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10 year old Charli Martin hurt her shoulder while competing in the New York State School Wrestling Tournament when she was in 5th grade in 2023. While going for Physical Therapy, Charli noticed a lump on her neck and after taking antibiotics and still in therapy, the pain in her shoulder did not go away. Charli then had this lump biopsied and the result was her diagnosis of High Risk B Cell Acute Lymphoblastic Leukemia. Charli has now completed her 8th grade year and at 13 years of age is back playing sports and living the life of a normal and healthy 13 year old teenager.
Gwen Mysiak worked in the field of Public Broadcasting for 19 years in Buffalo and during that time, her friend's cousin Andrew Pawlak was 13 years old and in 7th grade when he was diagnosed with a form of Pediatric Cancer and passed away 2 years later. Not too much time went by after that before Gwen switched carriers to become the Punt Pediatric Cancer Collaborative's Executive Director in 2012. This Collaborative focuses on 6 major programs to help families deal with a Pediatric Cancer situation, with a special emphasis on their bereavement program.
Sydney Belsher has been through a great deal in her still very young life as she is 12 1/2 years old, which started with stomach issues almost from her birth in the fall of 2013, and then her diagnosis of Infantile Acute Lymphoblastic Leukemia which came when she was 6 months old in April of 2014. Right after her diagnosis Sydney's lifespan was very uncertain as her doctors feared she would have a stroke and may not survive. This did not happen thankfully but Sydney has battled both physical and mental issues over the years . Fortunately Sydney has survived all of her issues and is trying to live her best life possible.
When she was 4 months old on November 14th of 2023, Kalia Arrayan was diagnosed with High Risk B Cell Acute Lymphoblastic Leukemia. This diagnosis came as a complete shock to her parents Heather and Casey who did not see any clear symptoms before a routine checkup showed a lump on her spleen. Kalia went through a very difficult treatment process for the next 8 months before she underwent a Bone Marrow Transplant with her 11 year old brother being her donor. Kalia has been doing much better over the past nearly two years as she approaches her 3rd birthday.
Marissa Metcalf does not remember many details from her treatment during her battle with Acute Lymphoblastic Leukemia which took place in 2010 when she was 3 1/2 years old. What she does know, now that she is 19 years old and looking at possible careers, is that this form of Pediatric Blood cancer has affected her in different ways as she approaches 20 years of age, and wants to help others who have been diagnosed with cancer by becoming an Oncology Nurse, which would be a great accomplishment for her and a good thing for her future patients.
Lily and Sebastian McGrath's 2 1/2 year old son Bryson was first thought to have a Wilms Tumor before his Pediatric Cancer diagnosis was changed to Stage 4 Neuroblastoma in the early days of 2023. Lily and Sebastian had to put up with a number of more than questionable medical decisions during Bryson's fight and also had to endure the final days of Bryson's life who while in Hospice Care, was promised 24 hour round the clock availability should they be needed and when they were needed the most, they were nowhere to be found. Lily also had to watch after Bryson passed away while one of the Hospice nurses attempted to rip off all of Bryson's dressings, instead of treating her son with the kid gloves that he more than deserved.
Cherie Colbom is not only an expert Nutritionist, she has written 35 books, including her Juicing For life which has sold 2 million copies and her current book which became available on April 28th entitled The Truth About Seed Oils. Cherie will talk about how Seed Oils can have negative health effects for consumers and will discuss the link between Seed Oils and Pediatric, Adolescent and Young Adult, and Adult Cancer. Cheire has been on television many times discussing this issue and has also written many articles on this subject.
Brody Bailey is one of possibly two children in the World who have been born with a Congenital Diaphragmatic Hernia and then diagnosed with Neuroblastoma. Lauren and TJ Bailey are Brody's parents and will talk about his journey with the good news being that he is more than 3 years old and is doing as well as possible health wise. The Bailey family has received great support from their Township of Deptford New Jersey community, especially from Rich Nardiello who is the head of the great Pop Pop Custom Cars Non-Profit and a wonderful advocate for the cause of Pediatric Cancer.
Jordan Belous has always had a soft spot for Pediatric Cancer Patients and when she was 16 years old in 2015 she issued a "challenge", much like the Ice Bucket Challenge, when she created a video that went viral by dancing for 14 seconds to the song WHIP/NAE NAE by Rapper Silento to either Dance or Donate. More than 7000 people took up her challenge and donated more than $100,000 to Memorial Sloan Kettering to fight the cause of Pediatric Cancer. That was the birth of her WHIP PEDIATRIC CANCER Non- Profit. Since that time Jordan has personally developed long standing and iron clad friendships with more than 300 Pediatric Cancer patients and has done extraordinary work for these kids, their families and the cause of Pediatric Cancer.
Matt Giegerich has been the Chief Executive Officer of The Matthew Larson Foundation for Pediatric Brain Tumors for the past 18 months. This foundation, also known as the Iron Matt Foundation, was started by young Matt's parents Kelly and Greg after Matt passed away from the Pediatric Brain Cancer Choroid Plexus Carcinoma in 2007, when he was 7 years old. This Foundation focuses on helping families with financial assistance as well as focusing on raising money to award Grants to researchers who are trying to help solve the many issues that are involved with Pediatric Brain Cancer. This Foundation has now awarded over 100 Grants to researchers in the United States and Canada.
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