Episode 38: In this episode of HAE Speaks podcast learn more about hosting an HAE DIY event.  Missy speaks with Mike about DIY events and many of the resources available from the HAEA to assist you with your event. Also, listen in as Missy sits down with Lora and participants at the Lyndon Memorial Walk, a DIY HAE awareness event.

For more information about Hereditary Angioedema please visit ⁠HAEA.org⁠

Thank you to our sponsors:

⁠BioCryst Pharmaceuticals⁠

⁠Kalvista Pharmaceuticals⁠

⁠Takeda

Episode 37: In this episode of the HAE Speaks podcast Missy talks with Bobbi and

Thank you to our sponsors:

⁠BioCryst Pharmaceuticals⁠

⁠Kalvista Pharmaceuticals⁠

⁠Takeda

Episode 36: Dr. Riedl discusses the HAEA shared decision making tool. A free tool available at HAEA.org to help individuals living with HAE prepare for their physician appointments.

Dr. Riedl:

Allergist/Immunologist

Clinical Director of UC San Diego Health's U.S. HAEA Angioedema Center

Professor of Medicine

For more information about Hereditary Angioedema please visit ⁠HAEA.org⁠

Thank you to our sponsors:

⁠BioCryst Pharmaceuticals⁠

⁠Kalvista Pharmaceuticals⁠

⁠Takeda

Episode 35: Lora shares her HAE journey as well as how she spreads HAE awareness nationwide.

For more information about Hereditary Angioedema please visit HAEA.org

Thank you to our sponsors:

BioCryst Pharmaceuticals

Kalvista Pharmaceuticals

Takeda

In this episode, Kelsie talks about her HAE journey and navigating college with HAE. 

For more information about Hereditary Angioedema please visit HAEA.org

Thank you to our sponsors:

BioCryst Pharmaceuticals

Kalvista Pharmaceuticals

Takeda

In this episode, BioMarin’s Clinical Science Lead, Jack Brownrigg, and HAE physician, Dr. Timothy Craig, discuss AAV Gene Therapy and BioMarin’s investigational clinical trial for HAE.

For more information about Hereditary Angioedema please visit HAEA.org

This episode is brought to you by our sponsor: BioMarin Pharmaceutical Inc.

Kayla, an individual with HAE, shares her perspective on being recently diagnosed with HAE, advocating for herself, and her journey to a diagnosis.

For more information about Hereditary Angioedema please visit HAEA.org

Thank you to our sponsors:

BioCryst Pharmaceuticals

Kalvista Pharmaceuticals

Takeda

In this episode of the HAE Speaks podcast, the HAEA staff talks about their accomplishments in 2022. Listen now to hear what resources are available!

For more information about Hereditary Angioedema please visit HAEA.org

Thank you to our sponsors:

BioCryst Pharmaceuticals

BioMarin

CSL Behring

Takeda

In this episode of the HAE Speaks podcast, Jess talks about the importance of advocacy and how you can get involved.

For more information about Hereditary Angioedema please visit HAEA.org

Thank you to our sponsors:

BioCryst Pharmaceuticals

BioMarin

CSL Behring

Takeda

In this episode of the HAE Speaks podcast we hear from HAEA staff member Adina.  Adina shares her HAE journey from diagnosis to today.

For more information about Hereditary Angioedema please visit HAEA.org

Thank you to our sponsors:

BioCryst Pharmaceuticals

BioMarin

CSL Behring

Takeda