HAE Speaks

HAE Speaks

By US HAEABusinessNon-Profit
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HAE Speaks episodes

  • Episode 41: Back to School tips with Mandy

    HAE Speaks Podcast - Episode 41: Back to

    School tips with Mandy

    Amanda

    Grant, HAE Health Advocate shares advice to help you be prepared for back to
    school.  She also shares many resources
    available through the HAEA to help guide conversations with the school.

    For more information about Hereditary Angioedema please visit ⁠HAEA.org⁠

    Thank you to our sponsors:

    ⁠BioCryst Pharmaceuticals⁠

    ⁠Kalvista Pharmaceuticals⁠

    ⁠Takeda



    21 min
  • Episode 40: College preparedness & HAE

    HAE Speaks Podcast - Episode 40: In this episode of HAE Speaks podcast Missy and Karissa discuss what it is like going away to college while living with HAE.  Karissa shares some important lessons learned as well as tips and tricks to help you be more prepared for a great college experience.

    For more information about Hereditary Angioedema please visit ⁠HAEA.org⁠

    Thank you to our sponsors:

    ⁠BioCryst Pharmaceuticals⁠

    ⁠Kalvista Pharmaceuticals⁠

    ⁠Takeda




    21 min
  • Episode 39: The importance of mindfulness

    Episode 39: Adina Mauk:HAEA Health Advocate, shares the importance of mindfulness  along with tips and tricks. 

    Looking for ideas and methods for self-care?

    Adina has just the information you are looking for.  In this episode of
    the HAE Speaks podcast Adina talks about her journey to self-care.

    Living with HAE can be stressful both for someone

    living with HAE as well as for caregivers.  Mindfulness can help you focus
    on what you are sensing and feeling in the moment and be used as a tool for effectively managing this stress.


    For more information about Hereditary Angioedema please visit ⁠HAEA.org⁠

    Thank you to our sponsors:

    ⁠BioCryst Pharmaceuticals⁠

    ⁠Kalvista Pharmaceuticals⁠

    ⁠Takeda




    18 min
  • Episode 38: Hosting an HAE DIY event

    Episode 38: In this episode of HAE Speaks podcast learn more about hosting an HAE DIY event.  Missy speaks with Mike about DIY events and many of the resources available from the HAEA to assist you with your event. Also, listen in as Missy sits down with Lora and participants at the Lyndon Memorial Walk, a DIY HAE awareness event.

    For more information about Hereditary Angioedema please visit ⁠HAEA.org⁠

    Thank you to our sponsors:

    ⁠BioCryst Pharmaceuticals⁠

    ⁠Kalvista Pharmaceuticals⁠

    ⁠Takeda



    23 min
  • Episode 37: Transitioning to Caregiver

    Episode 37: In this episode of the HAE Speaks podcast Missy talks with Bobbi and

    Mike about their journey of living with HAE and also the transition of becoming
    caregivers for their children diagnosed with HAE. 

    For more information about Hereditary Angioedema please visit ⁠HAEA.org⁠

    Thank you to our sponsors:

    ⁠BioCryst Pharmaceuticals⁠

    ⁠Kalvista Pharmaceuticals⁠

    ⁠Takeda


    16 min
  • Episode 36: Dr. Riedl discusses the HAEA ⁠shared decision making tool⁠.

    Episode 36: Dr. Riedl discusses the HAEA shared decision making tool. A free tool available at HAEA.org to help individuals living with HAE prepare for their physician appointments.

    Dr. Riedl:

    Allergist/Immunologist

    Clinical Director of UC San Diego Health's U.S. HAEA Angioedema Center

    Professor of Medicine


    For more information about Hereditary Angioedema please visit ⁠HAEA.org⁠

    Thank you to our sponsors:

    ⁠BioCryst Pharmaceuticals⁠

    ⁠Kalvista Pharmaceuticals⁠

    ⁠Takeda

    16 min
  • Episode 34: Lora's HAE Journey

    Episode 35: Lora shares her HAE journey as well as how she spreads HAE awareness nationwide.

    For more information about Hereditary Angioedema please visit HAEA.org

    Thank you to our sponsors:

    BioCryst Pharmaceuticals

    Kalvista Pharmaceuticals

    Takeda


    17 min
  • Episode 32: Navigating college with HAE

    In this episode, Kelsie talks about her HAE journey and navigating college with HAE. 

    For more information about Hereditary Angioedema please visit HAEA.org

    Thank you to our sponsors:

    BioCryst Pharmaceuticals

    Kalvista Pharmaceuticals

    Takeda

    22 min
  • Gene Therapy in HAE: A look into BioMarin’s Investigational Study

    In this episode, BioMarin’s Clinical Science Lead, Jack Brownrigg, and HAE physician, Dr. Timothy Craig, discuss AAV Gene Therapy and BioMarin’s investigational clinical trial for HAE.


    For more information about Hereditary Angioedema please visit HAEA.org

    This episode is brought to you by our sponsor: BioMarin Pharmaceutical Inc.

    17 min
  • Episode 34: A Newly Diagnosed Perspective

    Kayla, an individual with HAE, shares her perspective on being recently diagnosed with HAE, advocating for herself, and her journey to a diagnosis.


    For more information about Hereditary Angioedema please visit HAEA.org

    Thank you to our sponsors:

    BioCryst Pharmaceuticals

    Kalvista Pharmaceuticals

    Takeda

    25 min

About HAE Speaks

From the publisher's feed

HAE Speaks, a podcast series on important Hereditary Angioedema (HAE) topics. Listen to patients, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with…