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Taryn Jarboe was trying to console her 8 month old daughter June in June of 2021 as she had not been feeling well, and while examining her body, found a lump that was diagnosed as Neuroblastoma. June was supposed to go through an 18 month treatment program but while she was 10 months into her protocol, June developed a stomach bug and just before the radiation part of her treatment was supposed to begin, her doctors gave June scans which found that her Neuroblastoma had relapsed. Very unfortunately, there was only a 5 percent chance that June would survive this relapse and she passed away on March 13th of 2022.
Erica Campbell received her degree in Accounting from William and Mary and her MBA from Duke and then, years later, with advice from her mom decided to leave the business world to try and find her true passion, which turned out to be running a non-profit which concentrated on Pediatric Cancer. Since May of 2017, Erica has found this passion by being the Executive Director of the Pinky Swear Foundation which has worked with over 3000 families who are directly dealing with a Pediatric Cancer battle.
The Bowel and Bladder issues that Emily Stenson's daughter Charlie was suffering from when she was 2 years old in early 2022 were constantly diagnosed as constipation, until she turned 3 and finally a 5 1/2 inch long Mass on her abdomen that had already spread to her liver was found. Charlie's correct diagnosis was a Stage 4 Mixed Germ Cell Tumor and after some very difficult treatment, she was declared to have No Evidence Of Disease in January of 2024. Charlie relapsed in August of 2024 but was once again declared to have No Evidence of Disease in December of 2024, and is doing well enough so that she was as able to begin school in early February.
It has been 6 1/2 years since Gwen Garro's son Guy was diagnosed with Osteosarcoma when he was in kindergarten in 2018. Guy has gone through many difficult surgeries and procedures since his diagnosis and has been able to lead quite an amazing life as he is now a 12 year old 6th grader. A very talented musician with a love for the theatre led him to being able to perform a song by Elton John entitled "I'm Still Standing" in front of 3000 people at Radio City Music Hall and Guy repeated that performance on January 30th of this year at the New York Rangers Casino Night Fundraiser.
After being diagnosed with the Pediatric Brain Cancer Chloroid Plexus Carcinoma in November of 2021, Hudson Gray's doctors had given him a 20 percent chance of surviving 5 years . Now, more than 3 years later, as Hudson is approaching his 5th birthday. his chances of surviving 5 years has gone up in dramatic fashion to 70 percent. Hudson's mom Adisyn will talk about everything that Hudson has gone through to get to this point, including a nearly 7 month stay at St. Jude Children's Research Hospital.
When Rene Michael's 6 year old daughter Alicia was complaining of a backache in December of 2001, little did she know that her backache would lead to a diagnosis of a Peripheral Nueroectodermal Tumor which is a Bone Cancer closely related to Ewings Sarcoma. During her inpatient treatment, her mom Rene tells the story of Alicia deciding to find a way to donate money to the Pediatric Cancer patients and their families who were on her oncology floor. Thus, the Honeysuckle Foundation was born, inspirationally started by Alicia and officially started by Rene who has been the director of this foundation since its inception in late 2002. This foundation focuses on the all important psychosocial aspects of Pediatric Cancer. Today Alicia is approaching her 30th birthday, is married, and living her best life possible.
After 4 year old Jace Serwalt was having trouble breathing early on Christmas morning in 2023, his parents Ashley and Kyle took him to his local hospital where he would be diagnosed with Croup, and then Pneumonia. Shortly after that diagnosis, as Jace was getting ready to go home, another doctor saw Jace, thought that he was looking very pale , and ordered a blood test. Not long after that, Jace was given his correct diagnosis which was B Cell Acute Lymphoblastic Leukemia. Ashely will talk about the road that Jace has taken since then and how he is doing, a little more than halfway through his treatment regiment.
Nancy and Richard Whipple's son Alexander spent 250 days as an inpatient at Tufts Floating Hospital for Children beginning in 2010 as a result of his Neuroblastoma diagnosis in March of 2010 when he was 8 months old. Alexander battled for 13 months with his form of Pediatric Cancer and 2 of his stays lasted for 46 and 38 days respectively. Alexander passed away on April 1st of 2011, after a 16 hour surgery which did not work out as planned.
Crystal Conroy's son Ashton was diagnosed with a very rare form of Pediatric Leukemia known as Acute MegaKaryblastic Leukemia or AMKL in March of 2024 when he was 10 1/2 months old. Ashton has been at Boston Children's Hospital for the past 65 days along with Crystal as the goal is to get him to remission so that he would be able to receive a Bone Marrow Transplant. That goal has not been reached and in fact, his doctors just confirmed that Ashton has had a relapse.
What was thought to be a sprained ankle became a completely different situation for 10 year old Rachel Webster when she was diagnosed with Ewings Sarcoma. Rachel just turned 13 and is doing as well as possible after her battle and living as good of a life as she can. Her mom Marcy will talk about her daughter and the way that she has been able to overcome many obstacles as she now has No Evidence Of Disease.
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