Sign up to save your podcasts
Or
Share ”He loves curse words! He’s a typical 15-year-old boy who is living with Canavan disease.” Dylan’s parents talk about raising their happy son.
Share to email
Share to Facebook
Share to X
Share to email
Share to Facebook
Share to X
Or
”He loves curse words! He’s a typical 15-year-old boy who is living with Canavan disease.” Dylan’s parents talk about raising their happy son.
In this month’s episode of On Rare, David Rintell speaks with Cliff and Noreen, the parents of Dylan, a playful, adopted, 15-year-old living with Canavan disease. It’s a heartwarming, funny and poignant conversation about Dylan’s life, the challenges of providing constant care for a severely disabled child and the joy he brings them. As parents of a child with an ultra-rare, fatal genetic condition, Cliff and Noreen live day by day. As Cliff explains, “We focus on what we have now with Dylan and the good times.”
View all episodes
By BridgeBio Pharma
5
2121 ratings
In this month’s episode of On Rare, David Rintell speaks with Cliff and Noreen, the parents of Dylan, a playful, adopted, 15-year-old living with Canavan disease. It’s a heartwarming, funny and poignant conversation about Dylan’s life, the challenges of providing constant care for a severely disabled child and the joy he brings them. As parents of a child with an ultra-rare, fatal genetic condition, Cliff and Noreen live day by day. As Cliff explains, “We focus on what we have now with Dylan and the good times.”
More shows like On Rare
View all
HBR IdeaCast
1,865 Listeners
This American Life
90,535 Listeners
The Joe Rogan Experience
225,916 Listeners
Citeline Podcasts
28 Listeners
The Daily
110,870 Listeners
Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support
140 Listeners
All-In with Chamath, Jason, Sacks & Friedberg
9,252 Listeners
Real Survival Stories
1,258 Listeners