Navigating a new diagnosis of Polycystic Kidney Disease can be very challenging. Patients may not know where to begin. In this podcast, Nercy Sullivan, a patient and patient advocate, and Dr. Priya Deshpande, a nephrologist specializing in ADPKD, introduce the important topics that patients face when they learn about their condition. Nercy and Priya also discuss the importance of doing one's own research (using reliable sources) and forming a team of providers to help manage the condition.

For information about the PKD Cure Foundation- please check out https://pkdcure.org/

For information about the PKD Foundation Centers of Excellence and Partner Clinics- please check out https://pkdcure.org/carecenters/

For information about the PKDo Foundation (ending PKD through preimplantation genetic testing) https://www.pkdo.org/

Dr. Deshpande's X handle: @priyaDrenal

Nercy Sullivan instagram @nercy.sullivan