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After complaining of blinding headaches in early May of 2020, Chelsea Johnson took her 6 year old daughter Ansley to her doctor and shortly thereafter she was diagnosed with the heartless Pediatric Brain cancer DIPG. Chelsea will talk about the 10 month Clinical Trial that Ansley went through at the University of Florida and after being dismissed from the trial, she was then given Natural Remedies which helped to extend her life by a few months, before her passing in July of 2021. Chelsea will talk in detail about her thoughts on Natural Remedies and also will talk about her non-profit ARMY FOR ANSLEY.
After being diagnosed with Neurofibromatosis 1 which can cause tumors to form, Addie Gould was diagnosed with an Optic Pathway Glioma, which is a form of Pediatric Brain Cancer. This caused great damage to Addie's eyesight in her left eye. On today's podcast Addie's mother Jillian will talk about Addie's treatment ordeal which included a 60 week Chemotherapy cycle. Jillian will also discuss this week's Pan Mass Challenge Bicycle event, in which Addie will be the Pedal Partner for Team Kermit, under the captaincy of Steven Branfman, who lost his son Jared to cancer in 2005.
One June 13th of 2020 Summer Stumpf heard the words that no parent should ever hear, namely that her 11 year old son Grayson had DIPG. Over the next 377 days Grayson fought his battle against this dreaded disease before passing away on June 25th of 2021. Summer will talk about her beloved son and how she started her non-profit LIVE GRAY'S WAY which was set up in memory of Grayson and the way he lived his way too short life. This non-profit is helping in the fight against DIPG and Summer spends most of her time on Live Gray's Way and in helping other parents who have been through the same situation as did the Stumpf family.
Acute Lymphoblastic Leukemia is the form of Pediatric Cancer that has the highest cure rate, with its percentage hovering at around 90 percent. Unfortunately these statistics did not help Keaton Barro᷈n. On today's podcast Keaton's mother Holly will talk about her son's 5 1/2 year battle against this disease which included 2 relapses before his passing at the age of 8 in May of 2018. Holly will also discuss her Keaton's Kindness Foundation which Keaton himself actually started along with his friend Kay Tanger 4 months before he passed away. The word KINDNESS is such an integral part of Holly and her husband Luke , that they were chosen by Parents Magazine AMERICA'S KINDEST, FAMILY in 2021.
On June 13th of 2020 Summer Stumpf heard the words that no parent should ever hear, namely that her 11 year old son Grayson had DIPG. Over the next 377 days Grayson fought his battle against this dreaded disease before passing away on June 25th of 2021. Summer will talk about her beloved son and how she started her non-profit LIVE GRAY'S WAY, which was set up in memory of Grayson and the way he lived his way too short life. This non-profit has raised 1.6 million dollars to help in the fight against DIPG and Summer spends most of her time on Live Gray's Way and in helping other parents who have been through or are going through the same situation as did the Stumpf family.
After her mother was in hospice care and passed away in 2018, Chandra Heyman decided to start a Non-Profit called TALKING ANGELS. Her non-profit provides Comfort Blankets to both pediatric and older cancer patients as one way to cope with the pain that they go through during their individual treatments. Chandra has distributed 4000 blankets to these patients and hopes to continue to help others who have to go through such a difficult process.
Meg Landry took a simple photograph of her daughter Lyla when she was 18 months old and noticed a yellowish ring around her right eye. Meg took Lyla to her pediatrician and a short time later she was diagnosed with Retinoblastoma. Lyla is now 4 years old and has no evidence of disease. Meg will talk about Lyla, and will also discuss her non-profit ART FOR EYES whose mission is to raise money to make sure that as many kids as possible have the opportunity to purchase a prosthetic eye.
Destiny Flood- De Jesus was an 11 year old middle school student when she failed an eye examination that was give to her at her school. Shortly thereafter, Destiny was diagnosed with the Eye Cancer Retinoblastoma which occurred in her right eye. Destiny will talk about the difficulties that she went through during this period and afterwards, and the emergency reconstructive surgery that she underwent 5 years ago. This surgery brought back memories of her own cancer fight which took place 20 years ago and Destiny then decided to write a book called A LITTLE SUPERHERO FIGHTS CANCER. This book was recently published as Destiny is now taking her place as a Spokeswoman for this difficult form of Pediatric Cancer.
In the late summer of 2019 Molly Oldham had been suffering from migraines, vomiting, and feeling lethargic, but she was still planning on leaving for her Freshman year at the University of North Carolina Greensboro where she was to study Musical Theatre. Unfortunately she was diagnosed with Anaplastic Emendymoma which is a form of Brain Cancer. Since her diagnosis, Molly has had 3 brain surgeries , many radiation treatments, and has suffered from side effects including Grand Mal Seizures. Molly however continues to live her best possible as she has sung the National Anthem twice at at Florida Panthers Hockey Games, performed as a professional in a play, and had her inspiring story told on the View. Molly has also found time to advocate for others in the cause of AYA or Adolescent and Young Adult Cancer.
Amy Samsury's daughter Danielle was diagnosed with High Risk Acute Lymphoblastic Leukemia when she was 7 years old in 2011. Danielle is now 10 years past her successful fight against this Pediatric Blood Cancer and is about to begin her Masters program in Athletic Training at Marshall University. Amy will talk about what her daughter went through including the trauma of losing her hair 5 times during treatment. Amy will also discuss her own role at the Rally Foundation and how important this Foundation has been to both her and Danielle.
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