In this episode, we hear from Tina S., an individual living with HAE and an adult recipient of the Pam King HAEA Scholarship.

Tina shares her journey, the impact of the scholarship, and how educational support can make a difference for individuals affected by HAE, regardless of age or stage of life. Learn more about the HAEA Scholarships by visiting: https://www.haea.org/pages/p/scholarships

Thank you to our 2026 sponsors: BioCryst, CSL Behring, IONIS Pharmaceuticals, and Takeda.

Dr. Andrew Smith and Craig, an individual living with HAE, share insights on recognizing HAE attacks, understanding response strategies, and navigating day-to-day management.

Through both clinical perspective and personal experience, they explore why timely response matters and how education can empower the HAE community.

Together, they discuss why you don’t have to “tough it out,” how timely action can make a difference, and the importance of understanding your options when managing attacks.

Thank you to Ionis Pharmaceuticals for sponsoring this episode of the HAE Speaks Podcast.

In this month's HAE Speaks Podcast episode, welcome back Dane Christiansen for a comprehensive end-of-year legislative update. Dane breaks down the key policy developments, federal priorities, and advocacy efforts that shaped 2025, and what they mean for the HAE community moving into the new year.

Thank you to our sponsors: CSL Behring, IONIS Pharmaceuticals, and Pharvaris

This episode re-visits the HAEA National Summit session from HAE Expert and US HAEA Medical Advisory Board Member, Dr. Marc Riedl, as he offers a crucial look at the future of HAE care.

The discussion focuses on the rapidly advancing treatment landscape, covering the latest novel therapies in development, and how these advances aim to improve treatment efficacy, convenience, and quality of life for the HAE community.

In this episode, HAEA Nurse Case Managers, Troyce Venturella and Mandy Granat, share their 10 must-ask insurance questions for people living with HAE.

Learn how to better understand your coverage, prepare for renewals, and advocate for the care you need. Navigating insurance can be challenging, but you don’t have to do it alone!

In this episode, a patient shares her journey from undiagnosed Hereditary Angioedema (HAE) in childhood, through battles with severe attacks as an adult, to two years attack-free and counting due to a clinical trial with a new prophylactic treatment option, ANDEMBRY ® (garadacimab-gxii). She emphasizes resilience and the importance of exploring new treatment options, which has allowed her to live attack-free for the first time in decades.

Her story is a testament to the power of not settling for “good enough” and the transformative impact of innovative treatments. Her doctor offers a medical perspective on the clinical impact of ANDEMBRY ®. Visit ANDEMBRY.com to learn more.

Thank you to our sponsor: CSL Behring

In this episode, HAE Health Services Manager Troyce Venturella sits down with Marie, an individual living with HAE who has navigated the complexities of Medicare enrollment firsthand.

Together, they discuss the key steps, challenges, and considerations in selecting the right Medicare plan, offering valuable insights for others in the HAE community as they make important healthcare decisions.

In this episode of the HAE Speaks Podcast, Dr. Raffi Tachdjian (UCLA) and Pharvaris discuss the HAE CHAPTER-3 Study — a new HAE attack prevention trial currently enrolling. The study explores the safety and effectiveness of deucrictibant, an investigational once-daily oral treatment aimed at preventing HAE attacks.

Thank you to Pharvaris for sponsoring this episode of the HAE Speaks Podcast!

In this month’s episode of the HAE Speaks podcast, Ionis Patient Education Managers, Danielle and Kia, talk to a certified mindfulness meditation teacher, Anne, about practices and tips for meditation that you can incorporate into your daily routine.

We hope this conversation will give you the knowledge and motivation to try it for yourself!

Thank you to Ionis Pharmaceuticals for sponsoring this episode of the HAE Speaks Podcast!

Tune into the latest episode of our “Legislative Series” of the HAE Speaks Podcast where we have a conversation with Dane Christiansen from our Washington office about pressing advocacy updates including:  

• Potential cuts to Medicaid

• Restructuring at federal agencies 

• The executive order on drug pricing 

Whether you’re just beginning your advocacy journey or looking to stay informed, this episode is packed with valuable information you don’t want to miss!