Autosomal Dominant Polycystic Kidney Disease

Dr. Francis Lee, hepatologist and Assistant Professor at the Mount Sinai Hospital in NY, discusses liver manifestations and treatment in ADPKD.

This is a great resource from the PKD foundation about extrarenal manifestations of ADPKD.

https://pkdcure.org/about-the-disease/adpkd/what-are-the-related-health-complications/

En este podcast, Nercy y Dr. Deshpande tienen un discurso de los tópicos importantes de transplante renal.

Recursos:

PKD Cure Foundation: https://pkdcure.org/

National Kidney Foundation: https://www.kidney.org/es/spanish-resources

In this podcast, Nercy Sullivan (a patient and patient advocated with ADPKD) and I discuss important topics relevant to kidney transplantation in patients with ADPKD.

Resources:

PKD foundation: https://pkdcure.org/

National Kidney Foundation (NKF) transplantation resource: https://www.kidney.org/transplantation

HIPAA: Health Insurance Portability and Accountability act of 1996 https://www.hhs.gov/hipaa/for-professionals/privacy/laws-regulations/index.html

En este podcast, Nercy Sullivan y Dr. Priya Deshpande tienen una conversación sobre un paciente tiene que hacer después de un diagnóstico de la enfermedad polyquistica.

Nercy habla sobre la programa "Re-nu" que ayudo a ella con la dieta. También ella habla sobre la Fundación PKDo (https://www.pkdo.org/) que cubren la cuesta para no tener niños que tienen la enfermedad polyquistica.

https://pkdcure.org/ tiene mucha información en Español también.

Navigating a new diagnosis of Polycystic Kidney Disease can be very challenging. Patients may not know where to begin. In this podcast, Nercy Sullivan, a patient and patient advocate, and Dr. Priya Deshpande, a nephrologist specializing in ADPKD, introduce the important topics that patients face when they learn about their condition. Nercy and Priya also discuss the importance of doing one's own research (using reliable sources) and forming a team of providers to help manage the condition.

For information about the PKD Cure Foundation- please check out https://pkdcure.org/

For information about the PKD Foundation Centers of Excellence and Partner Clinics- please check out https://pkdcure.org/carecenters/

For information about the PKDo Foundation (ending PKD through preimplantation genetic testing) https://www.pkdo.org/

Dr. Deshpande's X handle: @priyaDrenal

Nercy Sullivan instagram @nercy.sullivan

This podcast will serve as a guide to our patients and their families about nutrition and hydration in ADPKD. Join Nercy Sullivan (who is a patient with ADPKD), Diana Bruen (nutritionist who specializes in ADPKD) and me (Priya Deshpande, nephrologist) as we explore nutrition topics that are important to our ADPKD patients and how to embark on a healthier lifestyle!

Checkout these resources for more information:

https://www.kidney.org/

https://pkdcure.org/

https://pkdcure.org/