From Care to Cure

Welcome to From Care to Cure, a podcast from the Massachusetts General Hospital Frontotemporal Disorders Unit.  Our seventh episode of season 2 presents a discussion between our host, Katie Brandt, the Director of Caregiver Support Services and Public Relations at the MGH FTD Unit, and Ann Schoonover, HelpLine Specialist at the Association for Frontotemporal Degeneration, about everything the Association for Frontotemporal Degeneration offers to people living with FTD and their families.

AFTD’s website is TheAFTD.org.

Learn more about AFTD’s Comstock Grant program at https://www.theaftd.org/living-with-ftd/resources/comstock-grants/.

Find a support group near you at https://www.theaftd.org/find-support/.

The MGH FTD Unit clinical research program is committed to providing the highest quality of care while we work tirelessly for a cure for FTD, atypical and young-onset forms of Alzheimer’s Disease and related neurological disorders. You can learn more about the MGH FTD Unit at www.FTDBoston.org.

We would like to thank Bernie Metzger for our beautiful music, an excerpt from Bernie’s composition Ramblings An FTD Journey, inspired by his wife Karen Zander’s journey with FTD.

Amy Almeida is our producer.

From Care to Cure is made possible by generous contributions from donors to the MGH FTD Unit. If you would like to support our work, visit www.FTDBoston.org/Donate. 

Please follow, like and share From Care to Cure so that we can raise awareness of the impact of FTD on families living with these and related conditions.

Welcome to From Care to Cure, a podcast from the Massachusetts General Hospital Frontotemporal Disorders Unit.  Our sixth episode of season 2 presents a discussion between our host, Katie Brandt, the Director of Caregiver Support Services and Public Relations at the MGH FTD Unit, and attorney Pam Greenfield, Partner and Co-Founder at Birchgrove Law Collaborative, about legal planning after a diagnosis of FTD, Alzheimer’s disease and related conditions, what documents families should put in place and the gift such advanced planning is to families living alongside these conditions.

You can find an elder law attorney at the National Academy of Elder Law Attorneys website: NAELA.org.

The MGH FTD Unit clinical research program is committed to providing the highest quality of care while we work tirelessly for a cure for FTD, atypical and young-onset forms of Alzheimer’s Disease and related neurological disorders. You can learn more about the MGH FTD Unit at www.FTDBoston.org.

We would like to thank Bernie Metzger for our beautiful music, an excerpt from Bernie’s composition Ramblings An FTD Journey, inspired by his wife Karen Zander’s journey with FTD.

Amy Almeida is our producer.

From Care to Cure is made possible by generous contributions from donors to the MGH FTD Unit.  If you would like to support our work, visit www.FTDBoston.org/Donate. 

Please follow, like and share From Care to Cure so that we can raise awareness of the impact of FTD on families living with these and related conditions.

Welcome to From Care to Cure, a podcast from the Massachusetts General Hospital Frontotemporal Disorders Unit.  Our fifth episode of season 2 presents a discussion between our host, Katie Brandt, the Director of Caregiver Support Services and Public Relations at the MGH FTD Unit, and Carrie Milliard, Director of the FTD Disorders Registry, about the origins of the FTD Disorders Registry, the importance of registries to research in rare diseases and how to participate in the FTD Disorders Registry.

You can learn more about or enroll in the FTD Disorders Registry at https://ftdregistry.org/.

The MGH FTD Unit clinical research program is committed to providing the highest quality of care while we work tirelessly for a cure for FTD, atypical and young-onset forms of Alzheimer’s Disease and related neurological disorders.

You can learn more about the MGH FTD Unit at www.FTDBoston.org.

We would like to thank Bernie Metzger for our beautiful music, an excerpt from Bernie’s composition Ramblings An FTD Journey, inspired by his wife Karen Zander’s journey with FTD.

Amy Almeida is our producer.

From Care to Cure is made possible by generous contributions from donors to the MGH FTD Unit.  If you would like to supportour work, visit www.FTDBoston.org/Donate. 

Please follow, like and share From Care to Cure so that we can raise awareness of the impact of FTD on families living with these and related conditions.

Welcome to From Care to Cure, a podcast from the Massachusetts General Hospital Frontotemporal Disorders Unit.  Our fourth episode of season 2 presents a discussion between our host, Katie Brandt, the Director of Caregiver Support Services and Public Relations at the MGH FTD Unit, and Matthew Walsh, CNP, a nurse practitioner with the MGH FTD Unit, about the role that nurse practitioners can play on an FTD care team, the importance of advanced care discussions in FTD and related conditions and what a holistic view of care can look like.

You can watch the Care Plan Trifecta webinar series, a framework for care planning incorporating the medical, home and advocacy communities, on the MGH FTD Unit’s YouTube channel: https://www.youtube.com/watch?v=lyOht4481y8&list=PLVKGfYzi1DDoAK9q4oQizYhLizn1CX2yo&pp=gAQB.

Learn more about MOLST/POLST forms at the National POLST Collaborative: https://polst.org/for-patients/.

The MGH FTD Unit clinical research program is committed to providing the highest quality of care while we work tirelessly for a cure for FTD, atypical and young-onset forms of Alzheimer’s Disease and related neurological disorders. You can learn more about the MGH FTD Unit at www.FTDBoston.org.

We would like to thank Bernie Metzger for our beautiful music, an excerpt from Bernie’s composition Ramblings An FTD Journey, inspired by his wife Karen Zander’s journey with FTD.

Amy Almeida is our producer.

From Care to Cure is made possible by generous contributions from donors to the MGH FTD Unit.  If you would like to support our work, visit www.FTDBoston.org/Donate. 

Please follow, like and share From Care to Cure so that we can raise awareness, funds and hope that the cure of tomorrow is not so far from the care of today.

Welcome to From Care to Cure, a podcast from theMassachusetts General Hospital Frontotemporal Disorders Unit.  Our third episode of season 2 presents a discussion between our host, Katie Brandt, the Director of Caregiver Support Services and Public Relations at the MGH FTD Unit, and Dr. Mark Eldaief, a board-certified neurologist and psychiatrist with the MGH FTD Unit, about the role that psychiatrists can play on an FTD care team, the importance ofpsychiatry in managing symptoms of FTD and related conditions and what families can expect from a geri-psych admission.

The MGH FTD Unit clinical research program is committed toproviding the highest quality of care while we work tirelessly for a cure for FTD, atypical and young-onset forms of Alzheimer’s Disease and related neurological disorders. You can learn more about the MGH FTD Unit at www.FTDBoston.org.

We would like to thank Bernie Metzger for our beautiful music, an excerpt from Bernie’s composition Ramblings An FTD Journey, inspired by his wife Karen Zander’s journey with FTD.

Amy Almeida is our producer.

From Care to Cure is made possible by generous contributions from donors to the MGH FTD Unit.  If you would like to support our work, visit www.FTDBoston.org/Donate. 

Please follow, like and share From Care to Cure so that we can raise awareness of the impact of FTD on families living with these and related conditions.

Welcome to From Care to Cure, a podcast from the Massachusetts General Hospital Frontotemporal Disorders Unit.  Our second episode of season 2 showcases a conversation between our host, Katie Brandt, the Director of Caregiver Support Services and Public Relations at the MGH FTD Unit, and Dr. Deepti Putcha, a neuropsychologist and the Director of the MGH FTD Unit’s Posterior Cortical Atrophy Program, about the role that neuropsychologists can play on an FTD care team and the importance of neuropsychological testing in diagnosis, understanding of disease progression and research.

The MGH FTD Unit clinical research program is committed toproviding the highest quality of care while we work tirelessly for a cure for FTD, atypical and young-onset forms of Alzheimer’s Disease and related neurological disorders. You can learn more about the MGH FTD Unit at www.FTDBoston.org.

We would like to thank Bernie Metzger for our beautifulmusic, an excerpt from Bernie’s composition Ramblings An FTD Journey, inspired by his wife Karen Zander’s journey with FTD.

Amy Almeida is our producer.

From Care to Cure is made possible by generous contributions from donors to the MGH FTD Unit. If you would like to support our work, visit www.FTDBoston.org/Donate. 

Please follow, like and share From Care to Cure so that we can raise awareness about the impact of FTD for families living with this condition.

Welcome to From Care to Cure, a podcast from the Massachusetts General Hospital Frontotemporal Disorders Unit.  Our first episode of season 2 features a conversation between our host, Katie Brandt, the Director of Caregiver Support Services and Public Relations at the MGH FTD Unit, and Nneka Watson, a staff speech language pathologist within the Unit, about the role that speech language pathologists can play on an FTD care team.

Learn more about primary progressive aphasia (PPA) by listening to From Care to Cure, season 1 episode 7 titled “Managing Symptoms: Communication.”

Learn more about the MGH FTD Unit’s PPA program at https://ftdboston.org/diagnosis/primary-progressive-aphasia/.

Learn more about AFTD’s resources for people living with PPAand FTD at https://www.theaftd.org/living-with-ftd/support-for-people-with-ftd/.

Learn more about aphasia from the National AphasiaAssociation at https://aphasia.org/.

The MGH FTD Unit clinical research program is committed toproviding the highest quality of care while we work tirelessly for a cure for FTD, atypical and young-onset forms of Alzheimer’s Disease and related neurological disorders. You can learn more about the MGH FTD Unit at ww.FTDBoston.org.

Amy Almeida is our producer.

From Care to Cure is made possible by generous contributions from donors to the MGH FTD Unit.  If you would like to support our work, visit www.FTDBoston.org/Donate. 

Please follow, like and share From Care to Cure so that we can raise awareness about the impact of FTD for families.

The second season of From Care to Cure puts a spotlight on the FTD care team beyond the diagnosis.  We will explore the different roles for each member of a care team and how people living with a diagnosis of FTD or a related neurological disorder and their families can benefit from a comprehensive care team within clinical settings and in the community.  Season 2 will feature conversations with members of the MGH FTD Unit’s clinical research program and community experts.

The MGH FTD Unit is committed to providing the highestquality of care while we work tirelessly for a cure for FTD, atypical and young-onset forms of Alzheimer’s Disease and related neurological disorders. You can learn more about the MGH FTD Unit at www.FTDBoston.org. From Care to Cure is made possible by generous contributions from donors to the MGH FTD Unit.  If you would like to support our work, visit www.FTDBoston.org/Donate.

Welcome to From Care to Cure, a podcast from theMassachusetts General Hospital Frontotemporal Disorders Unit.  This episode features a conversation betweenDr. Brad Dickerson, Director of the MGH FTD Unit, and Katie Brandt, the Director of Caregiver Support Services and Public Relations in the Unit, discussing the first steps families should take after a diagnosis of FTD or a related condition, how to find appropriate support and what to expect at a support group.

Find a local AFTD-affiliated caregiver support group at https://www.theaftd.org/living-with-ftd/aftd-support-groups/.

Find your local chapter of the Alzheimer’s Association at https://www.alz.org/chapter-search.  The Alzheimer’s Association 24/7 help line is available at 800-272-3900.

Find information about dementia from the National Instituteon Aging at https://www.nia.nih.gov/health/alzheimers-and-dementia.

Learn more about the programs offered by Lorenzo’s House for families living with young-onset dementia at https://lorenzoshouse.org/our-programs/.

Learn about programs for people and families living with progressive supranuclear palsy (PSP) or corticobasal degeneration at https://www.psp.org/.

Learn about programs for people and families living with Lewy body dementia at https://www.lbda.org/.

Learn about caregiver support and respite programs fromHilarity for Charity at https://wearehfc.org/caregivers/.

Learn about the support programs available from the NationalAphasia Association for people living with primary progressive aphasia (PPA) and their care partners at https://aphasia.org/primary-progressive-aphasia/.

The MGH FTD Unit clinical research program is committed toproviding the highest quality of care while we work tirelessly for a cure for FTD, atypical and young-onset forms of Alzheimer’s Disease and related neurological disorders. You can learn more about the MGH FTD Unit at www.FTDBoston.org.

We would like to thank Bernie Metzger for our beautiful music, an excerpt from Bernie’s composition Ramblings An FTD Journey, inspired by his wife Karen Zander’s journey with FTD.

Amy Almeida is our producer.

From Care to Cure is made possible by generous contributions from donors to the MGH FTD Unit.  If you would like to support our work, visit www.FTDBoston.org/Donate.  Please follow, like and share From Care to Cure so that we can raise awareness, funds and hope that the cure of tomorrow is not so far from the care of today.

Welcome to From Care to Cure, a podcast from the Massachusetts General Hospital Frontotemporal Disorders Unit.  This episode features a conversation between Dr. Brad Dickerson, Director of the MGH FTD Unit, and Katie Brandt, theDirector of Caregiver Support Services and Public Relations in the Unit, discussing how to live a life alongside FTD and related conditions, finding the things that can give life purpose (including participating in research, and how addressing modifiable risk factors can impact life for people living with FTD and their care partners.

You can find your local Area Agency on Aging by enteringyour location at https://eldercare.acl.gov/home.

You can find your local chapter of the Alzheimer’s Association at https://www.alz.org/chapter-search.  The Alzheimer’s Association 24/7 help line is available at 800-272-3900.

You can watch Katie Brandt’s keynote address at the Association for Frontotemporal Degeneration’s 2025 Education Conference at https://www.youtube.com/watch?v=yXlXGpZY11E.

You can learn about the Lancet Commission’s 2024 report on dementia prevention, intervention and care at https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(24)01296-0/abstract.

You can learn about the US POINTER study at https://www.alz.org/us-pointer/study-results.asp.

You can learn about participating in FTD research throughthe FTD Disorders Registry (https://ftdregistry.org/).

The MGH FTD Unit clinical research program is committed toproviding the highest quality of care while we work tirelessly for a cure for FTD, atypical and young-onset forms of Alzheimer’s Disease and related neurological disorders. You can learn more about the MGH FTD Unit at www.FTDBoston.org.

We would like to thank Bernie Metzger for our beautiful music, an excerpt from Bernie’s composition Ramblings An FTD Journey, inspired by his wife Karen Zander’s journey with FTD.

Amy Almeida is our producer.

From Care to Cure is made possible by generous contributions from donors to the MGH FTD Unit.  If you would like to support our work, visit www.FTDBoston.org/Donate. 

Please follow, like and share From Care to Cure so that we can raise awareness, funds and hope that the cure of tomorrow is not so far from the care of today.