Jamie Holloway joined me to talk about intimacy and share relationship resources.
Webinar with Dr. Karen Anderson and Erika Boulavsky of HD Reach: Sex and Intimacy within the Huntington's Disease Journey
- Huntington's Disease Youth Organization - Relationships
- Huntington's Disease Youth Organization - Talking About HD with Family and Friends
- Huntington's Disease Youth Organization - Being a Partner to a Young Person Impacted by HD
- Huntington's Disease Youth Organization - Potential Outcomes of Not Discussing HD
Global Genes has a blog post dedicated to this topic – it's called Love is in the RARE – and the link is https://globalgenes.org/blog/love-is-in-the-rare-tips-for-love-from-the-rare-disease-community/
They also have a Facebook group called Global Genes RARE disease community (https://www.facebook.com/groups/globalgenesrarediseasecommunity)
www.thecenterforchronicillness.org/programs