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HAE Speaks, a podcast series on important Hereditary Angioedema (HAE) topics. Listen to patients, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with yo... more
FAQs about HAE Speaks:How many episodes does HAE Speaks have?The podcast currently has 66 episodes available.
February 06, 2023Gene Therapy in HAE: A look into BioMarin’s Investigational StudyIn this episode, BioMarin’s Clinical Science Lead, Jack Brownrigg, and HAE physician, Dr. Timothy Craig, discuss AAV Gene Therapy and BioMarin’s investigational clinical trial for HAE.For more information about Hereditary Angioedema please visit HAEA.orgThis episode is brought to you by our sponsor: BioMarin Pharmaceutical Inc....more17minPlay
January 31, 2023Episode 34: A Newly Diagnosed PerspectiveKayla, an individual with HAE, shares her perspective on being recently diagnosed with HAE, advocating for herself, and her journey to a diagnosis.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsKalvista PharmaceuticalsTakeda...more25minPlay
January 09, 2023Episode 32: HAEA year in reviewIn this episode of the HAE Speaks podcast, the HAEA staff talks about their accomplishments in 2022. Listen now to hear what resources are available!For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsBioMarinCSL BehringTakeda...more47minPlay
November 01, 2022Episode 31- Jess shares the importance of Advocating for HAEIn this episode of the HAE Speaks podcast, Jess talks about the importance of advocacy and how you can get involved.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsBioMarinCSL BehringTakeda...more14minPlay
October 06, 2022Episode 30- Adina's HAE journeyIn this episode of the HAE Speaks podcast we hear from HAEA staff member Adina. Adina shares her HAE journey from diagnosis to today.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsBioMarinCSL BehringTakeda...more18minPlay
September 07, 2022Episode 29- Bobbi shares her journey with HAEIn this episode Bobbi shares her journey with HAE as a person diagnosed with HAE, turning into also a caregiver, and how her and her girls are living a great life with HAE.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsBioMarinCSL BehringTakeda...more16minPlay
August 23, 2022Orladeyo: Red shares his HAE journeyA message from our Sponsor: BioCryst Pharmaceuticals:In this episode of the HAE Speaks podcast, we listen to Red share his experience with HAE and preventing attacks with ORLADEYO® (berotralstat), the once daily oral treatment.For more information on ORLADEYO, including the full prescribing and important safety information, visit www.ORLADEYO.com.For more information about Hereditary Angioedema please visit HAEA.org...more12minPlay
August 01, 2022Episode 28- Troyce provides tips about going back to schoolIn this episode of the HAE Speaks podcast, Troyce provides tips about going back to school while having HAE. Troyce provides insight at each level of school, beginning with kindergarten and all the way through college, attending school while at home and also away from home.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsBioMarinCSL BehringTakeda...more10minPlay
July 01, 2022Episode 27- Abby shares her insights about the HAEA Brady ClubIn this episode of the HAE Speaks podcast, we listen to Abby share her experience and excitement about being a part of the HAEA Brady club.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsBioMarinCSL BehringTakeda...more9minPlay
May 31, 2022Episode 26- Missy & Sarah discuss the 2022 HAE IN-MOTION®The 2022 HAE IN-MOTION® - Step it up for HAE virtual challenge registration is open. In this episode, hear tips, tricks, and advice from a past participant. Register now at HAEA.org. For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsBioMarinTakeda...more13minPlay
FAQs about HAE Speaks:How many episodes does HAE Speaks have?The podcast currently has 66 episodes available.