What if hospice care isn't what you've always imagined?
What if the final months of someone's life could still include laughter, meaningful conversations, celebrations, and even a trip they've always dreamed of taking?
In this episode of Groove with Portia, I'm joined by Paula Wrenn and Jo Gustely, co-authors of Dying Well with Hospice: A Compassionate Guide to End-of-Life Care, for a conversation about hospice, caregiving, anticipatory grief, and the importance of honoring someone's wishes at the end of life.
This conversation is personal for me. Before my mother transitioned, she was hesitant about hospice care. Our family had arranged for hospice equipment to be brought into our home, but she ultimately decided against it. Looking back, I recognize how much fear of the unknown can influence the decisions families make during an already emotional time.
Paula shares how her understanding of hospice changed when her husband, Jim, became a patient. Although she had spent years writing about aging and caregiving, experiencing hospice as his wife gave her a different perspective on patient-centered care, independence, and what it means to honor someone's choices.
Jo, a hospice nurse, discusses the importance of understanding the services available to patients and families, including the support of nurses, social workers, chaplains, and other members of the hospice team. She also explains why some families wait until the final days of life to seek hospice support and what they may not realize about comfort and quality of life.
We also explore anticipatory grief, the emotional changes caregivers experience before losing someone, and the small moments that can become some of our most meaningful memories.
Paula shares how Jim celebrated with friends before his death and how hospice support helped make a special trip to Yellowstone possible. Her experience challenges the idea that hospice care is only about preparing for death.
Throughout our conversation, we reflect on the importance of listening to our loved ones, respecting their wishes, and recognizing that the end of life can still hold opportunities for connection, joy, and gratitude.
Paula and Jo also discuss their book, Dying Well with Hospice, and why sharing their experiences continues to give their work meaning.
Have you ever had a conversation with a loved one about what matters most to them at the end of life?
If this conversation resonates with you, please like, share, and subscribe to Groove with Portia for more thoughtful discussions about grief, caregiving, mental health, resilience, and finding your groove.
Connect with Paula and Jo: https://amansvitaepress.net/