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HAE Speaks, a podcast series on important Hereditary Angioedema (HAE) topics. Listen to patients, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with yo... more
FAQs about HAE Speaks:How many episodes does HAE Speaks have?The podcast currently has 64 episodes available.
February 28, 2022Episode 23- Troyce provides tips about insurance in 2022Troyce, an HAEA Health team member, provides information and tips about insurance in 2022.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsBioMarinTakeda...more7minPlay
January 28, 2022Episode 20- HAEA Year in ReviewThe Hereditary Angioedema Association continues to be the galvanizing force advocating and supporting the HAE community. In this episode, the HAEA staff provides a review of 2021 programs and accomplishments.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsIonis PharmaceuticalsTakeda...more27minPlay
January 28, 2022Episode 22- Bobbi shares her HAE journeyBobbi shares her story of living with HAE and describes how the evolution of treatments has vastly improved over the years.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsBioMarin...more7minPlay
January 03, 2022Episode 21- HAEA Meet and Greet EventsIn this episode, Mike and Missy discuss HAEA Meet and Greet events, and answer some important questions. What is an HAEA Meet and Greet? Who should attend? Why should you attend? For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst Pharmaceuticals...more8minPlay
October 27, 2021Episode 19- Jenny's HAE JourneyJenny talks about how she handles having HAE and putting herself first when she is not having the best of days. Jenny is a huge advocate of self care, especially as a person living with a rare disease.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsIonis PharmaceuticalsTakeda...more36minPlay
October 04, 2021Episode 18- Christine and Mike: Capitol Hill CampaignIn this episode Christine and Mike discuss the US HAEA Virtual Capitol Hill Campaign and the importance of advocating for the HAE.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsIonis PharmaceuticalsTakeda...more18minPlay
August 30, 2021Episode 17- Antonio and Jack: HAEA DIY eventsIn this episode of the HAE speaks podcast Antonio and Jack talk about their DIY event. They discuss how the idea started and their game plan to make the event a success.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsIonis PharmaceuticalsTakeda...more10minPlay
July 30, 2021Episode 16: Sonia's HAE JourneyIn this episode of HAE Speaks podcast Sonia discusses her journey with HAE and how much life has changed since diagnosis.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsIonis PharmaceuticalsTakeda...more16minPlay
June 30, 2021Episode 15: Lisa: HAE IN-MOTION®Lisa talks about the HAE IN-MOTION® Event that she and her family participate in. Enjoying walks together as a family, and entering in the weekly photo contest. Also, Lisa talks about promoting the event on Facebook.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsIonis PharmaceuticalsTakeda...more12minPlay
May 28, 2021Episode 14: Chaeli: HAE and TravelChaeli discusses traveling with HAE. She talks about how she prepares to travel by car and plane.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsIonis PharmaceuticalsTakeda...more13minPlay
FAQs about HAE Speaks:How many episodes does HAE Speaks have?The podcast currently has 64 episodes available.