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HAE Speaks, a podcast series on important Hereditary Angioedema (HAE) topics. Listen to patients, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with yo... more
FAQs about HAE Speaks:How many episodes does HAE Speaks have?The podcast currently has 69 episodes available.
April 06, 2023Episode 36: Dr. Riedl discusses the HAEA shared decision making tool.Episode 36: Dr. Riedl discusses the HAEA shared decision making tool. A free tool available at HAEA.org to help individuals living with HAE prepare for their physician appointments. Dr. Riedl:Allergist/ImmunologistClinical Director of UC San Diego Health's U.S. HAEA Angioedema CenterProfessor of MedicineFor more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsKalvista PharmaceuticalsTakeda...more16minPlay
March 13, 2023Episode 34: Lora's HAE JourneyEpisode 35: Lora shares her HAE journey as well as how she spreads HAE awareness nationwide.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsKalvista PharmaceuticalsTakeda...more17minPlay
March 09, 2023Episode 32: Navigating college with HAEIn this episode, Kelsie talks about her HAE journey and navigating college with HAE. For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsKalvista PharmaceuticalsTakeda...more22minPlay
February 06, 2023Gene Therapy in HAE: A look into BioMarin’s Investigational StudyIn this episode, BioMarin’s Clinical Science Lead, Jack Brownrigg, and HAE physician, Dr. Timothy Craig, discuss AAV Gene Therapy and BioMarin’s investigational clinical trial for HAE.For more information about Hereditary Angioedema please visit HAEA.orgThis episode is brought to you by our sponsor: BioMarin Pharmaceutical Inc....more17minPlay
January 31, 2023Episode 34: A Newly Diagnosed PerspectiveKayla, an individual with HAE, shares her perspective on being recently diagnosed with HAE, advocating for herself, and her journey to a diagnosis.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsKalvista PharmaceuticalsTakeda...more25minPlay
January 09, 2023Episode 32: HAEA year in reviewIn this episode of the HAE Speaks podcast, the HAEA staff talks about their accomplishments in 2022. Listen now to hear what resources are available!For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsBioMarinCSL BehringTakeda...more47minPlay
November 01, 2022Episode 31- Jess shares the importance of Advocating for HAEIn this episode of the HAE Speaks podcast, Jess talks about the importance of advocacy and how you can get involved.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsBioMarinCSL BehringTakeda...more14minPlay
October 06, 2022Episode 30- Adina's HAE journeyIn this episode of the HAE Speaks podcast we hear from HAEA staff member Adina. Adina shares her HAE journey from diagnosis to today.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsBioMarinCSL BehringTakeda...more18minPlay
September 07, 2022Episode 29- Bobbi shares her journey with HAEIn this episode Bobbi shares her journey with HAE as a person diagnosed with HAE, turning into also a caregiver, and how her and her girls are living a great life with HAE.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsBioMarinCSL BehringTakeda...more16minPlay
August 23, 2022Orladeyo: Red shares his HAE journeyA message from our Sponsor: BioCryst Pharmaceuticals:In this episode of the HAE Speaks podcast, we listen to Red share his experience with HAE and preventing attacks with ORLADEYO® (berotralstat), the once daily oral treatment.For more information on ORLADEYO, including the full prescribing and important safety information, visit www.ORLADEYO.com.For more information about Hereditary Angioedema please visit HAEA.org...more12minPlay
FAQs about HAE Speaks:How many episodes does HAE Speaks have?The podcast currently has 69 episodes available.