On Rare

“I just want new skin, Mom.” Courage in the face of a painful life with epidermolysis bullosa (EB)


Listen Later

Brady is a five-year-old who is living with recessive dystrophic epidermolysis bullosa (RDEB), a rare genetic skin condition. His mother, Eileen, describes what it was like to discover that Brady has RDEB and tells us how she is both the mother of a brave, happy little boy and the nurse who causes him pain during his daily wound care. RDEB has changed their lives.

Sanuj Ravindran, M.D., executive chairman of BridgeBio’s Phoenix Tissue Repair, joins the conversation to talk about the condition and explain how EB affects the body internally and externally.

...more
View all episodesView all episodes
Download on the App Store

On RareBy BridgeBio Pharma

  • 5
  • 5
  • 5
  • 5
  • 5

5

21 ratings


More shows like On Rare

View all
HBR IdeaCast by Harvard Business Review

HBR IdeaCast

1,870 Listeners

This American Life by This American Life

This American Life

90,618 Listeners

The Joe Rogan Experience by Joe Rogan

The Joe Rogan Experience

225,811 Listeners

Citeline Podcasts by Citeline

Citeline Podcasts

28 Listeners

The Daily by The New York Times

The Daily

110,853 Listeners

Child Life On Call |  Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support by Katie Taylor, CCLS

Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support

140 Listeners

All-In with Chamath, Jason, Sacks & Friedberg by All-In Podcast, LLC

All-In with Chamath, Jason, Sacks & Friedberg

9,248 Listeners

Real Survival Stories by NOISER

Real Survival Stories

1,260 Listeners