IBDetermined

IBDetermined

By Michelle and Mason HarveyHealth & Fitness
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IBDetermined episodes

  • Episode 14 - Overcoming a fear of needles, shots, injections and IV's!

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    Welcome to episode 14! Today's episode focuses on overcoming a fear of needles, shots, injections, and IV's. For children and adults this is a real fear and sometimes phobia. With IBD or any chronic illness the reality is that injections and IV's can become a way of life and it sometimes a challenge to overcome fears. After 3 years, Mason has changed from a high fear, anxious and very upset patient into a relaxed and calm patient with no anxiety over infusions and injections. We have taken the tips and methods that have helped us and included them in this episode. This is helpful for anyone with these fears! We hope this episode will help you if you are an adult or child suffering from Crohn's disease or any chronic illness, know somebody who is, or are just interested in learning more about aspects of chronic illness. We are family friendly and want kids to be involved! Listen together, separately, but ultimately we hope we bring some attention to some well deserved topics on chronic illness. 
    For more information on Crohn's disease, fundraising, and general info go to https://www.crohnscolitisfoundation.org
    Follow us on Instagram @TeamIBDetermined
    To find out where to listen to our podcast visit https://www.buzzsprout.com/1911185

    35 min
  • Episode 13 - Our dinner at Club 33 at Disneyland and staying at the Grand Californian!

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    Welcome to episode 13! Today's episode goes over our very exciting overnight stay at Disneyland complete with a visit to Club 33. A lot of you were curious and had questions so we are here to share details and pictures of our entire evening at Club 33. However, we didn't want to stray far from the goal of our channel which is facing challenges and overcoming them, particularly when you are immunosuppressed. For the first part of our show, Mason and I go over how we stayed safe as a family and were able to enjoy Disneyland. Kids with IBD can sometimes miss out on a lot of normal life activities. When treatments are for life it is a tough balance to determine how to walk that. new journey. The second part of our show is dedicated to Club 33 and sharing some of the secrets this amazing club holds! We hope this episode will help you if you are an adult or child suffering from Crohn's disease or any chronic illness, know somebody who is, or are just interested in learning more about aspects of chronic illness. We are family friendly and want kids to be involved! Listen together, separately, but ultimately we hope we bring some attention to some well deserved topics on chronic illness. 
    For more information on Crohn's disease, fundraising, and general info go to https://www.crohnscolitisfoundation.org
    Follow us on Instagram @TeamIBDetermined
    To find out where to listen to our podcast visit https://www.buzzsprout.com/1911185

    42 min
  • Episode 12 - Fighting insurance denials for medications and biologics and how to win!

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    Welcome to episode 12! Today's episode focuses on the steps you take to fight an insurance denial for medications and biologics. Some of you are familiar with a doctor ordering a particular medication or biologic and insurance will deny it. The process might be short or it might be drawn out but we are here to help you with each step in the process. We take you through denials, appeals, peer-to-peer, and what the next steps are if those don't work. We hope this episode will help you if you are an adult or child suffering from Crohn's disease or any chronic illness, know somebody who is, or are just interested in learning more about aspects of chronic illness. We are family friendly and want kids to be involved! Listen together, separately, but ultimately we hope we bring some attention to some well deserved topics on chronic illness. 
    For the Patient Advocate Foundation go to https://www.patientadvocate.org
    For more information on Crohn's disease, fundraising, and general info go to https://www.crohnscolitisfoundation.org
    Follow us on Instagram @TeamIBDetermined
    To find out where to listen to our podcast visit https://www.buzzsprout.com/1911185

    30 min
  • Episode 11 - Importance of Mental Health with Crohn's disease and Ulcerative Colitis or any chronic illness

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    In today's episode, we cover a very important topic which is, mental health. Something we learned before recording this is that rates of depression are higher with Crohn's disease and Ulcerative Colitis as compared to other diseases and the general population. Mental Health was also the most requested topic amongst those with IBD. This is only the beginning of this conversation and for this episode we covered what is available on the Crohn's and Colitis Foundations webpage. We wanted to show how we related to it and also demonstrate how simple it is to access and read for yourself.  We hope this episode will help you if you are an adult or child suffering from Crohn's disease or any chronic illness, know somebody who is, or are just interested in learning more about aspects of chronic illness. We are family friendly and want kids to be involved! Listen together, separately, but ultimately we hope we bring some attention to some well deserved topics on chronic illness. 
    For more information on the mental health topics covered in this episode, please visit https://www.crohnscolitisfoundation.org/mental-health
    Follow us on Instagram @TeamIBDetermined
    To find out where to listen to our podcast visit https://www.buzzsprout.com/1911185

    48 min
  • Episode 10 - We give you a behind the scenes look at our children's book about chronic illness, "Not Your Average Slice of Pizza" and explain the publishing process

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    Welcome to episode 10! We had some issues with editing (like the up late, sweating over your laptop in a panic it wouldn't work) so we apologize for the repeating of scenes. But it is what it is and we made it to the big 10!!We decided to give you all a behind the scenes look of our children's book, "Not Your Average Slice of Pizza". We cover the beginnings from when we decided to write and illustrate a children's book, the process we used to write and illustrate it, and information on how we published our book with Ingramspark. Feel free to comment with any questions and we will be happy to answer them and help you on your own publishing journey! You can purchase "Not Your Average Slice of Pizza" at www.KarmatudeCandles.com or go to Amazon, BarnesandNoble.com or Walmart.com. We hope this episode will help you if you are an adult or child suffering from Crohn's disease or any chronic illness, know somebody who is, or are just interested in learning more about aspects of chronic illness. We are family friendly and want kids to be involved! Listen together, separately, but ultimately we hope we bring some attention to some well deserved topics on chronic illness. 

    For more information on Story Experiential with Pixar: https://www.storyxperiential.com
    For more information on Crohn's disease, fundraising, and general info go to https://www.crohnscolitisfoundation.org
    Follow us on Instagram @TeamIBDetermined
    To find out where to listen to our podcast visit https://www.buzzsprout.com/1911185
    To watch on YouTube: https://youtu.be/q8AkTVu03u8

    28 min
  • Episode 9 - How to handle unsupportive family and friends of Crohn's patients and help people better understand how they can support you!

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    Welcome to episode 9!  Mason is still in a flare but feeling better! We decided to proceed with our regular series since he was excited to do it. Today's episode focuses on our ideas to handle unsupportive family and friends who don't try to understand Crohn's disease (or really any chronic illness). We also go into how to help people who don't understand chronic illness but want to be supportive. We definitely don't have all the answers but we hope our experiences might help you and might also make you feel supported. We hope this episode will help you if you are an adult or child suffering from Crohn's disease or any chronic illness, know somebody who is, or are just interested in learning more about aspects of chronic illness. We are family friendly and want kids to be involved! Listen together, separately, but ultimately we hope we bring some attention to some well deserved topics on chronic illness. 
    For more information on Crohn's disease, fundraising, and general info go to https://www.crohnscolitisfoundation.org
    Follow us on Instagram @TeamIBDetermined
    To find out where to listen to our podcast visit https://www.buzzsprout.com/1911185

    29 min
  • Episode 8 - Mason is still in a Crohn's flare and we go more into what a Crohn's (IBD) flare is.

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    Welcome to episode 8!  Still off of our scheduled programming but this is what worked for Mason this week. We find out the potential cause for his flare (spoiler alert, he has a bacterial infection which we talk more about), talk about his treatment regimen, and then look more at what a Crohn's flare is. Of course there is always more to learn then we can cover so please use the links below to look for more info. Mason was ok discussing this but we are looking forward to him being over this! We hope this episode will help you if you are an adult or child suffering from Crohn's disease or any chronic illness, know somebody who is, or are just interested in learning more about aspects of chronic illness. We are family friendly and want kids to be involved! Listen together, separately, but ultimately we hope we bring some attention to some well deserved topics on chronic illness. 
    For more information on Crohn's disease, fundraising, and general info go to https://www.crohnscolitisfoundation.org
    Follow us on Instagram @TeamIBDetermined
    To find out where to listen to our podcast visit https://www.buzzsprout.com/1911185

    29 min
  • Episode 7 - Mason is in a Crohn's flare.

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    Welcome to episode 7! Today's episode was a change of plans since Mason is in a flare. We had an episode all planned but instead decided to have an impromptu discussion about how he is feeling and talk about flares. We both agreed it would be a little much to do a regular segment but we also know how important it is to discuss Crohn's flares and show how they look. He wanted to do this so we decided to turn on the microphones and have a discussion. Now we are just hoping we caught it early enough and he will be back on track soon. We hope this episode will help you if you are an adult or child suffering from Crohn's disease or any chronic illness, know somebody who is, or are just interested in learning more about aspects of chronic illness. We are family friendly and want kids to be involved! Listen together, separately, but ultimately we hope we bring some attention to some well deserved topics on chronic illness. 
    For more information on Crohn's disease, fundraising, and general info go to https://www.crohnscolitisfoundation.org
    Follow us on Instagram @TeamIBDetermined
    To find out where to listen to our podcast visit https://www.buzzsprout.com/1911185

    24 min
  • Episode 6 podcast - The Restroom Access Act, how we created a bill and passed a law in California!

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    Welcome to episode 6! Today's episode is very important to us as it discusses the Restroom Access Act law and your rights. This law, while in other states, was just enacted this year, 2023, in the state of California. Mason and I played a role in creating the bill, AB1632, and getting it to pass into a law. We detail step by step how we accomplished this so you can learn how to do it too. It does take time but it is worth it! We hope this episode will help you if you are an adult or child suffering from Crohn's disease or any chronic illness, know somebody who is, or are just interested in learning more about aspects of chronic illness. We are family friendly and want kids to be involved! Listen together, separately, but ultimately we hope we bring some attention to some well deserved topics on chronic illness. 
    For more information on Crohn's disease, fundraising, and general info go to https://www.crohnscolitisfoundation.org
    For legislator info go to https://www.crohnscolitisfoundation.org/get-involved/be-an-advocate/contact-your-legislators
    For paperwork in the state of California that will allow you to use a restroom in an emergency go to https://www.cdph.ca.gov/Programs/CCDPHP/DCDIC/CDCB/Pages/RestroomAccessAct.aspx
    Follow us on Instagram @TeamIBDetermined
    To find out where to listen to our podcast visit https://www.buzzsprout.com/1911185

    27 min
  • Episode 5 - Simple tips and tricks to monitor IBD symptoms and food sensitivities.

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    Welcome to episode 5! *UPDATE! We have since published two new food and restroom trackers on Amazon! Links to order are below!*
    We wanted to discuss our simple way we keep track of and monitor Mason's IBD symptoms on a day to day basis. Crohn's disease flares can be tricky or impossible to predict but hopefully with some of our ideas, you will find some useful tools to stay on top of symptoms. These ideas work if you don't have IBD too! These suggestions will help someone dealing with a food sensitivity to potentially identify it and/or monitor it. We are also doing a giveaway! We hope this episode will help you if you are an adult or child suffering from Crohn's disease or any chronic illness, know somebody who is, or are just interested in learning more about aspects of chronic illness. We are family friendly and want kids to be involved! Listen together, separately, but ultimately we hope we bring some attention to some well deserved topics on chronic illness. 
    For more information on Crohn's disease, fundraising, and general info go to https://www.crohnscolitisfoundation.org
    Follow us on Instagram @TeamIBDetermined
    To find out where to listen to our podcast visit https://www.buzzsprout.com/1911185
    Not Your Average Restroom Journal and IBD Symptom Tracker - https://www.amazon.com/dp/B0D12YKRSN
    Not Your Average Food Journal and IBD Symptom Tracker - 
    https://www.amazon.com/dp/B0D12C6YG2

    27 min

About IBDetermined

From the publisher's feed

Created to discuss living with Crohn's disease and made for adults, kids, teens, and families to encourage them to find ways to overcome obstacles, small and large. We will invite guests from…