"Bri" joins me to discuss what it's like being gene-positive for HD and a scientist doing HD research.

End of Life: The Caregiver Perspective

We are Stronger Together

Please contact Jenna Heilman if you're interested in learning more about the HDYO Ambassadors program.

Please visit hdgenetics.com for more information.

HD Uncut with Gina

As a way to wrap up HD Awareness Month, let's #LightItUp4HD on social media tomorrow! Share a video or photo of you with blue and/or purple glow sticks tomorrow. Make sure to use #LightItUp4HDandJHD and/or #2024LightItUp4HD. If you want, also share why you're lighting it up for HD/JHD.

Recap of my visit with UniQure for HD Awareness Month

Thom Hart is the Director of Outreach with the Critical Path Institute (C-Path), which is a nonprofit created by the FDA to "improve the drug development process. It operates as a neutral third party to enable scientists from the regulated industry and international regulatory agencies to work together with scientists from academia and patient groups to improve the drug development process. (Wikipedia)"  You can visit their website here: https://c-path.org/ If you are interested in contacting Thom directly, please reach out to Lauren Holder at [email protected], and she will connect you.

For more information about the HDYO Ambassadors program, please visit www.hdyo.org.