Your Child

What do you do when people stare at your child with a rare disease? How can you turn that awkward moment into an opportunity for connection?

If you've ever felt uncomfortable or angry when strangers or even loved ones don’t know how to interact with your child, this episode will help you shift your mindset. By assuming good intentions and leading with compassion, you can turn difficult moments into chances to educate and connect.

1. Learn how to handle public interactions when people stare at your child.

2. Discover ways to guide friends and family to better support your child's unique needs.

3. Find out how taking the lead in these situations fosters deeper understanding and inclusion for your child.

Hit play now and learn how to create meaningful connections with both strangers and loved ones when navigating life with a child who has a rare disease.