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HAE Speaks, a podcast series on important Hereditary Angioedema (HAE) topics. Listen to patients, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with yo... more
FAQs about HAE Speaks:How many episodes does HAE Speaks have?The podcast currently has 54 episodes available.
October 31, 2024Episode 50: Innovations in HAE with KalVistaThis month's episode of the HAE Speaks podcast spotlights the innovative strides KalVista is making to improve care for people within the HAE community. It will offer insights into KalVista’s dedication to the HAE community by addressing unmet needs in HAE management and an overview of their clinical development program.Join hosts Nicole Sweeny, Chief Commercial Officer and Michael Smith, Senior Vice President of Development as they are interviewed by Linda, a Person Living with HAE.Thank you to KalVista for sponsoring this episode!...more26minPlay
August 20, 2024Episode 49: Ahead of the Swell: Uncovering the Target That Could Stop AttacksAs a rare condition, understanding the root cause of Hereditary Angioedema (HAE) is crucial for improving patient management and care. On this episode of the HAE Speaks podcast, doctors Raffi Tachdjian, MD, MPH and Jay Kashkin, MD, dive deep into the critical role of factor XIIa on the HAE pathway.For more information, please visit www.haea.org.We would like to thank CSL Behring for sponsoring this episode!...more29minPlay
August 05, 2024Episode 48: Spotlight on HAEA Grassroots Advocacy Network Regional LeadersIn this month's episode of the HAE Speaks podcast, we shine a spotlight on some of the most passionate and dedicated advocates within the Hereditary Angioedema Association (HAEA) community – our regional leaders. These individuals play a crucial role in advancing our advocacy efforts, ensuring that every voice is heard and that access to care remains a top priority.Join us for this inspiring episode as we highlight the remarkable work of our regional leaders, Cedrick, Pamela, and Kate, and the profound impact of advocacy within the HAEA community! For more information, please visit www.haea.org. A special thanks to CSL Behring and Takeda for sponsoring the 2024 HAE Speaks Podcast Series!...more21minPlay
May 29, 2024Episode 47: US HAEA National Summit Ask the Experts Q&ADid you miss it? Tune in to our latest podcast episode as we bring you highlights from the Ask the Experts Q&A session at the 2023 US HAEA National Summit in Orlando, Florida. In this episode, members of the US HAEA Medical Advisory Board address pressing questions and provide invaluable insights into the challenges and advancements in the field of Hereditary Angioedema (HAE). Listen in on this informative and enlightening discussion! For more information, please visit www.haea.org. A special thanks to CSL Behring and Takeda for sponsoring the 2024 HAE Speaks Podcast Series!...more49minPlay
April 01, 2024Episode 46: My Cross-Country Trip Across the United States to Raise HAE AwarenessThis month’s HAE Speaks Podcast episode features John, an individual with HAE, as he shares his inspiring journey of raising awareness cross-country. Join us as John recounts his innovative tactics and heartfelt efforts while traveling through twenty states, fundraising, and spreading awareness for HAE.For more information, please visit www.haea.org. A special thanks to CSL Behring and Takeda for sponsoring the 2024 HAE Speaks Podcast Series!...more21minPlay
February 05, 2024Episode 45: HAEA DIY Community Events - Red Lake Nation HAE Awareness WalkIn this episode, we chat with Alecia, who shares her experiences hosting a memorial HAE walk in memory of her brother, Joseph Fairbanks Jr., who passed away due to HAE. Over 100 participants attended Alecia’s event in her hometown of Red Lake Nation, Minnesota! For more information, please visit www.haea.org. A special thanks to CSL Behring and Takeda for sponsoring the 2024 HAE Speaks Podcast Series!...more12minPlay
December 19, 2023HAE, the holidays and you. Navigating the holiday season with HAESenior Nurse Advocate with over 20 years of experience working with HAE patients will discuss tips and recommendations for successfully navigating the busy holiday season with HAE.For more information about Hereditary Angioedema please visit HAEA.orgThis episode is brought to you by our sponsor: BioCryst Pharmaceuticals, Inc....more8minPlay
November 30, 2023Episode 44: A word from the HAE Community2023 was a busy year for the HAE community. Listen in as community members share theirhighlights of 2023. For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsKalvista PharmaceuticalsTakeda...more11minPlay
November 01, 2023Episode 43: Kate is living Beyond HAEKate has lived with HAE all of her life but she does not let HAE control her life. Listen in as Kate shares her amazing feats and living her “dash” life.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsKalvista PharmaceuticalsTakeda...more42minPlay
October 01, 2023Episode 42: Dusty & Mark’s HAE JourneyDusty struggled for 25 years to find an HAE diagnosis. She was fortunate to find Mark who has been a great caregiver for her. The journey has been full of highs and lows. Listen in as they share their stories from her HAE journey.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsKalvista PharmaceuticalsTakeda...more37minPlay
FAQs about HAE Speaks:How many episodes does HAE Speaks have?The podcast currently has 54 episodes available.