For more information about HD Reach and the upcoming education day and webinars, please visit www.hdreach.org

Chris Brown joins me for our very first episode of the HD Uncut series.

Nichole Goble (she/her) is the current Director of Community Initiatives at Caregiver Action Network. She has been with the organization since 2017. As part of her role as Director of Community Initiatives, she manages activities/programs with non-funding community partners and moderates caregiver roundtables and learning collaboratives. She also presents to various community groups on a variety of topics related to caregiving and the resources and supports provided by CAN. Nichole brings a unique perspective to her role, being an individual with a disability that has been on both sides of the caregiving relationship. She also has a background in disability advocacy and experience working with youth and families. Please visit the Caregiver Action Network website at https://www.caregiveraction.org

Love in HD

Abby shares her story of accepting HD in her life

You can find Savannah on Instagram. Her handle is @lifeandlosswith_sav

Erika Boulavsky and I talk about our recent experience at the NCACP Conference

Please visit the Honestly HD website by going to www.honestlyhd.com Nina DeLucia is the Director of Consumer Marketing for AUSTEDO at Teva Pharmaceuticals.  She has worked in the life sciences industry for over 20 years for Pharmaceutical companies as well as for healthcare platforms such as WebMD and ePocrates.  She has a passion for patients and care partners and her goal is to represent their voices in her everyday work.  When she is not working, she can be found spending time with family and friends, training and racing for triathlons, or volunteering with her local youth group. She can be reached at [email protected].

Diagnosis and Disability

Crystal Collinsworth joins me to discuss her nonprofit, The Wishing Tree for HD.