Please reach out to Lauren or Katie if you want contact information for the FDA.

Happy Halloween! Melissa and Lauren talk about JHD and how we can adapt for our loved ones for holidays like Halloween.

If you would like to purchase Jen's book, you can do so here.

Author Erin Paterson joined Lauren Holder to talk about their mixed feelings regarding UniQure's recent update.

Dr. Ed Wild joins Lauren Holder to talk about the recent update from UniQure.

If you'd like to learn more about C-Path, please visit their website here.

We want to hear about your experience at HD clinics, including what worked, what didn’t, and what could be improved. We have created a short, anonymous 15-minute survey for patients and caregivers to share feedback.  |

Your feedback can help improve HD care—for you, your family, and the thousands of others navigating this disease. 
 
📊 Once we have enough responses, results will be shared publicly at www.hdpace.org. 
 
Your voice matters! Please take the survey and share it with others in the HD community.  
#HuntingtonsDisease #HDCommunity #PatientVoice #HDPACE 
 
🔗 Take the survey here.

Jenna Heilman from HDYO joins me to talk about the HDCONNECT event that will be happening alongside the Help 4 HD Symposium in FT. Lauderdale, FL, in September. We also discuss more collaborative efforts within the HD community, like joining Critical Path Institute's HD-RSC group.

H. Patton, Erika and Melissa Boulavsky and I attended the HDYO Congress event in Prague together earlier this year. It was H's first HD event, and he decided to record his reactions while there. When we got back, all of us decided to sit down and do our own reaction video to H's reaction videos. It was a lot of fun to do! If you'd like to watch the full video, you can go here. You can also find it on HD Reach's website and YouTube channel.

Lauren and Jamie talk about the upcoming roundtable discussion happening at the Help 4 HD Symposium in September 2025.