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When faced with new information, it's important to consider the source. Stop for a moment and examine whether the material is coming from someone with YOUR best interests at heart. The Gluten Free RN has just returned from the Colombia University Celiac Disease Conference, and she is breaking down the information presented to determine what's useful—and what might be tainted by the pharmaceutical or food industry agenda.
Nadine begins with a workshop led by General Mills that offered some questionable information about how grains are processed at their factories and a talk led by University of Chicago faculty on the topic of a gluten challenge. She also speaks to the differences between celiac management in the US and countries with universal healthcare like Italy and Australia.
Nadine covers new testing that detects gluten exposure in stool or urine and what that reveals about the systemic nature of gluten damage as well as her take on practitioners who perpetuate the myth that grains are necessary and nutritious. Listen in for the Gluten Free RN's insight around pharmaceutical treatments for celiac disease and the danger in volunteering for studies backed by drug companies.
What's Discussed:The two programs available at Colombia's 2018 conference
How celiac disease is managed in Italy
Nadine's frustration with the General Mills presentation
Nadine's take on gluten-free Cheerios
Nadine's confusion around Dr. Bana Jabri's comments
Why the biopsy for celiac disease is problematic
Nadine's insight on a gluten-free challenge
The systemic nature of gluten damage
Nadine's stance on pharmaceutical treatments for celiac disease
The myth that grains are necessary and nutritious
Why it's important to understand the source of your information
Australia's requirements for gluten-free food
Celiac Symposium Program
Connect with Nadine:Contact via Email
'Your Skin on Gluten' on YouTube
Melodies of the Danube Gluten-Free Cruise with Nadine
Books by Nadine:Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Heal
To pierogi or not to pierogi…
If you have celiac disease, there is no question that you should avoid anything made with flour or grains, no matter how delicious the dish may be. Although the Gluten Free RN has fond memories of her Polish grandmothers making traditional pastries, she contends that you don't have to eat customary Polish food to celebrate your Polish heritage.
In preparation for her upcoming trip to Warsaw in July, Nadine is taking a closer look at celiac disease in Poland. She discusses a 2009 study assessing the prevalence of celiac disease in Polish children, highlighting the asymptomatic and oligosymptomatic nature of the disease and explaining her own false negative test. Listen in for the Gluten Free RN's insight around preparing for a trip to Poland, including research on the available gluten-free food and adult beverages!
What's Discussed:Why Nadine is concerned about her upcoming trip to Poland
Nadine's Polish heritage
The 2009 study of celiac disease in Poland
Nadine's genetic predisposition for celiac disease
How Nadine is preparing for travel in Poland
The prevalence of celiac disease in Poland
The gluten-free alcoholic beverages available in Poland
Nadine's caution against eating bread in Europe
The overlap between autoimmune and celiac disease
Nadine's suggested diet for celiac patients
NIH Consensus Development Conference on Celiac Disease
'Screening for Celiac Disease in Poland' in the Medical Science Monitor
Gluten-Free Globetrotter Blog on Poland
Gluten-Free Travel in Poland—Coeliac Youth of Europe
Poland Travel Guide—Coeliac UK
'Graves' Disease, Celiac Disease and Liver Function Abnormalities in a Patient—Clinical Manifestation and Diagnostic Difficulties' in ACTA Biochimica Polonica
'Neuropsychiatric Symptoms and Celiac Disease' in Neuropsychiatric Disease and Treatment
'Evaluation of HLA-DQ2/DQ8 Genotype in Patients with Celiac Disease Hospitalised in 2012 at the Department of Paediatrics' in Przeglad Gastroenterologiczny
For Visitors with Coeliac Disease—Polskie Stowarzyszenie Osob z Celiakia i na Diecie Bezglutenowej
Connect with Nadine:Contact via Email
'Your Skin on Gluten' on YouTube
Melodies of the Danube Gluten-Free Cruise with Nadine
Books by Nadine:Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism
The Irish are known for being lucky… But does that luck hold out when it comes to celiac disease?
The prevalence of celiac disease among the Iris is 1:100, about the same as the rest of the world. And if you are a redhead of Irish descent, there is a good chance that you are an HLA-DQ2 or HLA-DQ8 gene carrier.
Today, the Gluten Free RN explores Irish ancestry and celiac disease, discussing how the Potato Famine led to a change in diet for much of the surviving population. She walks us through a paper published by Irish College of General Practitioners explaining the clinical presentations and complications of celiac disease.
Nadine shares her experience running the Dublin marathon and the health consequences she suffered after touring the Guinness brewery. Listen in to understand the work of the Coeliac Society of Ireland and learn about the trends in celiac disease among the Irish.
What's Discussed:Why red hair is associated with celiac disease
The prevalence of celiac disease in Irish Setters
The Irish Potato Famine
The myth that celiac disease is more prevalent in Europe than the US
The myth that women are more susceptible to celiac disease
The Irish College of General Practitioners paper on celiac disease
The prevalence of celiac disease in Ireland
The appropriate testing for celiac disease and NCGS
Nadine's experience running the Dublin marathon in 1998
The information provided by the Coeliac Society of Ireland
'Gluten-Sensitive Enteropathy in a Family of Irish Setters' in The Canadian Veterinary Journal
'Diagnosis and Management of Adult Coeliac Disease' in ICGP
Coeliac Society of Ireland
'Prevalence and Incidence of Celiac Disease in Edinburgh and the Lothian Region of Scotland' in Gastroenterology
'Prevalence and Diagnosis' by the Coeliac Society of Ireland
'Coeliac Disease in Europe' in Alimentary Pharmacology & Therapeutics
'Escalation in the Amount of Adults Diagnosed with Coeliac Disease' in Lifestyle Health
'Gluten-Free Foods' by the Food Safety Authority of Ireland
'How Irish Diets of the Past Affect the Present' in The Irish Times
'Changes in Presentation of Celiac Disease in Ireland from the 1960s to 2015' in Clinical Gastroenterology and Hepatology
'Coeliac Disease: A Personal Perspective' in Irish Health
'Coeliac Disease: More Common Than You Think in Irish Health
'Pathology and Management of Coeliac Disease' by the Dublin Academic Medical Centre & UCD
Connect with Nadine:Contact via Email
'Your Skin on Gluten' on YouTube
Melodies of the Danube Gluten-Free Cruise with Nadine
Books by Nadine:Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism
It goes without saying that anyone who serves in the military needs to be healthy and strong—and that military leaders have an obligation to keep enlisted servicemen and women as safe and healthy as possible. So, it makes sense that people with food allergies (including celiac patients) are disqualified from military service, but it is less clear why celiac testing is not a part of the medical exam to qualify for enlistment.
Today, the Gluten Free RN addresses the issue of celiac disease in the military. She explains the challenges of preparing gluten-free food in a mess hall setting and describes the consequences for an active duty soldier who is found to have celiac disease.
Nadine shares a research study exploring celiac trends among active duty military as well as a case study around veterans and celiac disease. Listen in for insight on what's behind the increased prevalence of celiac disease among military personnel and the confirmed association between celiac disease and other complex health issues.
What's Discussed:Why celiac patients are disqualified from enlisting in any branch of service
What happens to military personnel who are found to have celiac disease
The US military policy around food allergies and intolerances
Countries that allow celiac patients to serve
The Mayo Clinic study of celiac trends among active duty military
The challenge of preparing gluten-free food in a military setting
A case study involving military veterans and celiac disease
The benefits of a gluten-free diet
Nadine's argument for celiac testing prior to enlistment
Resources:
Military Standards of Medical Fitness
'The Incidence and Risk of Celiac Disease in a Healthy US Adult Population' in the American Journal of Gastroenterology
'Celiac Sprue Among US Military Veterans: Associated Disorders and Clinical Manifestations' in Digestive Diseases and Sciences
'Gluten-Free Soldier in Afghanistan' in Gluten-Free Living
'Medical Mix-Up Sidelines Army Sergeant's Career' in Military Times
Celiac Disease-Related Veterans Affairs Case
Connect with Nadine:Contact via Email
'Your Skin on Gluten' on YouTube
Melodies of the Danube Gluten-Free Cruise with Nadine
Books by Nadine:Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism
We get vaccinated to protect ourselves, to gain an immunity to a particular disease. But in the case of hepatitis B, celiac patients may come to find out that we are NOT immune—despite having done the right thing in getting a hepatitis B vaccination.
Today, the Gluten Free RN is walking us through the latest research around vaccination and celiac disease. She explores the fact that celiac patients are more likely to be non-responsive to HBV than the general population, explaining the fundamentals of hepatitis B and the two main theories as to why the vaccine doesn't work for some celiac patients.
Nadine shares her take on immunizations, explaining why she is a proponent of an alternate vaccination schedule for infants who may be immunocompromised. Listen in and learn how to determine whether you are truly immune to hepatitis B and protect yourself from potentially life-threatening disease!
What's Discussed:The basics of hepatitis B (HBV)
The prevalence of hepatitis B
The 2013 Italian study around celiac disease and the hepatitis B vaccine
Nadine's experience with vaccination as a child
Nadine's take on vaccination
The conclusion of a 2017 Italian study
The value of a hepatitis B titer
'Hepatitis B Vaccine in Celiac Disease: Yesterday, Today and Tomorrow in the World Journal of Gastroenterology
'Vaccinations in Celiac Disease' in the Journal of Pediatric Gastroenterology and Nutrition
'Immune Response to Vaccines in Children with Celiac Disease' in the World Journal of Gastroenterology
'Immune Response to Hepatitis B Vaccine in Patients with Celiac Disease: A Systematic Review and Met-Analysis' in Human Vaccines and Immunotherapeutics
'Early Vaccinations are Not Risk Factors for Celiac Disease' in Pediatrics
'Gluten Intake Interferes with the Humoral Immune Response to Recombinant Hepatitis B Vaccine in Patients with Celiac Disease' in Pediatrics
'Effect of Pentavac and Measles-Mumps-Rubella (MMR) Vaccination on the Intestine' in Gut
'Normal of Defective Immune Response to Hepatitis B Vaccine in Patients with Diabetes and Celiac Disease' in Human Vaccines and Immunotherapeutics
Connect with Nadine:Contact via Email
'Your Skin on Gluten' on YouTube
Melodies of the Danube Gluten-Free Cruise with Nadine
Books by Nadine:Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism
When the Gluten Free RN went on a gluten-free diet 11 years ago, her thyroid settled down and the associated symptoms and disorders—Graves' disease, weight gain and hair loss—resolved.
But when Nadine was inadvertently hit with gluten two years ago, several of those symptoms returned, along with a few new ones. She was losing hair and gaining water weight again. On top of that, her sinuses were congested. She developed asthma, a rash on her lower right leg and a scary case of pulmonary edema (excess fluid in the lungs).
Hindsight being 20/20, Nadine realizes that her recent diagnosis of hypothyroidism is associated with that accidental gluten ingestion. Further study made it clear that there is a potential connection between her thyroid problems and pulmonary edema, as the leaky gut that comes with celiac disease can cause fluid shifts into body tissues.
Today the Gluten Free RN explores the links among celiac disease, thyroid disorders and pulmonary edema. She explains the function of the endocrine system, the symptoms associated with hypothyroidism, and the diet she recommends for patients with thyroid issues. Listen in for Nadine's insight around how gluten affects the thyroid gland and why the resulting low sodium levels might trigger edema in celiac patients.
What's Discussed:The function of the endocrine system
The connection between celiac disease and thyroid disorders
Nadine's symptoms of hypothyroidism
How damp rash lotion resolved Nadine's symptoms
Nadine's thyroid-stimulating hormone (TSH) levels
The relationship between thyroid issues and edema
The research around thyroid disorders and celiac disease in Current Allergy and Asthma Reports
The diet Nadine recommends for celiac patients with potential thyroid issues
Why patients with unexplained pulmonary edema should be tested for celiac disease AND thyroid disorders
The symptoms associated with hypothyroidism
'Pregnancy Complicated with Pulmonary Edema Due to Hyperthyroidism' in the Journal of the Chinese Medical Association
'Sleep Apnea, Hypothyroidism and Pulmonary Edema' in CHEST Journal Letters to the Editor
'Thyroid and Fluid Retention' on the Wilson's Syndrome Site
'Acute Pulmonary Edema as a First Manifestation of Hyperthyroidism in a Pregnant Woman' in Revista Medica de Chile
'Hypothyroidism and Non-Cardiogenic Pulmonary Edema: Are We Missing Something Here?' in Endocrinology, Diabetes & Metabolism Case Reports
'Celiac Disease and Autoimmune Thyroid Disease' in Clinical Medicine & Research
'Celiac Disease and Autoimmunity: Review and Controversies' in Current Allergy and Asthma Reports
'An Unusual Cause of Flash Pulmonary Oedema' in BMJ Case Reports
'Challenges in the Management of a Patient with Myxoedema Coma in Ghana: A Case Report' in Ghana Medical Journal
'Hyponatremia and the Thyroid: Causality or Association?' in the Journal of Clinical Medicine
'Interactions Between Thyroid Disorders and Kidney Disease' in the Indian Journal of Endocrinology and Metabolism
Connect with Nadine:Contact via Email
'Your Skin on Gluten' on YouTube
Melodies of the Danube Gluten-Free Cruise with Nadine
Books by Nadine:Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism
An estimated 50% of Americans are on some type of psychotropic drug. Half of the US population!
What is causing such widespread prevalence of mental health disorders? Prescription anti-depressants and sedatives don't solve the underlying problem… So how do we get to the bottom of this?
The Gluten Free RN contends that there may be a connection between mental health and undiagnosed celiac disease. Today she explains how several disorders (anxiety, depression and paranoia, among others) have been linked to gluten, discussing how a leaky blood-brain barrier can lead to hypoxia, an inflammation of the brain.
Nadine walks us through the best research in mental health disorders and gluten sensitivity, sharing two landmark studies that emphasize the gut/brain connection and characterize celiac disease as primarily a neurological disorder. Nadine offers her insight around working with schizophrenic patients and the increasing number of children suffering from anxiety. Listen in to understand how gluten impacts your mental health, and learn how to eliminate brain fog, get off prescription meds, and enjoy a higher quality of life!
What's Discussed:The connection between gluten and hypoxia
The shocking statistics around Americans and psychotropic drugs
The potential relationship between mental health disorders and undiagnosed celiac disease
The health consequences of undiagnosed celiac disease
The findings of the landmark Cooke study in 1966
The conclusion of an editorial published in Neurology, Neurosurgery & Psychiatry
How a gluten-free diet can resolve gastrointestinal and psychiatric symptoms
Nadine's experience with schizophrenia patients
The increasing number of children diagnosed with anxiety disorder
The concept of food as medicine
Resources:
'Gluten Sensitivity as a Neurological Illness' in the Journal of Neurology, Neurosurgery & Psychiatry
'Psychiatric Complications of Celiac Disease' in the International Journal of Celiac Disease
'Genetic Hypothesis of Idiopathic Schizophrenia: Its Exorphin Connection' in Schizophrenia Bulletin
'Markers of Gluten Sensitivity and Celiac Disease in Bipolar Disorder' in Bipolar Disorders
'Neurologic and Psychiatric Manifestations of Celiac Disease and Gluten Sensitivity' in Psychiatric Quarterly
'Neuropsychiatric Symptoms and Celiac Disease' in Neuropsychiatric Disease and Treatment
Connect with Nadine:Contact via Email
'Your Skin on Gluten' on YouTube
Melodies of the Danube Gluten-Free Cruise with Nadine
Books by Nadine:Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism
Two and a half years ago, Nadine was inadvertently hit with gluten—three times in a row. In the past, it had taken about ten weeks for her symptoms to resolve after an accidental exposure, but this time they stuck around. It started with feeling cold. Then she began experiencing abdominal distention and pain. Her dermatitis herpetiformis returned, she was plagued with sinus congestion, and she was gaining weight. Most concerning of all, she developed pulmonary edema, a condition caused by excess fluid in the lungs.
Today, the Gluten Free RN is getting real, revealing the health struggles she has been dealing with since 2015. She explains the circumstances that led to her accidental gluten exposure and recounts the ten scary nights she spent in a recliner, forced to sit up in order to breathe.
Nadine takes us along on her global search for the answers that began with a practitioner in Thailand and a tiny container of damp rash lotion, and ended with a diagnosis of myxedema from a naturopath here in the States. Nadine discusses how those three consecutive hits of gluten targeted her thyroid gland and how T3 is working to resolve her symptoms. Listen in and learn how the Gluten Free RN is reclaiming her Superwoman status and how you, too, can reach your full potential with good health and wellbeing!
What's Discussed:Maslow's hierarchy of needs
Nadine's health struggle the past 30 months
Nadine's search for the underlying cause
How Nadine is reclaiming her health
How a damaged thyroid gland impacted Nadine
The importance of support in getting your health back
Whole30
Connect with Nadine:Contact via Email
'Your Skin on Gluten' on YouTube
Melodies of the Danube Gluten-Free Cruise with Nadine
Books by Nadine:Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism
Celiac disease is messy. It can develop at any age, in any ethnicity, in both men and women, with any symptom or no symptom at all. Every patient is different, and each one presents differently. There is nothing cut and dried about celiac disease, except that a 100% gluten-free diet is necessary for healing.
Nurses are in a unique position to make sense of this chaos and advocate for patients, recognizing possible celiac disease and non-celiac gluten sensitivity and recommending appropriate testing when necessary. Today, the Gluten Free RN covers the basics of celiac disease for nurses, explaining the frequency with which the disorder is misdiagnosed or goes undiagnosed for years. She walks us through the testing required for a diagnosis of celiac disease proper, who should undergo testing, and why one negative test doesn't rule out the disease.
Nadine speaks to the 300-plus signs of celiac disease, reviewing the most common symptoms and the overlap between celiac disease and autoimmune disorders like type 1 diabetes. She also shares the discouraging statistics around the impact of undiagnosed celiac disease on fetal development and maternal health. Listen in to understand why Nadine encourages fellow nurses include celiac disease as part of their differential diagnosis, providing gluten-sensitive patients with a safe, gluten-free environment and a higher quality of life!
What's Discussed:The frequency with which celiac disease is misdiagnosed or goes undiagnosed
The challenges around getting a diagnosis of celiac disease proper
The chronic nature of celiac disease
The 300-plus signs and symptoms of celiac disease
Why celiac patients must be tested for potential nutritional deficiencies
The detrimental impact of undiagnosed celiac disease on fetal development, maternal health
Where gluten is hiding
Who should be tested for celiac disease
Why one negative test doesn't rule out celiac disease
How a gluten-free diet can benefit children with stunted growth
Celiac Disease and Non-Celiac Gluten Sensitivity for Nurses
Recommended Labs
Recognizing Celiac Disease: Signs, Symptoms, Associated Disorders & Complications by Cleo J. Libonati
Gluten Free Works
PubMed
Cyrex Labs
Connect with Nadine:Contact via Email
'Your Skin on Gluten' on YouTube
Melodies of the Danube Gluten-Free Cruise with Nadine
Books by Nadine:Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism
As we ring in the New Year, many of us take the time to jot down our aspirations for the next twelve months. What are your hopes and dreams for 2018? Health and happiness? An opportunity to travel? Stronger relationships?
Whether you have big plans to hike the Grand Canyon this year, or you simply resolve to get a little more sleep, it's likely that aspects of health and wellness are a big part of your vision for 2018. The Gluten Free RN wants you to be happy and healthy in the coming year, and today she is sharing her hopes and wishes around celiac disease for 2018.
Nadine offers insight on taking control of what you can, including the food you eat. She shares her wish for widespread access to high-quality food and nutritional information that is NOT influenced by corporations. She explains the need for universal healthcare, better comprehensive testing for celiac disease (performed annually), and appropriate follow-up care for patients with a celiac diagnosis. Listen in to understand why Nadine advocates for a global celiac education campaign and learn how to evaluate new information about the disease with a critical ear. Let's get happy and healthy in 2018 so that we can pursue all of our hopes and dreams!
What's Discussed:Nadine's wish for health, happiness and wellness
Why Nadine advocates for universal healthcare
The need for better comprehensive testing
Nadine's hope for worldwide knowledge of celiac disease
The importance of accurate media coverage
Why friends and family should be tested every year
The value of nutritional information not influenced by food companies
Nadine's aspiration for universal access to high-quality food
The need for appropriate follow-up care
Nadine's insight around celiac education
Resources:
Rotten Documentary Trailer
Whole30
Nadine's Recommended Labs
Columbia University Celiac Disease Center
PALEOf(x)
Connect with Nadine:Contact via Email
'Your Skin on Gluten' on YouTube
Melodies of the Danube Gluten-Free Cruise with Nadine
Books by Nadine:Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism
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