In this powerful episode of Groove with Portia, host Portia Booker welcomes Ellen Lubensky, a patient advocate and founder of the Mental Health Choice Project, for a vulnerable and important conversation about mental health treatment, misdiagnosis, psychiatric medication, medication withdrawal, informed consent, and patient rights.
Ellen shares her personal experience of being diagnosed after a brief psychiatric evaluation while attending Stanford University and the lasting impact that diagnosis had on her life. She opens up about navigating years of treatment, experiencing serious physical challenges, questioning the care she received, and finding the strength to advocate for herself.
Together, Portia and Ellen explore what it means to feel pressured into treatment decisions while experiencing fear, anxiety, grief, or emotional distress. They discuss the importance of asking questions, getting second, third, or even fourth opinions, and remembering that patients deserve to understand their options before agreeing to a treatment plan.
In this episode, they talk about:
Why a quick diagnosis can have long-term effects on a person’s life and medical records
The importance of informed consent in mental health and all areas of healthcare
Why signing paperwork is not the same as truly understanding a treatment plan
How to ask questions about medication risks, benefits, alternatives, and possible side effects
Why it can be helpful to bring a trusted friend, family member, or advocate to medical appointments
How to slow down and take a pause before making non-emergency healthcare decisions
Why getting a second opinion can be an act of self-advocacy, not disrespect
The role of trust, communication, and collaboration between patients and providers
The grief, loneliness, and friendship challenges that can arise during difficult health experiences
The importance of building a support system when you are struggling emotionally
Ellen’s work through the Mental Health Choice Project to promote patient choice and awareness
One of the central messages of this conversation is simple but powerful: you have choices. You are allowed to ask for clarity. You are allowed to request time to think. You are allowed to seek another provider. And you are allowed to say no when something does not feel right for you.
Ellen also shares information about her advocacy work through the Mental Health Choice Project, which seeks to encourage more compassionate, transparent, and patient-centered mental healthcare.
To connect with Ellen Lubensky, visit her professional website at ellenlubensky.com and learn more about the Mental Health Choice Project at mentalhealthchoiceproject.org.
If you or someone you know is struggling with thoughts of self-harm or suicide in the United States, call or text 988 to connect with the Suicide & Crisis Lifeline. If there is immediate danger or a medical emergency, call 911 or contact local emergency services.
This episode is intended for educational and awareness purposes only. It is not medical, psychiatric, legal, or therapeutic advice. Do not start, stop, or change medication without speaking with a qualified healthcare professional.
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