The Chronic Truth

The Chronic Truth

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The Chronic Truth episodes

  • Maryanne Peng on Biliary Atresia, Recovery, and Living Donor Advocacy

    Maryanne Peng was six weeks old when she was diagnosed with biliary atresia, a rare condition where the bile ducts are absent or blocked from birth. She had a Kasai surgery, a procedure that works in roughly 20–25% of cases. Hers worked. Her liver is still her own, still functioning. But surviving the surgery is only the start of what Maryanne has navigated: childhood spent in and out of hospitals, medications that affected her mental health, the transition from pediatric to adult care with no real infrastructure, and years of personal struggle before finding her way back.

    Today Maryanne lives in Napa, California, is in recovery, and advocates for living organ donation. She talks with Kim Nash about what biliary atresia actually is, how the Kasai procedure works, the physical experience of living with liver disease, and why she believes the living donor conversation needs to happen far more often than it does.

    CHAPTERS/TIMESTAMPS:

    00:00 Introduction to Chronic Illness and Personal Stories

    03:11 Understanding Biliary Atresia and Its Impact

    05:54 Navigating Childhood with Chronic Illness

    09:08 Mental Health Struggles and Drug Addiction

    11:54 The Importance of Mental Health Support

    15:11 Diet and Lifestyle Choices for Liver Health

    17:55 The Journey to Recovery and Advocacy

    21:13 Organ Donation and Living Donors

    23:53 The Role of Community in Chronic Illness

    26:55 Conclusion and Call to Action


    CONNECT & RESOURCES

    📱 Instagram: @taiwanesewonderwoman
    💼 LinkedIn: Maryanne Peng Rodriguez
    🌐 Website: Living Donor Registry
     

    The Chronic Truth Podcast:
     
    🌐 Website: chronictruthpodcast.com
    📱 Instagram: @ChronicTruthPodcast
    📘 TikTok: @chronictruthpodcast
    💬 Share Your Story: Testimonials
    📋 Community Survey: Survey

    Production Partner: Podcast Mechanic

    1 min
  • Why Your Pharmacist Is the Most Underused Member of Your Care Team

    Most patients decline the pharmacy consultation. Dr. Melissa Durham wants you to stop doing that. On this episode of The Chronic Truth, clinical pharmacist and USC Pain Center professor Dr. Melissa Durham talks with Kim about the pharmacist's role in chronic pain management, de-escalating meds, catching dangerous interactions, identifying drugs that have been forgotten about for years, and advocating for patients when the system creates roadblocks. She covers the opioid epidemic's three waves, the unintended consequences of the CDC guidelines, and what you can do right now to get more out of your healthcare team. Find her at @thepainpharmacist on Instagram and thepainpharmacist.com.
     
    CHAPTERS / TIMESTAMPS 

    00:00 Introduction to Chronic Pain Management

    02:54 The Role of Pharmacists in Pain Management

    05:48 Navigating the Opioid Epidemic

    09:02 The Evolution of Pain Relief Strategies

    11:51 The Importance of Medication Management

    15:12 Building Relationships with Pharmacists

    18:01 Integrating Technology in Healthcare

    21:00 The Patient's Role in Their Care

    24:05 Conclusion and Resources


    CONNECT & RESOURCES

    Instagram: @thepainpharmacist
    LinkedIn: Dr. Melissa Durham
    Website: thepainpharmacist.com
    Clinic: USC Pain Center, Los Angeles, CA (Keck Medicine)
     

    The Chronic Truth Podcast:
     
    🌐 Website: chronictruthpodcast.com
    📱 Instagram: @ChronicTruthPodcast
    📘 TikTok: @chronictruthpodcast
    💬 Share Your Story: Testimonials
    📋 Community Survey: Survey

    Production Partner: Podcast Mechanic

    30 min
  • Dr. Malaysia Harrell on the Near-Death Experience That Destroyed the Mask of Success

    Dr. Malaysia Harrell built her life on achievement Air Force, U.S. Public Health Service, working with the Surgeon General until a 2020 near-death experience left her with sepsis, Bell's palsy, oral chemo, and no idea who she was without her career. On Episode 100 of The Chronic Truth, Dr. Harrell talks with Kim about why high-achieving women burn out behind a mask of success, how trauma collects in the body until the closet gets full, and what surrender actually looks like when you've spent a lifetime in control. Plus: Kim's most personal disclosure yet and the reframe that might change how you see your own story. Find Dr. Harrell at MalaysiaHarrell.com and Blissful Life Consulting at blissfullifeconsulting.com.
     
    CHAPTERS / TIMESTAMPS 

    00:00 The Burden of Trauma

    01:45 Dr. Harrell's Journey to Healing

    05:57 Rebuilding Identity After Crisis

    09:43 The Impact of Social Media on Success

    13:30 Understanding Trauma's Effects on the Body

    17:47 Perfectionism and Its Consequences

    21:29 Finding Purpose Beyond Perfection

    25:33 Empowering the Patient's Voice

    29:39 The Importance of Community and Support


    CONNECT & RESOURCES

    📱 Instagram: @malaysiahharrell
    💼 LinkedIn: Dr. Malaysia Harrell
    📘 Facebook: Dr. Malaysia Harrell
    🌐 Website: MalaysiaHarrell.com
    🌐 Business: blissfullifeconsulting.com
    🌻 Hidden Disabilities Sunflower: hdsunflower.com
     

    The Chronic Truth Podcast:
     
    🌐 Website: chronictruthpodcast.com
    📱 Instagram: @ChronicTruthPodcast
    📘 TikTok: @chronictruthpodcast
    💬 Share Your Story: Testimonials
    📋 Community Survey: Survey

    Production Partner: Podcast Mechanic

    31 min
  • Opioid Dependence, Relapse, and a One-Year Taper

    Nancy Deyo was a Silicon Valley CEO who climbed Kilimanjaro to prove she was still worthy after selling her startup and came down unable to move her legs. What followed was fifteen years of chronic pain, misdiagnosis, three spinal surgeries, fentanyl dependence, and a one-year taper back to life. On this episode of The Chronic Truth, Nancy and Kim talk about what opioid withdrawal actually feels like, why women in pain get referred to psych while men get the painkillers, and what it means to rebuild resilience from the ground up. Nancy's memoir Perilous Ascent is forthcoming. Find her on Substack.
     
    CHAPTERS / TIMESTAMPS 

    00:00 Introduction to Chronic Pain and Resilience
    06:08 The Journey of Climbing Kilimanjaro
    11:59 The Struggles with Opioid Dependence
    18:09 Gender Bias in Pain Treatment
    24:00 Impact on Relationships and Support Systems
    30:01 Writing the Memoir and Sharing the Story

    CONNECT & RESOURCES

    🌐 Website: https://nancydeyo.com
    🔗 Instagram: https://www.instagram.com/nsdeyo
    🔗 Substack: https://nancydeyo.substack.com
    📚 Perilous Ascent — Forthcoming; publisher being finalized at time of recording
     

    The Chronic Truth Podcast:
     
    🌐 Website: chronictruthpodcast.com
    📱 Instagram: @ChronicTruthPodcast
    📘 TikTok: @chronictruthpodcast
    💬 Share Your Story: Testimonials
    📋 Community Survey: Survey

    Production Partner: Podcast Mechanic

    34 min
  • The Rare Disease Nobody Talks About, Until It Stops Your Breathing

    Deanna Steinle was diagnosed with Generalized Myasthenia Gravis at thirty a neuromuscular disease with no cure that can affect every voluntary muscle in the body, including the ability to breathe. Today she's a rare disease advocate, speaker, and the face of the Rare Connections: GMG film produced by Alexion. Deanna and Kim talk about the crisis that led to her diagnosis, the grief of losing the life you planned, and why the people standing next to us matter as much as any treatment. A powerful conversation for every chronic illness community.   
    CHAPTERS / TIMESTAMPS 

    00:00 Meet Deanna Steinle: Advocating for the GMG Community
    02:35 A Late Diagnosis: Deanna's Journey to Understanding Her Symptoms
    05:00 Accepting a Life Forever Changed
    06:55 What Rare Disease Communities Have in Common
    09:05 Inside the Rare Connections GMG Film
    12:52 Tools Every Chronic Illness Community Can Use
    14:55 Loving on Our Caregivers: The Forgotten Side of Diagnosis
    19:34 Where to Watch and Connect with Deanna

    CONNECT & RESOURCES

    Deanna Steinle:

    🔗 Instagram: Resilience is Beautiful
    🔗 Facebook: Deanna Steinle
    🔗 LinkedIn: Deanna Steinle
    🎬 Rare Connections: GMG
     

    The Chronic Truth Podcast:
     
    🌐 Website: chronictruthpodcast.com
    📱 Instagram: @ChronicTruthPodcast
    📘 TikTok: @chronictruthpodcast
    💬 Share Your Story: Testimonials
    📋 Community Survey: Survey

    Production Partner: Podcast Mechanic

    23 min
  • She Slept for a Month. Then She Figured Out Why.

    Jan Rothney was a psychology lecturer in health and social care when her body finally shut down completely leaving her bedbound and asleep for nearly a month. Because she already understood the science of what was happening, she knew exactly what to do: stop pushing, celebrate tiny wins, and send safety signals to a brain that had been running on overdrive for a decade. More than 20 years later, she's the author of Breaking Free and founder of Reset to Thrive. In this conversation with Kim Nash, she explains exactly how the brain creates chronic symptoms and what it takes to change that.     

    CHAPTERS / TIMESTAMPS 

    00:00 Introduction to Chronic Illness and Personal Journey

    01:55 The Build-Up to Chronic Fatigue

    08:48 The Turning Point: Realizing Recovery is Possible

    18:59 Practical Strategies for Healing

    27:04 The Importance of Support and Community

    37:58 Setting Boundaries and Self-Care

    47:53 Conclusion and Encouragement for Listeners

    CONNECT & RESOURCES

    Jan Rothney:

     🌐 Website: resettothrive.co.uk
    📱 Facebook: Breaking Free
    📱 Instagram: @BreakingFree_recovery
    📚 Breaking Free (2nd edition) 
     

    The Chronic Truth Podcast:
     
    🌐 Website: chronictruthpodcast.com
    📱 Instagram: @ChronicTruthPodcast
    📘 TikTok: @chronictruthpodcast
    💬 Share Your Story: Testimonials
    📋 Community Survey: Survey

    Production Partner: Podcast Mechanic

    51 min
  • The Absence of Visible Disease Is Not the Absence of Suffering

    Erika Conrad-Wess has lived with trigeminal neuralgia since 2004 more than two decades of invisible, relentless facial pain, multiple brain surgeries, and a healthcare system that didn't always believe her. Now the author of Nerve, a memoir of chronic pain, medical trauma, and surviving the healthcare system, she joins Kim Nash on The Chronic Truth to talk about what invisible pain really costs, why you have to become the project manager of your own healthcare, and how she redefined hope when a cure stopped being the goal. Pain doesn't have to be the whole story. But first, you have to be believed.     

    CHAPTERS / TIMESTAMPS 

    00:00 Understanding Chronic Pain and Invisible Illnesses
    07:07 The Importance of Empathy in Healthcare
    13:51 Navigating the Healthcare System: Advocacy and Self-Care
    20:58 Writing as Healing: Erica's Memoir Journey
    26:52 Building Support Communities for Chronic Pain Patients

    CONNECT & RESOURCES

    Erika Conrad-Wess:

     📚 Nerve — Amazon, Barnes & Noble, erikaconradwess.com ⚠️ Verify URL
    📱 Facebook: MVD Patient Support | Post MVD Support Group 
     

    The Chronic Truth Podcast:
     
    🌐 Website: chronictruthpodcast.com
    📱 Instagram: @ChronicTruthPodcast
    📘 TikTok: @chronictruthpodcast
    💬 Share Your Story: Testimonials
    📋 Community Survey: Survey

    Production Partner: Podcast Mechanic

    29 min
  • Stress, the Immune System, and the Root Cause of Chronic Disease

    Cancer biologist and TEDx speaker Rebecca Maff, known as the Healthy Biologist, joins Kim Nash on The Chronic Truth to explain the science of how stress feeds chronic disease and what we can do to get ahead of it. From the amygdala's role in immune suppression to AI-powered cancer screening, Rebecca brings real clinical depth to the conversation and keeps it grounded in tools anyone can use today. If you've ever wondered why stress makes you sick, why cancer is hitting younger people faster, or whether AI in healthcare is something to trust, this episode is for you.   

    CHAPTERS / TIMESTAMPS 

    00:00 Introduction to Chronic Illness and Advocacy
    01:24 Rebecca's Journey: From Burnout to Wellness
    04:46 The Impact of Stress on Health
    09:31 Managing Stress: Techniques and Strategies
    12:49 Alarming Trends in Cancer and Autoimmune Diseases
    16:58 The Role of Data and AI in Healthcare
    20:42 Building a Healthier Society
    24:44 The Importance of Community and Support

    CONNECT & RESOURCES

    Rebecca Maff:

     📱 @rebeccamaff on Facebook & Instagram
     

    The Chronic Truth Podcast:
     
    🌐 Website: chronictruthpodcast.com
    📱 Instagram: @ChronicTruthPodcast
    📘 TikTok: @chronictruthpodcast
    💬 Share Your Story: Testimonials
    📋 Community Survey: Survey

    Production Partner: Podcast Mechanic

    31 min
  • What Nobody Tells You About Living With Chronic Pain

    Davis Bain sustained a concussion during a soccer game in his senior year of college. Nine prior concussions had healed. This one didn't. Nearly four years later, he still lives with post-concussion syndrome, and he's turned that experience into Chronic Pain Warrior, a compassionate and practical guide for anyone facing chronic pain, illness, or invisible disability. In this episode, Davis joins Kim Nash to talk about what it's really like to live inside an invisible condition, what medical dismissal costs a patient emotionally, and why asking for help specifically and without apology might be the most important thing anyone struggling can do.   

    CHAPTERS / TIMESTAMPS 

    00:00 Introduction to Chronic Illness and Advocacy
    02:16 Davis Bain's Journey with Chronic Pain
    05:30 Understanding Invisible Disabilities
    11:07 The Impact of Medical Dismissal
    16:23 Navigating Support and Advice
    22:32 Writing 'Chronic Pain Warrior' and Its Purpose
    25:55 Closing Thoughts and Encouragement

    CONNECT & RESOURCES

    Davis Bain:

    🌐 chronicpainwarrior.com
     

    The Chronic Truth Podcast:
     
    🌐 Website: chronictruthpodcast.com
    📱 Instagram: @ChronicTruthPodcast
    📘 TikTok: @chronictruthpodcast
    💬 Share Your Story: Testimonials
    📋 Community Survey: Survey

    Production Partner: Podcast Mechanic

    28 min
  • Epilepsy Doesn't Own Your Life

    Epilepsy advocate and founder of The Epilepsy Network, Tiffany Kairos, shares her journey through nearly 18 years of living with epilepsy, from an unexpected diagnosis to becoming a beacon of hope for thousands. She and Kim Nash have an honest conversation about seizures, stigma, self-advocacy, and the power of community. A moving reminder that a diagnosis doesn't get to own your life. 

    CHAPTERS / TIMESTAMPS 

    00:00 Living with Epilepsy: A Journey of Resilience
    10:01 Community and Advocacy in Epilepsy
    20:07 Misconceptions and Stigmas Surrounding Epilepsy
    23:23 Empowerment Through Education and Support

    CONNECT & RESOURCES

    Adison Woods:
    📱 @tiffanykairos |  🌐 riseaboveepilepsy
     

    The Chronic Truth Podcast:
     
    🌐 Website: chronictruthpodcast.com
    📱 Instagram: @ChronicTruthPodcast
    📘 TikTok: @chronictruthpodcast
    💬 Share Your Story: Testimonials
    📋 Community Survey: Survey

    Production Partner: Podcast Mechanic

    24 min

About The Chronic Truth

From the publisher's feed

If chronic illness has ever made you feel lost, alone, or like your body is working against you, this podcast is for you. The Chronic Truth is a weekly show dedicated to helping chronic illness…