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Global Genes - Allies in Rare Diseases
You're not alone! When you’re here, you’re part of a globally connected community committed to eliminating the challenges of rare diseases. Global Genes is committed to providing information, resources, and connections to all communities affected by rare diseases.
Global Genes is a 501(c)(3) non-profit organization dedicated to eliminating the burdens and challenges of rare diseases for patients and families globally.
The RARE Drug Development Symposium, hosted by Global Genes and the Orphan Disease Center of the University of Pennsylvania, equips advocates with the knowledge, skills, and connections they need to advance therapy development for their communities. This year’s theme is Innovative Ideas from Next Generation Change-Makers.
Rare Drug Development Symposium (4/29/2024 - 5/1/2024) - https://globalgenes.org/event/rare-disease-drug-development/
Rarely Told Stories - https://globalgenes.org/resources/#/types/story
Rarecast (Podcast) - https://www.levinemediagroup.com/rarecast/
Disorder: Rare Disease Film Festival - https://www.rarediseasefilmfestival.com/
EveryLife Foundation for Rare Diseases - https://everylifefoundation.org/
"The Mighty" (movie) - https://www.imdb.com/title/tt0119670/
Connect to learn more:
Web: https://globalgenes.org/
Phone: (+1) 949-248-RARE (7273)
FB: @GlobalGenes
X: @GlobalGenes
IG: @globalgenes
Episode Transcript: https://docs.google.com/document/d/1tsUg4k-B1GpEfFfk9JCdQtTE9MKTkYCD/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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By ABCs of Disability Planning
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You're not alone! When you’re here, you’re part of a globally connected community committed to eliminating the challenges of rare diseases. Global Genes is committed to providing information, resources, and connections to all communities affected by rare diseases.
Global Genes is a 501(c)(3) non-profit organization dedicated to eliminating the burdens and challenges of rare diseases for patients and families globally.
The RARE Drug Development Symposium, hosted by Global Genes and the Orphan Disease Center of the University of Pennsylvania, equips advocates with the knowledge, skills, and connections they need to advance therapy development for their communities. This year’s theme is Innovative Ideas from Next Generation Change-Makers.
Rare Drug Development Symposium (4/29/2024 - 5/1/2024) - https://globalgenes.org/event/rare-disease-drug-development/
Rarely Told Stories - https://globalgenes.org/resources/#/types/story
Rarecast (Podcast) - https://www.levinemediagroup.com/rarecast/
Disorder: Rare Disease Film Festival - https://www.rarediseasefilmfestival.com/
EveryLife Foundation for Rare Diseases - https://everylifefoundation.org/
"The Mighty" (movie) - https://www.imdb.com/title/tt0119670/
Connect to learn more:
Web: https://globalgenes.org/
Phone: (+1) 949-248-RARE (7273)
FB: @GlobalGenes
X: @GlobalGenes
IG: @globalgenes
Episode Transcript: https://docs.google.com/document/d/1tsUg4k-B1GpEfFfk9JCdQtTE9MKTkYCD/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator