Kimberly sits down with Dwayne Wilson, a powerhouse advocate living with Pompe disease, a rare genetic disorder that attacks muscles and breathing.

Dwayne Wilson’s body was failing, but medicine called it "normal aging":

• ​🔴 Doctors ignored his weak legs until he couldn’t climb stairs.
• ​🟢 The poolside epiphany: "Water crushed my chest, it was Pompe disease."
• ​🟣 169 infusions later: Why he calls treatment "muscle juice."

Chapters

00:00 Introduction to Chronic Truth Podcast

01:33 Understanding Pompe Disease

10:02 Finding Community and Support

13:00 Becoming a Pompe Champ

15:24 Using T-Shirts for Awareness

20:15 Advice for Newly Diagnosed Patients

23:31 Advocacy and Community Engagement

Connect with Dwayne:

📲 Follow Dwayne: ⁠⁠Instagram

🩺 Pompe Info: ⁠⁠Pompe Disease News

Subscribe to The Chronic Truth Podcast for more raw conversations about thriving beyond chronic illness.

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This episode is brought to you by:

The Chronic Truth Podcast, LLC

Host/Executive Producer: Kimberly Nash

Co-Producer / Editor: Jay Wilson - ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠The Podcast Mechanic⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠