HAE Speaks

As a rare condition, understanding the root cause of Hereditary Angioedema (HAE) is crucial for improving patient management and care. On this episode of the HAE Speaks podcast, doctors Raffi Tachdjian, MD, MPH and Jay Kashkin, MD, dive deep into the critical role of factor XIIa on the HAE pathway.

For more information, please visit www.haea.org.

We would like to thank CSL Behring for sponsoring this episode!

In this month's episode of the HAE Speaks podcast, we shine a spotlight on some of the most passionate and dedicated advocates within the Hereditary Angioedema Association (HAEA) community – our regional leaders. These individuals play a crucial role in advancing our advocacy efforts, ensuring that every voice is heard and that access to care remains a top priority.

Join us for this inspiring episode as we highlight the remarkable work of our regional leaders, Cedrick, Pamela, and Kate, and the profound impact of advocacy within the HAEA community!

For more information, please visit www.haea.org.

A special thanks to CSL Behring and Takeda for sponsoring the 2024 HAE Speaks Podcast Series!

Did you miss it? Tune in to our latest podcast episode as we bring you highlights from the Ask the Experts Q&A session at the 2023 US HAEA National Summit in Orlando, Florida.

In this episode, members of the US HAEA Medical Advisory Board address pressing questions and provide invaluable insights into the challenges and advancements in the field of Hereditary Angioedema (HAE). Listen in on this informative and enlightening discussion!

For more information, please visit www.haea.org.

A special thanks to CSL Behring and Takeda for sponsoring the 2024 HAE Speaks Podcast Series!

This month’s HAE Speaks Podcast episode features John, an individual with HAE, as he shares his inspiring journey of raising awareness cross-country. Join us as John recounts his innovative tactics and heartfelt efforts while traveling through twenty states, fundraising, and spreading awareness for HAE.

For more information, please visit www.haea.org.

A special thanks to CSL Behring and Takeda for sponsoring the 2024 HAE Speaks Podcast Series!

In this episode, we chat with Alecia, who shares her experiences hosting a memorial HAE walk in memory of her brother, Joseph Fairbanks Jr., who passed away due to HAE. Over 100 participants attended Alecia’s event in her hometown of Red Lake Nation, Minnesota! 

For more information, please visit www.haea.org.

A special thanks to CSL Behring and Takeda for sponsoring the 2024 HAE Speaks Podcast Series!

Senior Nurse Advocate with over 20 years of experience working with HAE patients will discuss tips and recommendations for successfully navigating the busy holiday season with HAE.

For more information about Hereditary Angioedema please visit ⁠HAEA.org⁠

This episode is brought to you by our sponsor: ⁠BioCryst Pharmaceuticals, Inc.

2023 was a busy year for the HAE community.  Listen in as community members share their

Thank you to our sponsors:

⁠⁠⁠BioCryst Pharmaceuticals⁠⁠⁠

⁠⁠⁠Kalvista Pharmaceuticals⁠⁠⁠

⁠⁠⁠Takeda⁠

Kate has lived with HAE all of her life but she does not let HAE control her life.  Listen in as Kate shares her amazing feats and living her “dash” life.

For more information about Hereditary Angioedema please visit ⁠⁠HAEA.org⁠⁠

Thank you to our sponsors:

⁠⁠BioCryst Pharmaceuticals⁠⁠

⁠⁠Kalvista Pharmaceuticals⁠⁠

⁠⁠Takeda⁠

Dusty struggled for 25 years to find an HAE diagnosis.  She was fortunate to find Mark who has been a great caregiver for her.  The journey has been full of highs and lows. Listen in as they share their stories from her HAE journey.

Thank you to our sponsors:

⁠BioCryst Pharmaceuticals⁠

⁠Kalvista Pharmaceuticals⁠

⁠Takeda

HAE Speaks Podcast - Episode 41: Back to

Amanda

Thank you to our sponsors:

⁠BioCryst Pharmaceuticals⁠

⁠Kalvista Pharmaceuticals⁠

⁠Takeda