Denise introduces Michael Lievens, whose website strabismusworld.com was one of the very few blogs available when she began her own vision therapy journey. Following Michael’s experience helped her feel less alone as she navigated vision therapy herself.
Michael shares how he developed accommodative strabismus at age three due to undetected farsightedness. Despite having “20/20 vision,” he struggled functionally and ultimately underwent three eye surgeries, which left him with constant double vision. With no resources available in his native Dutch, Michael began searching English-language materials and eventually discovered vision therapy (and Susan Barry's book, Fixing My Gaze), marking a turning point in his journey.
In 2017, Michael founded a Belgian nonprofit organization focused on strabismus awareness and education. One of its major projects was translating Fixing My Gaze into Dutch. He also created the Dutch-language website scheelzien.org, a Dutch YouTube channel, and Facebook communities in both Dutch and English. His organization hosts annual patient meetups, inviting VTODs (vision therapy optometrists) to share information and connect directly with patients.
Proceeds from the Dutch translation are now being rolled forward into Michael’s latest project: translating Fixing My Gaze into French. He is also developing a French chapter of his organization to serve the French-speaking regions of Belgium, France, and other French-speaking territories. Michael is deeply passionate about sharing accurate, hopeful information about strabismus and available treatment options.
This episode is an honest and thoughtful look at long-term vision challenges, informed choice in care, and the power of patient-led advocacy.
Content note: This episode includes discussion of mental health struggles and a past suicide attempt.
Support the French translation of Fixing My Gaze
https://www.indiegogo.com/projects/help-to-translate-fixing-my-gaze-into-french
Website
https://strabismusworld.com
Facebook Community
https://www.facebook.com/search/top/?q=strabismus%20world
Connect with Denise Allen:
Website: https://healingmysight.com
Healing our Sight Facebook Group: https://www.facebook.com/profile.php?id=100063570817348
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