Welcome to From Care to Cure, a podcast from the Massachusetts General Hospital Frontotemporal Disorders Unit.  Our fifth episode of season 2 presents a discussion between our host, Katie Brandt, the Director of Caregiver Support Services and Public Relations at the MGH FTD Unit, and Carrie Milliard, Director of the FTD Disorders Registry, about the origins of the FTD Disorders Registry, the importance of registries to research in rare diseases and how to participate in the FTD Disorders Registry.

You can learn more about or enroll in the FTD Disorders Registry at https://ftdregistry.org/.

The MGH FTD Unit clinical research program is committed to providing the highest quality of care while we work tirelessly for a cure for FTD, atypical and young-onset forms of Alzheimer’s Disease and related neurological disorders.

You can learn more about the MGH FTD Unit at www.FTDBoston.org.

We would like to thank Bernie Metzger for our beautiful music, an excerpt from Bernie’s composition Ramblings An FTD Journey, inspired by his wife Karen Zander’s journey with FTD.

Amy Almeida is our producer.

From Care to Cure is made possible by generous contributions from donors to the MGH FTD Unit.  If you would like to supportour work, visit www.FTDBoston.org/Donate. 

Please follow, like and share From Care to Cure so that we can raise awareness of the impact of FTD on families living with these and related conditions.