By The Vestibular Disorders Association (VeDA) & Unfixed Media
In the ICU ("I See You") podcast hosts Cynthia Ryan and Kimberly Warner explore the vestibular experience by facilitating conversations between vestibular patients and the health professionals who
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The podcast currently has 22 episodes available.
Living with and supporting someone with a chronic illness can be challenging. First off, we'd like to give a big shout out to all the spouses, parents, friends, and other “care partners” out there who selflessly adapt their lives around the restrictions imposed by their loved one’s vestibular illness. Aborted family events, staying home instead of going out for dinner and a movie, and lots of medical appointments are just some of the complications you might face. On top of that, there is the worry - will your loved one ever get better? The guilt - could you be doing more to reduce your loved one’s burden? And, let’s face it, the exhaustion - when can you take time to care for yourself? Care partners often spend so much time and energy focused on their loved one’s needs, they often sacrifice their own. In this episode of the ICU - "I See You" podcast, we’d like to shine the light on these unsung heroes, and offer them a moment to reflect on what self-care might look like for them.
This podcast is a co-production of the Vestibular Disorders Association (VeDA) and Unfixed Media. https://unfixedmedia.com/
If you are or know a care partner who has been along side their loved one in their vestibular journey, please invite them to join VeDA's "Supporting Loved Ones" support group at https://vestibular.org/members/slovedonessggmail-com/
About the Guests:
Katie Willard Virant is a psychotherapist living in St. Louis. She sees clients in therapy and writes for Psychology Today about chronic illness. She is a graduate of the Brown School of Social Work at Washington University in St. Louis and of the St. Louis Psychoanalytic Institute’s Advanced Psychodynamic Psychotherapy program. She works with adults, adolescents and children on a variety of issues, including loss and grief, life transitions, and living with chronic illness.
Christina Mullins: Christina has been married for seven years and is a mother to two children, ages 7 and 5. She enjoys hiking, skiing, traveling, and cherishing moments of fun with her kids. Four years ago, her husband was diagnosed with Ménière's disease, and since then, he has also been diagnosed with Ankylosing Spondylitis, vestibular migraines, and Persistent Postural-Perceptual Dizziness (PPPD). Despite these challenges, Christina remains committed to her family and her passion for helping others. Professionally, she is a licensed clinical social worker in a middle school setting, where she dedicates her career to supporting students and their well-being. Additionally, she has started a blog called Sunshine Parenting in Chronic Weather, where she shares her experiences and insights on being a spouse and parent while navigating the complexities of chronic illness.
Hosts:
Cynthia Ryan, Executive Director of the Vestibular Disorders Association (VeDA) https://vestibular.org/
Kimberly Warner, Founder and Director of Unfixed Media https://unfixedmedia.com/
VeDA relies on your support to help vestibular patients on their journey to find a life rebalanced. You can make a real difference by making a donation at https://vestibular.org/donate/
If you are experiencing vertigo, tinnitus, dizziness, imbalance, brain fog, or other balance-related symptoms, VeDA may be able to help. To learn more about vestibular conditions and get help finding a diagnosis, treatment, coping tools, and support visit https://vestibular.org/
For help finding a vestibular healthcare provider visit https://vestibular.org/healthcare-directory/
If you are a vestibular healthcare professional and want to reach more patients, join VeDA's Healthcare Provider Directory by becoming a member at https://vestibular.org/article/resources-for-professionals/professional-membership/. Additional benefits include patient education articles you can brand with your logo.
#LifeRebalanced #MakeVestibularVisible #Vertigo #Vestibular #Tinnitus #Dizzy
Mal de Debarquement Syndrome is a central vestibular disorder that typically arises following exposure to passive motion (i.e. boat, airplane, automobile, train, etc.). The characteristic symptom of MdDS is a constant sensation of rocking, swaying, and/or bobbing. On this episode of the ICU - "I See You" podcast, we connect with one of the leading researchers in MdDS and an MdDS patient who runs a support group!
This podcast is a co-production of the Vestibular Disorders Association (VeDA) and Unfixed Media. https://unfixedmedia.com/
About the Guests:
Dr. Yoon Hee Cha is an Associate Professor in the Department of Neurology with subspecialty training in neurotology. She joined the faculty of the department in July 2019 to pursue research on the application of non-invasive brain stimulation methods on the modulation of motion perception, treatment of vertigo, and enhancement of gait and balance. She developed the first neuromodulation-based clinical trials in mal de debarquement syndrome (MdDS). Her research revealed the importance of brain regions not traditionally thought to be part of the vestibular system in the creation of motion perception. Besides research on the use of non-invasive brain stimulation tools such as transcranial alternating current stimulation and transcranial magnetic stimulation, Dr. Cha sees patients in the neurology clinic with a focus on chronic headache, vertigo, and gait dysfunction.
Nancy Gray has lived with 24/7 symptoms of MdDS since 2019 after disembarking from an Atlantic Ocean crossing. After feeling like she was in continuous motion for three weeks, she sought medical help. In 2021, she worked with Dr. Sergei Yakushin at Mt. Sinai for a week of treatment, which improved her symptoms. Nancy continues to travel by boat, embracing her condition. Her hobbies include travel, playing the hammered dulcimer, watercolor, collage, writing, photography, genealogy research, and gardening. She has adapted her activities to continue enjoying them despite MdDS. Nancy also leads an MdDS support group, offering valuable insights and advice to others.
Hosts:
Cynthia Ryan, Executive Director of the Vestibular Disorders Association (VeDA) https://vestibular.org/
Kimberly Warner, Founder and Director of Unfixed Media https://unfixedmedia.com/
VeDA relies on your support to help vestibular patients on their journey to find a life rebalanced. You can make a real difference by making a donation at https://vestibular.org/donate/
If you are experiencing vertigo, tinnitus, dizziness, imbalance, brain fog, or other balance-related symptoms, VeDA may be able to help. To learn more about vestibular conditions and get help finding a diagnosis, treatment, coping tools, and support visit https://vestibular.org/
For help finding a vestibular healthcare provider visit https://vestibular.org/healthcare-directory/
If you are a vestibular healthcare professional and want to reach more patients, join VeDA's Healthcare Provider Directory by becoming a member at https://vestibular.org/article/resources-for-professionals/professional-membership/. Additional benefits include patient education articles you can brand with your logo.
#LifeRebalanced #MakeVestibularVisible #Vertigo #Vestibular #Tinnitus #Dizzy
Traveling with a vestibular illness can feel impossible and problematic. Obstacles like rapid altitude changes, visual disturbances, patterned airport carpets, and passive motion can amplify symptoms. Many people with vestibular dysfunction need accommodations or restrictions to prevent symptoms, attacks, or flare-ups. Having a vestibular disorder should not prevent someone from traveling. On this episode of the ICU - "I See You" podcast, we talk with two vestibular patients who are also professional travelers!
This podcast is a co-production of the Vestibular Disorders Association (VeDA) and Unfixed Media. https://unfixedmedia.com/
About the Guests:
Arthur Wooten is an award-winning playwright and novelist who works for PASSPORT magazine as a feature travel writer. In 2005, Arthur developed a life-changing diagnosis of bilateral vestibular loss, and, to this day, he still experiences symptoms 24/7. In 2011 Arthur wanted to share the devastating yet surprisingly encouraging aspects of having a vestibular disorder, which resulted in his fictional memoir, DIZZY. The characters are fictional but the medical storyline is all Arthur's.
Cynthia Connell is a travel agent with Personal Travel Management in Vancouver, Canada and a certified Spanish to English translator. She got her start in the travel industry over 20 years ago as a tour leader, taking small groups of international travelers around Mexico and Central America on 2-3 week trips. She specializes in adventure travel and has set her wandering feet on all seven continents. Her journey as a vestibular patient began in 2019 with a diagnosis of vestibular neuritis, which moved on to PPPD and possible vestibular migraine.
Hosts:
Cynthia Ryan, Executive Director of the Vestibular Disorders Association (VeDA) https://vestibular.org/
Kimberly Warner, Founder and Director of Unfixed Media https://unfixedmedia.com/
VeDA relies on your support to help vestibular patients on their journey to find a life rebalanced. You can make a real difference by making a donation at https://vestibular.org/donate/
If you are experiencing vertigo, tinnitus, dizziness, imbalance, brain fog, or other balance-related symptoms, VeDA may be able to help. To learn more about vestibular conditions and get help finding a diagnosis, treatment, coping tools, and support visit https://vestibular.org/
For help finding a vestibular healthcare provider visit https://vestibular.org/healthcare-directory/
If you are a vestibular healthcare professional and want to reach more patients, join VeDA's Healthcare Provider Directory by becoming a member at https://vestibular.org/article/resources-for-professionals/professional-membership/. Additional benefits include patient education articles you can brand with your logo.
#LifeRebalanced #MakeVestibularVisible #Vertigo #Vestibular #Tinnitus #Dizzy
Devices—can’t live with them, can’t live without them. When I was in the first two years of my vestibular disorder I remember longing to turn back the clock to the 1800’s. Televisions, computer screens, even my phone sent my nervous system reeling so it took me years to return to modern communication. And because I wasn’t connecting digitally during that time, I had no idea others experienced the same problem as me and became very isolated. When we are symptomatic, trying to scroll through an article on the phone or watch a movie on a tablet can be torture. Attending a Zoom meeting with multiple people talking and moving can be unbearable. Even texting back and forth can be dizzying. But staying connected is an important part of our recovery, and this often is through virtual mediums, so it is important to use every tool available to improve our ability to function while using a digital device. Even small changes can have a big impact. In this episode of the ICU - "I See You" podcast, we take some time to explore these challenges and discuss a multitude of ways to make our digital companions more user-friendly.
This podcast is a co-production of the Vestibular Disorders Association (VeDA) and Unfixed Media. https://unfixedmedia.com/
About the Guests:
Dr. Cheryl Berger-Israeloff has more than 20 years experience practicing optometry and focuses her practice on a subspecialty called neuro-visual optometry, which deals with the diagnosis and treatment of vision-based problems commonly found in the brain-injured population. Dr. Israeloff is a pioneer in the optometric treatment of conditions that cause blurred vision, motion sickness, and headaches. She graduated from Cornell University and SUNY College of Optometry.
Alexandra Biss has had dizzy symptoms since she was in her teens, but she officially started her vestibular journey during the start of the COVID pandemic in 2020 when she completely lost her balance and was unable to walk without support. She was ultimately diagnosed with chronic vestibular migraines that stripped her independence and stability. After multiple doctor visits she finally met a neurologist who was a vestibular specialist. While her symptoms are still prominent, through medication and vestibular therapy she has begun getting back on track. She currently works as an underwriting analyst at an insurance firm in Canada and has started running, which is now a central passion of hers. On the days she was bed bound, never once did she think she would be able to take part in any sport again. Her newly-found love for running has allowed her to regain stability and confidence. She has completed two half marathons, both raising money for VeDA, and is currently preparing for her first full marathon this coming May.
Hosts:
Cynthia Ryan, Executive Director of the Vestibular Disorders Association (VeDA) https://vestibular.org/
Kimberly Warner, Founder and Director of Unfixed Media https://unfixedmedia.com/
VeDA relies on your support to help vestibular patients on their journey to find a life rebalanced. You can make a real difference by making a donation at https://vestibular.org/donate/
If you are experiencing vertigo, tinnitus, dizziness, imbalance, brain fog, or other balance-related symptoms, VeDA may be able to help. To learn more about vestibular conditions and get help finding a diagnosis, treatment, coping tools, and support visit https://vestibular.org/
For help finding a vestibular healthcare provider visit https://vestibular.org/healthcare-directory/
If you are a vestibular healthcare professional and want to reach more patients, join VeDA's Healthcare Provider Directory by becoming a member at https://vestibular.org/article/resources-for-professionals/professional-membership/. Additional benefits include patient education articles you can brand with your logo.
#LifeRebalanced #MakeVestibularVi
As you know, dealing with vestibular disorders can take a toll on a person’s mental well-being. Feelings of stress, sadness, and uncertainty about the future are common, and these emotional responses can manifest as anxiety. Anxiety and vestibular symptoms can create a vicious cycle where one exacerbates the other, and it’s ever so hard to break that cycle. Addressing anxiety in people with vestibular dysfunction often involves a multifaceted approach that may include vestibular rehabilitation therapy, cognitive-behavioral therapy (CBT), relaxation techniques, and medications if necessary. By addressing both the physical symptoms and the associated anxiety, people can better manage their condition and improve their quality of life. Today we’re going to be talking with psychologist, Joanna Wolfson, and vestibular patient, Lauren Colella, about why anxiety is so prevalent among people with vestibular dysfunction, and what are some practical things you can do to manage it.
This podcast is a co-production of the Vestibular Disorders Association (VeDA) and Unfixed Media. https://unfixedmedia.com/
About the Guests:
Joanna Wolfson, PhD, ABPP is a senior psychologist at Rusk Rehabilitation, NYU Langone Health, and Clinical Assistant Professor of Rehabilitation Medicine at the NYU Grossman School of Medicine. She holds a doctorate in Clinical Psychology from Fairleigh Dickinson University, completed her internship at NYU Rusk, and did a postdoctoral fellowship at the Manhattan VA in Health Psychology and Primary Care. She is board certified in clinical health psychology. Dr. Wolfson provides individual and group psychotherapy to patients with a wide range of medical presentations, including vestibular conditions. She co-leads a vestibular stress management group, which has been running for the past 8 years. She also supervises interns in the field of health psychology and presents on topics including integrated healthcare, motivational interviewing, and health anxiety.
Stefanie Adams suffered multiple traumatic brain injuries and had her third concussion in 2017. As soon as she hit her head she felt off-balance and started to sway. Over the next year she developed terrible migraines and dizziness. Eventually the migraines left, but the dizziness stayed. A year later she discovered that she had a perilymph fistula (a hole in the membrane separating the middle and inner ears). When she got the flu, she blew her nose and the room started to spin. She’s had surgery to repair the fistula and is now a VeDA Ambassador and vestibular advocate. In her professional life, Stefanie is an Account Manager for a healthcare communications agency.
Hosts:
Cynthia Ryan, Executive Director of the Vestibular Disorders Association (VeDA) https://vestibular.org/
Kimberly Warner, Founder and Director of Unfixed Media https://unfixedmedia.com/
VeDA relies on your support to help vestibular patients on their journey to find a life rebalanced. You can make a real difference by making a donation at https://vestibular.org/donate/
If you are experiencing vertigo, tinnitus, dizziness, imbalance, brain fog, or other balance-related symptoms, VeDA may be able to help. To learn more about vestibular conditions and get help finding a diagnosis, treatment, coping tools, and support visit https://vestibular.org/
For help finding a vestibular healthcare provider visit https://vestibular.org/healthcare-directory/
If you are a vestibular healthcare professional and want to reach more patients, join VeDA's Healthcare Provider Directory by becoming a member at https://vestibular.org/article/resources-for-professionals/professional-membership/. Additional benefits include patient education articles you can brand with your logo.
#LifeRebalanced #MakeVestibularVisible #Vertigo #Vestibular #Tinnitus #Dizzy #Balance
Caring for oneself with a vestibular disorder is not easy—add infants, children and teens into the mix and the spectrum of experience can span from feeling downright impossible to uniquely rewarding. In honor of Mother’s Day this month and our community of mothers with vestibular disorders, this episode of the ICU - "I See You" podcast dives into the multi-layered experiences of mothering “dizzy.” We are joined by vestibular patients and mothers, Kayla McCain and Marissa Aldrete to discuss considerations in family planning, pregnancy and vestibular disorders, managing self-care, and how to include family in your vestibular experiences so you feel more supported and less overwhelmed and alone.
This podcast is a co-production of the Vestibular Disorders Association (VeDA) and Unfixed Media. https://unfixedmedia.com/
About the Guests:
Marissa Aldrete is the mother to a fifteen year old son and has been a vestibular patient for over 12 of those years. She lives with vestibular migraine, chronic migraine, and PPPD. When she first developed symptoms, she was a preschool teacher with a three year old at home. Like so many vestibular patients she saw multiple physicians who either thought she had anxiety or wanted to try hefty meds that would leave her unable to function. In 2014, she experienced a remission of symptoms and went back to a “normal” life for the next four years. But in 2018 her symptoms returned with a vengeance and she became housebound. Eventually, under the care of Dr. Shin Beh, she was able to slowly resume life again. Marissa joined VeDA as an ambassador and started an online support group with fellow vestie, Joy Holten. Joy and Marissa also have a podcast, Finding Joy in Your Vestibular Journey. Recently Marissa became a health and wellness coach so she can share what she’s learned with others.
Kayla McCain began experiencing symptoms of vestibular neuritis and vestibular migraine in October of 2016. Like many vestibular patients, Kayla fell into despair during the early stages of her diagnosis. However, after getting established with a neurologist (Dr. Shin Beh) and treatment plan, she was able to adapt to her new normal, became an ambassador with VeDA and began sharing her experience online at Truekaylaisms.com. Kayla left the corporate world shortly after her diagnosis and opened her own business (Kayla McCain Marketing) to be able to continue to pursue her love for content marketing while controlling her work environment with daily dizziness. In 2020, Kayla became a mom - something she wasn’t sure was a possibility with a vestibular disorder. Today, she continues to work from home with her two young boys Declan (4) and Greyson (1) while managing the ups and downs of her vestibular migraine.
Hosts:
Cynthia Ryan, Executive Director of the Vestibular Disorders Association (VeDA) https://vestibular.org/
Kimberly Warner, Founder and Director of Unfixed Media https://unfixedmedia.com/
VeDA relies on your support to help vestibular patients on their journey to find a life rebalanced. You can make a real difference by making a donation at https://vestibular.org/donate/
If you are experiencing vertigo, tinnitus, dizziness, imbalance, brain fog, or other balance-related symptoms, VeDA may be able to help. To learn more about vestibular conditions and get help finding a diagnosis, treatment, coping tools, and support visit https://vestibular.org/
For help finding a vestibular healthcare provider visit https://vestibular.org/healthcare-directory/
If you are a vestibular healthcare professional and want to reach more patients, join VeDA's Healthcare Provider Directory by becoming a member at https://vestibular.org/article/resources-for-professionals/professional-membership/. Additional benefits include patient education articles you can brand with your logo.
You never thought it would happen. You thought you would work until retirement or beyond, but then along came your vestibular disorder. Now, focusing on a computer screen is a challenge, you can’t drive, walking is a safety hazard, and your concentration is not what it used to be. Getting through a workday is exhausting and frustrating as you struggle to complete tasks that used to be easy for you. Many people who suffer from chronic vestibular disorders find it difficult to continue working.
In this episode of the ICU - I See You podcast, we’re going to talk with someone who knows all too well the challenges of applying for disability, as well as a disability attorney who has helped many people successfully file a disability claim.
Additional resources about applying for disability with a vestibular disorder go to vestibular.org/disability
This podcast is a co-production of the Vestibular Disorders Association (VeDA) and Unfixed Media. https://unfixedmedia.com/
About the Guests:
Tracey Pate is the founding member and Managing Attorney of Disability Associates LLC where 100% of her practice focuses on obtaining disability benefits for Social Security disability clients. She has over 30 years' experience representing thousands of disabled individuals before the Social Security Administration, the Office of Hearings Operations, the Appeals' Council and the U.S. District Court for the District of Maryland. She has been qualified as an expert witness in the field of Social Security disability law and is a sustaining member of the National Organization of Social Security Claimant's Representatives (NOSSCR). She has a passion for people and the law and is energized when she is able to arrive at a solution that benefits all parties involved.
Camille Jackson suffered a traumatic brain injury in a freak household accident that altered her life forever. Camille was a lawyer and an accomplished expert in foreign policy. Prior to her accident, she worked in diplomacy for almost ten years, traveling to over twenty countries for meetings and projects with embassies. Camille has suffered with daily disabling dizziness for more than four years without answers or a diagnosis. When applying for disability Camille had to lean heavily on the advocacy skills she honed as an attorney. Today, we’re going to learn from her wisdom and experience.
Hosts:
Cynthia Ryan, Executive Director of the Vestibular Disorders Association (VeDA) https://vestibular.org/
Kimberly Warner, Founder and Director of Unfixed Media https://unfixedmedia.com/
VeDA relies on your support to help vestibular patients on their journey to find a life rebalanced. You can make a real difference by making a donation at https://vestibular.org/donate/
If you are experiencing vertigo, tinnitus, dizziness, imbalance, brain fog, or other balance-related symptoms, VeDA may be able to help. To learn more about vestibular conditions and get help finding a diagnosis, treatment, coping tools, and support visit https://vestibular.org/
For help finding a vestibular healthcare provider visit https://vestibular.org/healthcare-directory/
If you are a vestibular healthcare professional and want to reach more patients, join VeDA's Healthcare Provider Directory by becoming a member at https://vestibular.org/article/resources-for-professionals/professional-membership/. Additional benefits include patient education articles you can brand with your logo.
#LifeRebalanced #MakeVestibularVisible #Vertigo #Vestibular #Tinnitus #Dizzy #Balance
Each person’s experience of the menopause transition is unique. Changes affect sleep, mood, mental acuity, and subsequently, you guessed it, our vestibular system. Reports of the effect women’s hormones play on their vestibular systems are common, but symptoms vary. During different hormonal periods, some women report a new onset of symptoms, while others report a worsening of existing symptoms, and some even report improvement.
In this episode of the ICU - "I See You" podcast, hosts are joined by Dr. Maja Scrakic and vestibular patient Nina Coslov who discuss personal experiences and research on this important topic.
This podcast is a co-production of the Vestibular Disorders Association (VeDA) and Unfixed Media. https://unfixedmedia.com/
About the Guests:
Dr. Maja Svrakic is a board certified neurotologist. She holds a faculty appointment at the Northwell Health Department of Otolaryngology at the Long Island Jewish Medical Center and is an Associate Professor of Otolaryngology at Zucker School of Medicine, where she is also the Program Director for the Residency in Otolaryngology and Head & Neck Surgery. Dr. Svrakic immigrated from Belgrade, Serbia, graduated summa cum laude from Washington University in St. Louis, and received her medical degree from Columbia University. She completed residency in Otolaryngology at the Albert Einstein College of Medicine, a fellowship in Neurotology at New York University, and a Masters in Health Professions Pedagogy and Leadership at the Hofstra University School of Education. She has also authored numerous peer-reviewed scientific articles and book chapters.
Nina Coslov has experienced episodic dizziness on and off for years and like many of us, navigated countless doctors and hypotheses, tried many therapies, and wondered about the relationship of her dizzy symptoms to hormonal changes. Nina Coslov created Women Living Better (womenlivingbetter.org) to provide anticipatory guidance about perimenopause. Intent on better characterizing the path to menopause, Nina focuses on education and research. Nina and her research partners have published seven papers in peer-reviewed journals. Nina was the lead author on “Symptom experience during the late reproductive stage and the menopause transition: observations from the Women Living Better survey” published in the journal Menopause. She also authored the chapter “Women’s Voices: The Lived Experience of the Path to Menopause” in Each Women’s Menopause: An evidenced Based Resource. Nina received the 2021 Media Award from the North American Menopause Society.
Additional resource about vestibular disorders in women: https://vestibular.org/wp-content/uploads/2024/03/KIWH_062321_Vestibular-Disorders-in-Women_Flyer_v1.pdf
Hosts:
Cynthia Ryan, Executive Director of the Vestibular Disorders Association (VeDA) https://vestibular.org/
Kimberly Warner, Founder and Director of Unfixed Media https://unfixedmedia.com/
VeDA relies on your support to help vestibular patients on their journey to find a life rebalanced. You can make a real difference by making a donation at https://vestibular.org/donate/
If you are experiencing vertigo, tinnitus, dizziness, imbalance, brain fog, or other balance-related symptoms, VeDA may be able to help. To learn more about vestibular conditions and get help finding a diagnosis, treatment, coping tools, and support visit https://vestibular.org/
For help finding a vestibular healthcare provider visit https://vestibular.org/healthcare-directory/
If you are a vestibular healthcare professional and want to reach more patients, join VeDA's Healthcare Provider Directory by becoming a member at https://vestibular.org/article/resources-for-professionals/professional-membership/. Additional benefits include patient education articles you can brand with your logo.
Primary care practitioners are often the first healthcare professionals we seek when we feel dizzy, disoriented, or not quite right. Their role is to take a medical history and assess whether the person can be treated immediately with medication or therapy, or whether they need to be referred to a specialist for further testing. One challenge, however, is that by definition, primary care practitioners are generalists and may not know enough about the signs and symptoms of vestibular impairment to triage patients appropriately. The good news is that there are Advanced Practice Providers such as Nurse Practitioners and Physician Assistants who specialize in otolaryngology that can serve as a first point of contact to help dizzy patients get on the road to recovery more quickly.
In this episode of the ICU - "I See You" podcast we discuss how specialized NPs, APPs, and PAs can help in vestibular healthcare.
This podcast is a co-production of the Vestibular Disorders Association (VeDA) and Unfixed Media. https://unfixedmedia.com/
About the Guests:
Maria Machala is a certified nurse practitioner and the director of the Dizziness and Balance Clinic at the University of Colorado, where she specializes in otology and neurotology. She has a special interest in vestibular migraine and in the overlap between migraine and Meniere’s disease and other vestibular conditions. She serves as a guest lecturer at the Physician Assistant and Nurse Practitioner schools within the University of Colorado and is a clinical mentor to students in these programs. She teaches advanced practice providers who work in otolaryngology how to perform otologic procedures and comprehensive vestibular evaluations.
Lindsey Mwesigwa is from Dayton, Ohio where she lives with her husband, son, and 2 dogs. One dog is Jazzy, a German Shepherd who is her service dog. She has been a nurse since 2008 and is currently an associate nurse manager on an advanced cardiac floor. Her vestibular journey began in 2016 with minor episodes of vertigo and dizziness. She had periods of brain fog, and then the true nightmare began in September of 2022 when her episodes became severe and debilitating. She was diagnosed with Vestibular Migraines in October 2022 and then PPPD in November of 2023. Having a vestibular disorder has affected her professional and personal life. She is trying to spread awareness and education to help other vestibular warriors who are suffering get relief with quicker diagnosis and treatment.
Hosts:
Cynthia Ryan, Executive Director of the Vestibular Disorders Association (VeDA) https://vestibular.org/
Kimberly Warner, Founder and Director of Unfixed Media https://unfixedmedia.com/
VeDA relies on your support to help vestibular patients on their journey to find a life rebalanced. You can make a real difference by making a donation at https://vestibular.org/donate/
If you are experiencing vertigo, tinnitus, dizziness, imbalance, brain fog, or other balance-related symptoms, VeDA may be able to help. To learn more about vestibular conditions and get help finding a diagnosis, treatment, coping tools, and support visit https://vestibular.org/
For help finding a vestibular healthcare provider visit https://vestibular.org/healthcare-directory/
If you are a vestibular healthcare professional and want to reach more patients, join VeDA's Healthcare Provider Directory by becoming a member at https://vestibular.org/article/resources-for-professionals/professional-membership/. Additional benefits include patient education articles you can brand with your logo.
#LifeRebalanced #MakeVestibularVisible #Vertigo #Vestibular #Tinnitus #Dizzy #Balance
We’ve all messed around with art at some point in our lives and with perfectionists at bay, it can be playful, relaxing and revitalizing. But how often do we pick up a paintbrush because it can also be medicine? Personally, when I was in the deepest terrors of MdDS, needle sculpting with wool became a lifeline, and I know I’m not alone when I say that art can soothe frayed nerves, give us a sense of purpose, and also help the quieter subconscious self within have a voice.
In this episode of the ICU - "I See You" podcast we explore how art (in all its forms) can be a useful and powerful tool for those of us living with vestibular disorders, and how you can bring more of this creative act into your life… even if you’re a novice!
This podcast is a co-production of the Vestibular Disorders Association (VeDA) and Unfixed Media. https://unfixedmedia.com/
About the Guests:
Nicolle Cure is a Colombian-American artist living and working in Miami, Florida. Her abstract paintings explore the relationship between sound and daily life, inspired by her sudden unilateral hearing loss in 2017 and the subsequent diagnosis of Ménière's disease—a vestibular health condition affecting her hearing and balance. Since then, Nicolle has shifted her creative approach and style to illustrate her experience with hearing loss through color and movement. She uses mixed-media techniques, incorporating soft washes and mark-making, to create fluid, abstract, energetic, yet calming paintings. Beyond her art practice, Nicolle is passionate about helping others and raising awareness for causes dear to her heart. In the last seven years, she has partnered with the Hearing Health Foundation and VeDA, donating her time and art to support their fundraising initiatives. You can see Nicolles art at https://www.nicollecure.com/
Jade Chung is a Professional Art Therapist, Integrative Trauma Coach, and Intuitive Healer. Currently based in Vancouver, British Columbia, she works with women who are looking to heal and expand in powerful and creative ways, mind, body, and soul. She is trained in a diversity of modalities that release trauma, rewire the brain, and awaken the soul so that her clients can shift into a life of alignment, authenticity, and embodiment. She is registered with the Canadian Association of Art Therapists and has advanced certifications in integrative trauma work and energy medicine. Learn more about Jade's art and practice at https://www.yourpiece.art/about
Hosts:
Cynthia Ryan, Executive Director of the Vestibular Disorders Association (VeDA) https://vestibular.org/
Kimberly Warner, Founder and Director of Unfixed Media https://unfixedmedia.com/
VeDA relies on your support to help vestibular patients on their journey to find a life rebalanced. You can make a real difference by making a donation at https://vestibular.org/donate/
If you are experiencing vertigo, tinnitus, dizziness, imbalance, brain fog, or other balance-related symptoms, VeDA may be able to help. To learn more about vestibular conditions and get help finding a diagnosis, treatment, coping tools, and support visit https://vestibular.org/
For help finding a vestibular healthcare provider visit https://vestibular.org/healthcare-directory/
If you are a vestibular healthcare professional and want to reach more patients, join VeDA's Healthcare Provider Directory by becoming a member at https://vestibular.org/article/resources-for-professionals/professional-membership/. Additional benefits include patient education articles you can brand with your logo.
#LifeRebalanced #MakeVestibularVisible #Vertigo #Vestibular #Tinnitus #Dizzy #Balance
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