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On today's podcast Dr. Elias Sayour will talk about his goals to help in the fight to cure the most aggressive forms of Pediatric Brain Cancer. Dr. Sayour will discuss some of the most important topics in this fight including overcoming the Blood Brain Barrier , the dynamics of Brain Cancers as they respond to treatment, how Immunotherapy can be such an important addition to help win these battles, and the optimism that he shares as to the future for these kids who are dealing with such an unfair situation.
Esther Earl was diagnosed with Thyroid cancer at the age of 11 while living in France. On today's podcast her mother Lori will discuss moving their family of 7 to the Boston area so that Esther could receive more advanced treatment at The Dana Farber Cancer Institute and Boston Children's Hospital. Esther's family was told that her cancer was incurable and she passed away on August 25th, 2010 when she was 16 years old.
During her cancer battle Ester became an internet sensation by creating a You Tube Channel called Cookie Monster 4 and creating many videos for her peers to see. After her passing Esther's journals were made into a New York Times Best Seller called THIS STAR WON'T GO OUT : THE LIFE AND WORDS OF ESTHER EARL, and a highly acclaimed novel written by John Green and a subsequent movie called THE FAULT IN OUR STARS were inspired by Esther's amazing life.
Esther Earl was diagnosed with Thyroid Cancer at the age of 11 while living in France. On today's podcast her mother Lori will discuss moving their family of 7 to the Boston area so that they could get more advanced treatment at the Dana Farber Cancer Institute and Boston Children's Hospital. Esther's family was told that her cancer was incurable and she passed away on August 25th of 2010 when she was 16 years old.
During her cancer battle Esther became an internet sensation by creating a You Tube Channel called Cookie Monster 4 and creating many videos for her peers to see. After her passing Esther's journals were made into a New York Times Best Seller called This Star Won't Go Out, and a highly acclaimed novel written by John Green and a subsequent movie called The Fault In Our Stars were based on Esther's amazing life.
On March 2nd of 2022, 22 year old Joe Thompson was diagnosed with DIPG , after his first diagnosis of Vertigo turned out not to be the case. Joe will talk about how the past 14 months have been as from the beginning he has looked at his situation in the most positive light possible. Joe has turned his focus which after graduating from the University of Alabama was on his chosen career path, to one that concentrates on serving others.
After running a low grade fever for over a week that was thought to be a virus, Stephanie Yost Was diagnosed with Acute Myeloid Leukemia at the age of 14 in 2013. Stephanie will talk about her 3 Chemotherapy treatments, her Stem Cell Transplant, and her decision to become a Child Life Specialist on today's podcast.
Ava Blaser was 3 years old when she was diagnosed with Stage 5 Bilateral Wilms Tumor in 2011. Her sister Emma, who is 6 years older than Ava will talk about her sister's ultimately successful fight against this form of Pediatric Cancer in which Ava relapsed when she was 10, but has now been cancer free for more than 4 years.
Emma took it upon herself at 16 years old when Ava relapsed to become a passionate and compassionate advocate for the cause of Wilms Tumor and Pediatric Cancer as Ava's sibling. Emma is now a spokeswoman for the Arms Wide Open Childhood Cancer Foundation and has spread her message to many siblings who have gone through what Emma and Ava have gone through together.
After feeling listless , having little appetite, and experiencing arm pain, 2 year old Grant Gossling was diagnosed with Stage 4 Neuroblastoma in June of 2014. On today's podcast, Michael and June Gossling will talk about their beloved son who fought a 22 month battle against this form of Pediatric Cancer before passing away on March 28th of 2016. The Gossling's will also discuss their major focus on Pediatric Cancer advocacy, aligning themselves with the Rally Foundation and the company Oncoheroes Biosciences, as through their Grant Grace Foundation they wanted to help fund an organization that wants to have cutting edge medicines at the bedsides of these kids as quickly as humanly possible.
Terry Cechin is the Founder, President and Chief Operating Officer of the Desi Strong Foundation. Terry started this foundation in honor of his daughter Desi who passed away from Stage 4 High Risk Neuroblastoma in March of 2016 at the age of 6. Terry will be joined on the podcast by Jessica McWhirter who is the Vice President of the Foundation. This foundation focuses on providing dolls to Pediatric Cancer patients who love them for their companionship and for the therapeutic tools that they provide.
Terry Cechin is the Founder, President, and Chief Operating Officer of the Desi Strong Foundation, which he started in honor of his daughter Desi who passed away from Stage 4 High Risk Neuroblastoma in 2016. Terry will be joined on today's podcast by Jessica McWhirter who is the Vice President of the Foundation. They will talk about Desi and about the main focus of the foundation which is to donate dolls to Pediatric Cancer patients who use these dolls for both companionship and therapy.
Nicole de Lara Puente has been the Chief Executive Officer of the Live Like Bella Foundation since 2017. This foundation was started in honor of Bella Rodriguez- Torres, who passed away in March of 2017 after a 6 year fight with Rhadbdomayosarcoma. Nicole will talk about Bella and this foundation, which in conjunction with the State of Florida started the Live Like Bella Pediatric Cancer Initiative, which has now raised over 30 million dollars, and has funded 58 multi centered clinical trials.
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