Navigating Transplant: What the Transplant Families + COTA Merger Means for You (feat. Rick Lofgren, CEO of COTA)
Two organizations that have walked alongside transplant families for decades have joined forces, and in this special episode, Melissa McQueen sits down with Rick Lofgren, CEO of the Children's Organ Transplant Association (COTA), to explain exactly what that means for your family.
Transplant Families and COTA have been aligned in mission for years, and this merger brings more hands on deck, shared resources, and lower overhead, so more support goes directly to families, not back-office costs. Melissa and Rick answer the questions you've been asking: what changes, what stays the same, and how does this help families like yours.
In this conversation, you'll hear:
• How COTA helps families day to day, at no cost and with no fundraising fees.
• What's actually covered, and it's more than you'd think: co-payments, deductibles, medications, travel and lodging, household expenses, COBRA premiums, therapy, dental care, even post-transplant home cleaning.
• Who's eligible: any family with a transplant candidate or recipient age 21 or younger, plus more than 5,000 single-gene diagnoses, with no age limit. Once you're a COTA patient, you're a COTA patient for life.
• Why COTA funds go further than crowdfunding.
• More than 100 fundraising ideas your team can put to work, from golf outings and online stores to virtual 5Ks and social media challenges.
• Ways to get involved beyond fundraising: advocacy, education, research, and support.
Have questions or ideas for a future episode? Reach out to Melissa at [email protected] or [email protected], or contact Rick directly at [email protected].
Learn more and explore past episodes at transplantfamilies.org and youtube.com/transplantfamilies.