In this episode, we speak with Dr. Matthew Matasar of Rutgers Cancer Institute, and Elizabeth Stone, who was diagnosed with Hodgkin lymphoma in 2012. 

Dr. Matasar discusses the current and emerging treatments for Hodgkin lymphoma. Elizabeth shares her story of resilience as a refractory patient throughout multiple treatments, and how she has navigated a life of hardships, joy, love and friendship while in a highly immunocompromised state.

Mentioned on this episode: 

Additional LLS Support Resources: 

Support for this episode provided by Affimed Inc.

The post Patient-Doctor Perspectives: Resilience in Relapsed/Refractory Hodgkin Lymphoma first appeared on The Bloodline with Blood Cancer United Podcast.

Cliff Davis was only sixteen weeks away from graduating medical school when he received the shocking news that he had Hodgkin Lymphoma.  His path has been unique and his story will inspire you.

Cliff has a story that is familiar to many patients –a cancer diagnosis that resulted in pausing his schooling and career aspirations. In this case, going back to finish medical school proved much more difficult than expected when he took a leave of absence. Be sure to tune into this incredible story of resilience, as Cliff never gave up on the one thing he felt like he was meant to do – while learning so much about the world of patient care along the way. 

Mentioned on this episode: 

Additional LLS Support Resources: 

Support for this episode provided by: Genentech, Inc. & Biogen and Merck & Co., Inc.

The post Continuing The Dream: An Inspiring Story of Resilience first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak with Chelsea Brickham, a transgender model, actress, and professional cosplayer who was diagnosed with Stage II Hodgkin lymphoma in 2013. In this episode, Chelsea shares with us what it was like to go through cancer as a transgender female, the reaction from her family and friends, and how she maintained her femininity during treatment. Since her treatment, she has been active in spreading awareness of LGBTQ+ issues at comic conventions and on social media.

Mentioned on this episode:

• Hodgkin Lymphoma
• Chelsea on TikTok
• CancerCon by Stupid Cancer
• LLS Community
• Comic-Con

Additional LLS Support Resources:

• Information Specialists 
• Young Adult Resources
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by Seagen.

The post Making Your Mark: A Transgender Cancer Patient Story first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for Part Two of a special two-part series as we speak to Dr. Christabel Cheung, a two-time Hodgkin Lymphoma Survivor. In this episode, Christabel talks about her extraordinary struggles as a young adult with cancer, such as living alone without family support and having high healthcare costs. She also delves into the health disparities, racism and racial insensitivity that BIPOC (Black, Indigenous, People of Color) patients experience. Be sure to listen to Part One first to hear more about Christabel’s journey with Hodgkin Lymphoma as a Young Adult.

Mentioned on this episode:

• Dr. Brad J. Zebrack
• Elephants and Tea Magazine
• Jade Gangster
• Stupid Cancer
• Hodgkin Lymphoma (HL)

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

Support for this episode provided by Seagen, Inc.

The post Hodgkin Lymphoma Part 2: Struggles of a Young Adult with Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for a special two-part episode as we speak to Dr. Christabel Cheung, a two-time Hodgkin Lymphoma Survivor. In Part One, Christabel tells us about her longtime journey with lymphoma, including a relapse and going through the second diagnosis during a global pandemic. She shares her struggles of not only a diagnosis, where she is in the small percentage that didn’t respond to first-line treatment, but also going through cancer as a racial minority and young adult. Be sure to tune into Part Two as she delves more into health disparities for young adults and BIPOC (Black, Indigenous, People of Color) communities.

Mentioned on this episode:

• Dr. Brad J. Zebrack
• The Impact of Cancer on Young Adults Video Clip featuring Dr. Brad Zebrak
• Dr. Ibram X. Kendi
• Brian Goldman
• Jade Gangster
• CancerCon
• Hodgkin Lymphoma (HL)

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

Support for this episode provided by Seagen, Inc.

The post Hodgkin Lymphoma Part 1: Struggles of a Young Adult with Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

Dr. Hoffman from the Sylvester Comprehensive Cancer Center, University of Miami Health System in Miami, Florida speaks to us about Hodgkin lymphoma and its interesting history.  Thankfully, Hodgkin lymphoma is now highly treatable and for the majority of people curable, but not for all.  Dr. Hoffman talks to us about what makes Hodgkin lymphoma unique, as well as discusses emerging therapies and long term and late effects for both young adult and older patients diagnosed with Hodgkin lymphoma.

Mentioned on this Episode:

• Lymphoma
• Hodgkin Lymphoma
• Clinical Trials
• Radiation therapy
• Chemotherapy

Additional LLS Support Resources:

• Information Specialists
• Information & Support Services
• Clinical Trial Support Center
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations
• Young Adults

Support for this episode provided by Seattle Genetics.

The post Your Questions Answered About Hodgkin Lymphoma first appeared on The Bloodline with Blood Cancer United Podcast.

Listen in as Guest Speaker, Shona Lovie, from The Leukemia & Lymphoma Society (LLS) speaks with Heather Juliet, a young adult survivor and an attendee onsite at CancerCon 2018 in Denver, Colorado. Heather knew something was wrong for many years but each time she went to the doctor she was met with ‘you’re fine’, ‘you’re too young’, or ‘you’re too healthy’. When symptoms became severe, she was diagnosed with stage 4 Hodgkin lymphoma. Being in the health and wellness field and describing herself as ‘extremely healthy’, she was shocked by the news but also relieved to know that there was finally an explanation for the way she had been feeling. Realizing that finding survivorship resources was incredibly challenging, she was inspired and motivated to be that source for other survivors. She understands how it feels to be diagnosed and to have your life change so quickly and not knowing where to go first. She also shares how she made ‘finding herself again’ her goal by adjusting her mindset and intentionally creating a happy space around her. Taking yoga and seeing the impact it had on her own life, she decided to get certified so that she too can be a mentor and advocate for other cancer survivors.

CancerCon is the annual, international gathering, organized by Stupid Cancer, that brings together patients, survivors, caregivers, advocates, and activists, along with oncology team professionals and the healthcare industry through a shared goal of improving young adult cancer health outcomes.

Mentioned on this episode:

Additional LLS Support Resources:

Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of future episodes.

Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists.

The post Live at CancerCon with Heather Juliet: Young Adult Advocate & Mentor first appeared on The Bloodline with Blood Cancer United Podcast.

Join us on this episode as Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with Dr. Pallawi Torka, Assistant Professor of Oncology and Co-Program Director of the Hematology/Oncology Fellowship Program, at Roswell Park Comprehensive Cancer in Buffalo, NY. Dr. Torka speaks about her experience diagnosing and treating Hodgkin lymphoma and why shared decision making is necessary for patients to better understand their disease and treatment options. Dr. Torka explains the standard of care, emerging therapies and when a stem cell transplant may be considered. She also shares her excitement and optimism in the field of lymphoma as new data continues to develop, hopefully leading to increased survival and improved quality of life.

As mentioned on this episode:

Additional LLS Support Resources:

Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode.

Support for this program provided by Seattle Genetics.

The post A Bright Future for Hodgkin Lymphoma first appeared on The Bloodline with Blood Cancer United Podcast.

In her junior year of college and new to Los Angeles, Hodgkin’s Lymphoma was the furthest thing from Racheli’s mind. Join Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) as Racheli walks them through how a presumed head cold was misdiagnosed. Listen in as she shares how she was able to press play on her life, with treatment and support from her healthcare team, family and growing online support.

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Additional LLS Support Resources:

Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode.

Follow Racheli:

Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists.

Support for this episode provided by Bristol-Myers Squibb.

The post Life on Pause: Racheli’s Story first appeared on The Bloodline with Blood Cancer United Podcast.