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Listen to families, patients, physicians, researchers, foundations, and others speak about their experience with DIPG. We aim to raise awareness by sharing different perspectives of a similar story an... more
FAQs about Hear the Rare:How many episodes does Hear the Rare have?The podcast currently has 15 episodes available.
September 28, 2020Episode 3: Interview with Dr. Nalin GuptaEpisode 3 features Dr. Gupta, the chief of Pediatric Neurosurgery at UCSF Benioff Children’s Hospital. He joins us today to talk about his experience as a neurosurgeon, his research with DIPG/ DMG, and biopsies. More information about Dr. Gupta can be found on our website at www.heartherare.com!...more22minPlay
September 09, 2020Episode 0: My StoryHello, welcome to Hear the Rare! This podcast was started with the mission of creating a platform with easily accessible information to the various perspectives on DIPG. We will be interviewing doctors, researchers, patients, family members, and more to hear about their story. However, before we get started I, Rachna Prasad, wanted to share with you my own story with DIPG and how my brother battled this deadly disease. Check out the (unofficial) first episode of Hear the Rare!...more12minPlay
September 05, 2020Episode 2: Interview with Jace WardEpisode 2 features our first interview with Jace Ward! He is a 21- year- old senior at Kansas State University, a fierce DIPG advocate, and a DIPG patient. Get to know more about Jace and his experience with DIPG in Episode 2. Links with more information about Jace and his journey can be found at heartherare.com under Podcasts, Episode 2....more27minPlay
September 05, 2020Episode 1: What is DIPGThis is a brief introduction to what DIPG is for those of you who may have never heard about it. Before the diagnosis of a child, sibling, extended family member, or friend many of us didn't know what this deadly disease was either. Listen to episode 1 for more information!References can be found at heartherare.com under Podcasts, Episode 1...more10minPlay
May 25, 2020Episode 0: My StoryGet to know Rachna Prasad, the creator of this podcast, and her experience with DIPG....more13minPlay
FAQs about Hear the Rare:How many episodes does Hear the Rare have?The podcast currently has 15 episodes available.