In this powerful episode of Boundless B, host Kai M Sorensen speaks with Alison Betty, longtime public policy expert and co-founder of alignco, about the critical role of advocacy in healthcare—particularly for individuals impacted by Hemophilia B.

They explore how healthcare policy is shaped, why misinformation is a growing challenge for patients and providers alike, and how storytelling can cut through the noise to drive real change. Alison stresses that everyone has a story worth telling, and that even small efforts—like calling your representatives—can make a big difference.

Whether you're navigating Medicare, Medicaid, the ACA or private insurance, this episode offers guidance, inspiration, and a call to action for anyone ready to engage in meaningful patient advocacy and community engagement.

This episode is made in partnership with Balancing Life’s Issues.

Additional Resources:

1. alignco || Alison Betty
2. Call your Rep, U.S. Capitol Switchboard: 202-224-3121
3. https://www.protectcoverage.org/members
4. The Coalition for Hemophilia B
5. Balancing Life's Issues

Key Takeaways:

1. Advocacy is about using your voice—for yourself and others.
2. Everyone’s story matters, even if it’s not dramatic.
3. Misinformation in healthcare creates confusion; seek out multiple sources.
4. Policy changes often happen in small, impactful steps.
5. Personal stories create emotional connections that influence decision-makers.
6. Effective advocacy is a dialogue, not a monologue.
7. Staying informed on Medicare and Medicaid changes is critical.
8. Community support amplifies your voice and strengthens the message.