HAE Speaks

Learn what to consider when choosing a health insurance plan during Open Enrollment. The conversation covers medication coverage, prior authorizations, specialty pharmacies, out-of-pocket costs, provider networks, and helpful questions to ask before selecting a plan.

Sponsored by: CSL

In this episode, HAEA Advocacy Director, Jess Myers, sits down with Dane Christiansen, the Managing Partner of the Health and Medicine Counsel of Washington, for a special end-of-year legislative update. Together, they discuss what has happened this year in healthcare policy, key issues impacting the HAEA community, and how you can support these HAEA Advocacy efforts.

In this episode, two compassionate advocates for the health and wellbeing of our community, Troyce Venturella, HAEA Director of Health & Research Services, and Mandy Granat, HAEA Health Services Manager, discuss what individuals living with HAE should consider when transitioning to Medicare. 

The conversation explores enrollment timelines, Medicare plan options, medication coverage, financial assistance, and resources available to help individuals research their options and plan ahead.

In this new HAE Speaks Podcast series, Tony (HAEA CEO & Chairman of the Board) sits down with Tom Groeling, Executive Director of Specialty Franchise at CSL.

Together, they discuss CSL's long-standing commitment to the HAE community and the company's vision for advancing care. The conversation also explores CSL's HAE therapies, ANDEMBRY® and HAEGARDA®, and provides an overview of their intended use, key features, and available support programs.

Note: This podcast is for educational purposes only and is not meant to provide medical advice. The HAEA is company- and product-neutral. We don’t endorse specific therapies and we don’t compare products. Treatment comparisons and selection are the sole responsibility of people with HAE and their physicians.

Sponsored By: CSL

In this month's episode of the HAE Speaks Podcast, the Warner-Mukes family shares their journey of living with Hereditary Angioedema (HAE) together. From navigating diagnosis and treatment to supporting one another through the challenges of daily life, they offer an honest conversation about what it means to face HAE as a family. Through their shared experiences, listeners will gain insight into the power of resilience, the importance of understanding each family member's perspective, and the strength that comes from navigating HAE together.

Thank you to our 2026 Sponsors: BioCryst, CSL, IONIS, and Takeda

Join HAEA Director of Health & Research Services, Troyce Venturella, and HAEA Health Services Manager, Mandy Granat, as they discuss important summer safety considerations for individuals and families living with HAE. The conversation is designed to help the HAEA community stay safe, healthy, and prepared while enjoying summer activities with family and friends!

Thank you to our 2026 Sponsors: BioCryst, CSL, IONIS, and Takeda

  In this new HAE Speaks Podcast series, Roundtable with the CEO,  HAEA CEO & Chairman of the Board, Tony Castaldo, sits down with Nicole Sweeny,  Chief Commercial Officer at KalVista Pharmaceuticals.

  Tony and Nicole discuss KalVista’s mission and aspirations for the future health of  the HAEA community. They also address EKTERLY®, a newly  approved oral, on-demand HAE treatment option, and provide practical insights into  KalVista’s programs for access, insurance coverage, and efforts to expand treatment  options for children.

  Note: This podcast is for educational purposes only and is not meant  to provide medical advice. The HAEA is company- and product neutral. We don’t endorse  specific therapies and we don’t compare products. Treatment comparisons and selection  are the sole responsibility of people with HAE and their physicians.

  For more information, please visit  www.haea.org.

  Sponsored By: KalVista Pharmaceuticals

In this episode of HAE Speaks, Cheryl and her daughter Leah share their powerful journey living with hereditary angioedema (HAE) across generations. Together, they open up about navigating diagnosis, managing life with HAE, and the unique perspective of both a parent and child living with the condition.

They also highlight the importance of advocacy, both within the healthcare system and the broader community, and offer insight into how others can get involved, raise awareness, and make a meaningful impact.

Sponsored by: BioCryst Pharmaceuticals

In this episode, we hear from Tina S., an individual living with HAE and an adult recipient of the Pam King HAEA Scholarship.

Tina shares her journey, the impact of the scholarship, and how educational support can make a difference for individuals affected by HAE, regardless of age or stage of life. Learn more about the HAEA Scholarships by visiting: https://www.haea.org/pages/p/scholarships

Thank you to our 2026 sponsors: BioCryst, CSL Behring, IONIS Pharmaceuticals, and Takeda.

Dr. Andrew Smith and Craig, an individual living with HAE, share insights on recognizing HAE attacks, understanding response strategies, and navigating day-to-day management.

Through both clinical perspective and personal experience, they explore why timely response matters and how education can empower the HAE community.

Together, they discuss why you don’t have to “tough it out,” how timely action can make a difference, and the importance of understanding your options when managing attacks.

Thank you to Ionis Pharmaceuticals for sponsoring this episode of the HAE Speaks Podcast.