Go Shout Love Podcast

A chat with Go Shout Love's own Jessica Santo. In this episode, Jess discusses difficult moments that have shaped her life, the highs and lows of her Go Shout Love involvement, and some exciting news about her family.

In this episode we chat with Grace Grutter, whose daughter, Nella, was the inspiration behind Go Shout Love starting back in 2014.

When doctors had set the expectation to be prepared to bury their daughter, a stranger connecting on Facebook provided a hope for Nella's life despite a diagnosis of SMA. Grace shares that story as well as learning to embrace joy, choosing to thrive, and discovering the power of a life well-loved.

Visit www.goshout.love to meet this month's featured kiddo and take advantage of the special monthly subscription offer mentioned in the episode. Also, be sure to connect with Grace on Instagram (www.instagram.com/bowennellaandco) and Facebook (www.facebook.com/PrayersforNella/).

Heather Avis is a wife and proud mom of three awesome kids, including two who have Down syndrome. Together with her husband Josh, Heather runs a social awareness brand called The Lucky Few, where the goal is to shift the narrative that comes with having Down syndrome.

In this conversation, Heather talks about the natural unfolding of their lives that has given them a platform to speak into the importance of inclusion. She also talks about the role posture of the heart plays in creating equitable environments and the realities of advocating for your kids in the education world.

Heather’s words in this episode will challenge you and encourage you. Be sure to listen carefully for a chance to win a free copy of Heather’s latest book along with a free Go Shout Love t-shirt. If you just need to read the book immediately, we don’t blame you! You can purchase Scoot Over and Make Some Room here: https://amzn.to/2Lr3HOm

You can also purchase her first book, The Lucky Few, here: https://amzn.to/2NSKJBJ

Be sure to connect with Heather at www.heatheravis.com or www.instagram.com/theluckyfewofficial

We chat with Jon and Tameka, the amazing parents of Evely whose rare medical journey includes being born without eyes. In this two-part interview, they share honestly about the constantly shifting puzzle that is Evely's medical journey, the reality of grief that can come with a difficult diagnosis, and the importance of maintaining relationships that keep you centered.

Learn more about Evely and shout love for her with a purchase at www.goshout.love.

We chat with Jon and Tameka, the amazing parents of Evely whose rare medical journey includes being born without eyes. In this two-part interview, they share honestly about the constantly shifting puzzle that is Evely's medical journey, the reality of grief that can come with a difficult diagnosis, and the importance of maintaining relationships that keep you centered.

Learn more about Evely and shout love for her with a purchase at www.goshout.love.

At age seven, Ella Casano was diagnosed with a rare medical condition that requires regular IV treatments. In response to a competition at school, she wanted to solve a problem that was unique to her. In the process of doing that, she created a product called the Medi-Teddy which is now patented, in-process of being produced, and will soon be in medical facilities around the world with the sole purpose of making IV treatments a bit less scary for kids.

In this chat with Ella and her mom, Meg, we discuss how Ella came up with the idea for the Medi-Teddy, the process of designing and launching the product, and the overall goal of helping a medical process feel less scary for kids.

You can connect with Ella on Instagram (www.instagram.com/medi_teddy) and their website (www.medi-teddy.org).

BONUS: Special limited time offer for www.goshout.love found in this episode!

We introduce you to an amazing little gal named Isabella (Belly) and her parents, Charles and Alexia. Belly was diagnosed at age one with CDKL5, a very rare genetic disorder. She suffers from uncontrolled epilepsy, has a feeding tube, is non ambulatory, and also non verbal.

Learn more about Isabella and shout love for her with a purchase at www.goshout.love.

Seth chats with Josh & Rashele Veach, Go Shout Love co-directors, as they share the source of their passion for GSL, the joys and challenges of behind the scenes operations, and dreams they have for the future of GSL.

In this episode we are talking to Tonya, the mother of one year old Lana. This joyful little girl was diagnosed at three months old with a rare condition called Neurofibromatosis type 1 (NF1).

Tonya shares about how difficult it can be searching for a diagnosis while a child is experiencing severe systems. And how tough and uncertain hearing a diagnosis can be, such as hearing the word “tumor" for the first time.

Learn more about Lana and shout love for her and amazing kids in the future by starting your monthly subscription at www.goshout.love.

In this episode you'll meet the founder of Go Shout Love, Kristin Estok. Kristin shares how hearing one child's diagnosis, and an unshakeable desire to do something to help, set the stage for what is now Go Shout Love.

Learn more about our team, previous families, and support this month's family on our website at www.goshout.love.`