HAE Speaks

HAE Speaks

By US HAEABusinessNon-Profit
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HAE Speaks episodes

  • Episode 32: HAEA year in review

    In this episode of the HAE Speaks podcast, the HAEA staff talks about their accomplishments in 2022. Listen now to hear what resources are available!


    For more information about Hereditary Angioedema please visit HAEA.org

    Thank you to our sponsors:

    BioCryst Pharmaceuticals

    BioMarin

    CSL Behring

    Takeda


    47 min
  • Episode 30- Adina's HAE journey

    In this episode of the HAE Speaks podcast we hear from HAEA staff member Adina.  Adina shares her HAE journey from diagnosis to today.


    For more information about Hereditary Angioedema please visit HAEA.org

    Thank you to our sponsors:

    BioCryst Pharmaceuticals

    BioMarin

    CSL Behring

    Takeda

    18 min
  • Episode 29- Bobbi shares her journey with HAE

    In this episode Bobbi shares her journey with HAE as a person diagnosed with HAE, turning into also a caregiver, and how her and her girls are living a great life with HAE.


    For more information about Hereditary Angioedema please visit HAEA.org

    Thank you to our sponsors:

    BioCryst Pharmaceuticals

    BioMarin

    CSL Behring

    Takeda

    16 min
  • Orladeyo: Red shares his HAE journey

    A message from our Sponsor: BioCryst Pharmaceuticals:

    In this episode of the HAE Speaks podcast, we listen to Red share his experience with HAE and preventing attacks with ORLADEYO® (berotralstat), the once daily oral treatment.

    For more information on ORLADEYO, including the full prescribing and important safety information, visit www.ORLADEYO.com.

    For more information about Hereditary Angioedema please visit HAEA.org

    12 min
  • Episode 28- Troyce provides tips about going back to school

    In this episode of the HAE Speaks podcast, Troyce provides tips about going back to school while having HAE. Troyce provides insight at each level of school, beginning with kindergarten and all the way through college, attending school while at home and also away from home.

    For more information about Hereditary Angioedema please visit HAEA.org

    Thank you to our sponsors:

    BioCryst Pharmaceuticals

    BioMarin

    CSL Behring

    Takeda

    10 min
  • Episode 26- Missy & Sarah discuss the 2022 HAE IN-MOTION®

    The 2022 HAE IN-MOTION® - Step it up for HAE virtual challenge registration is open.  In this episode, hear tips, tricks, and advice from a past participant. Register now at HAEA.org.  For more information about Hereditary Angioedema please visit HAEA.org

    Thank you to our sponsors:

    BioCryst Pharmaceuticals

    BioMarin

    Takeda


    13 min
  • Episode 24- Aysha shares her HAE journey

    Aysha shares her story of living with HAE and describes her journey of finding a diagnosis.

    For more information about Hereditary Angioedema please visit HAEA.org

    Thank you to our sponsors:

    BioCryst Pharmaceuticals

    BioMarin

    Takeda

    26 min

About HAE Speaks

From the publisher's feed

HAE Speaks, a podcast series on important Hereditary Angioedema (HAE) topics. Listen to patients, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with…