Boundless B Podcast

When someone dies by suicide, their story doesn’t end. It changes shape and lives on in the people who loved them. In this series finale, Joseph talks about how grief after suicide is different, what survivors wish others understood, and how sharing stories can help people heal.

This conversation isn’t about being for or against guns. It’s about lowering risk during the moments when someone isn’t fully themselves. Joseph explains why access matters in a crisis, which steps are practical and temporary, and how to talk about safety in a way that shows love rather than suspicion.

“Can’t complain.” Money worries, health problems, caregiving and job insecurity rarely arrive as one big blow. They build up quietly. Joseph looks at how shame keeps people silent, and how long-term stress wears down hope slowly and then all at once.

Many people who are struggling aren’t in a clinical crisis. They’re exhausted. Joseph talks about compassion fatigue, the constant stream of stress and bad news, and why feeling “done” often sounds ordinary long before it sounds alarming.

We like to believe we’d see it coming. Sometimes the first sign is the sound of sirens. Joseph starts with the recent loss of a high school senior in a quiet neighborhood. He then looks at why “I never would have thought” is one of the most common things people say after a suicide, and why being close to someone doesn’t mean we’d know they were struggling.

What does it mean to finally be seen — as a woman, as a mother, after decades of being told you couldn't possibly have this disease? And what does it mean for a child growing up now, in a community where a scraped knee doesn't have to mean fear?

In Part 2, host Kai Sorensen sits down with the Coalition's CEO and Executive Director to unpack the "Seen. Believed." campaign and the growing number of women only now getting diagnosed with hemophilia B — including one mother whose full, twenty-five-year journey to diagnosis gets its own spotlight in Part 3. From there, the episode turns to the next generation: a hands-on lesson in self-infusion, a first-time family finding community for the first time, and a joyfully chaotic closing stretch with the kids who are growing up with more options than any generation before them.

What does it take to uproot your life for a weekend — leave work, leave school, leave the routines that hold a family together — and fly to Las Vegas for nothing but community and education? This year, over eleven hundred people did exactly that.

In Part 1 of this three-part series, host Kai Sorensen walks the halls of the Coalition for Hemophilia B's 2026 Symposium, capturing the reunions, the quiet courage, and the everyday advocates who make this weekend feel less like a conference and more like a family reunion. From a president returning after a liver transplant kept him away last year, to a mental health wellness station serving both English- and Spanish-speaking families, to a sixteen-year-old already lobbying state legislators on his brother's behalf — this episode is about what it means to come home to a community built on shared experience.

New York State Senator Joseph P. Addabbo, Jr. has been one of the most consistent allies our community has in Albany. He sits down with Kai to talk about how one constituent meeting changed the way he sees bleeding disorders legislation, why step therapy reform matters, what his Java with Joe coffee meetings are really like, and the message of hope he carries into a tense political moment.

In this practical and reassuring episode of Boundless B, Kai M Sorensen speaks with Dr. Douglas Hutchinson, a practicing dentist and father of a son with severe hemophilia B, about a topic many families quietly worry about: dental care. Together, they unpack why brushing, flossing, and dental visits can feel intimidating in the bleeding disorders community — and why avoiding them can create bigger problems down the road.

Dr. Hutchinson explains that bleeding gums often point to inflammation, not danger, and shares simple ways families can build safe, effective oral hygiene habits. He also offers guidance on how to talk with your dentist, when your hemophilia treatment center should be involved, and why prevention is one of the best tools families have.

What if the biggest barrier to care isn’t access — but the words we use?

In this powerful and deeply personal conversation, AMBER FEDERIZO APRN, DNP shares how language, stigma, and outdated clinical assumptions continue to shape — and often limit — care for women and girls with bleeding disorders.

Drawing from both her clinical expertise and a life-threatening personal experience, Dr. Federizo challenges long-standing terminology like “carrier,” exposes how bias shows up in emergency care, and offers a clear path forward: better questions, better language, and stronger advocacy.

This episode is about more than medicine. It’s about being heard.

From rural Nevada to national clinical trials, Amber Federizo is helping redefine what equitable care looks like — and why it’s long overdue.