Tune in for an inspiring conversation with Nicole Johnson, a dedicated advocate, and visionary in the world of rare diseases. As the Co-Founder and Executive Director of the FOXG1 Research Foundation, Nicole is on a mission to find a cure for FOXG1 syndrome, a rare neurological disorder that severely impacts brain development and causes profound cognitive and physical disabilities.

Join us as Nicole discusses the critical role of community, the power of perseverance, and the hopeful future of rare disease research. Don't miss this heartfelt and motivating discussion with a true champion.

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xoxo, The Darlings