Sarah C. Glover DO (Professor of Medicine, University of Mississippi) answers community questions about the relationships between gastrointestinal issues and primary immunodeficiency.

To view the video of Dr. Glover's full presentation, click here: https://www.youtube.com/watch?v=62Ns3X-Ry6Y

Scholarly article: Clinical Presentations, Diagnostic Considerations, and Therapeutic Options for Gastrointestinal Manifestations of Common Variable Immune Deficiency -- https://journals.lww.com/ajg/Abstract/2022/11000/An_Expert_Opinion_Approach__Clinical.14.aspx

Dr. John W. Seymour, PhD, LMFT (Professor Emeritus and Distinguished Faculty Scholar at Minnesota State University, Mankato)discusses the links between mental and physical health, and how individuals with PI can best care for minds.

Click here to view a PDF of the presentation: https://primaryimmune.org/sites/default/files/2022%20PI%20Conference-Connection%20Physical%20Mental%20Health-Seymour.pdf

Ask IDF: http://www.primaryimmune.org/askidf

Donate or volunteer: https://primaryimmune.org/waystogive

Alissa Creamer (IDF's Director of Community Services) and Melissa Raspa (RTI's Senior Research Public Health Analyst) discuss the successes of the 4-year SCID Compass program.

SCID Compass Website: https://scidcompass.org/

RTI International: https://www.rti.org/

PI and Travel: https://primaryimmune.org/travelling-with-pi

The information, terminology, and opinions presented in this forum do not necessarily reflect the views of IDF, its Board of Trustees, sponsors, or donors.

IDF's own Colleen Brock (RN, Manager of Medical Programs) and Stephanie Steele (Director of Payor Relations and Policy) give a presentation on making sure you, as an individual with PI, have the tools you need to get the care you deserve.

The information, terminology, and opinions presented in this forum do not necessarily reflect the views of IDF, its Board of Trustees, sponsors, or donors.

Returning to In-Person Events

IDF's Tammy Black and Alissa Creamer discuss the organization's return to in-person events, as well as the safety protocols and virtual offerings available at the upcoming Walk for PI and PI Conference events.

IDF Clinician Finder: https://primaryimmune.org/clinician-finder

Walk for PI: https://www.walkforpi.org/

Primary Immunodeficiency Conference: https://web.cvent.com/event/1593c0cc-9b7b-4ffc-9f24-d4964dda8206/summary

2022 is already more than half over, so we at IDF are reflecting on the goals we’ve set, and the progress we’ve made toward meeting them. On this episode, Jamie Sexton, director of state policy, and Becca Russ, grassroots advocacy specialist, discuss the organization’s advocacy work at a state level so far this year, and the progress we’ve made toward improving the lives of those in the PI community.

Faces of IDF: https://primaryimmune.org/faces-idf

I Am Immunocompromised Card: https://primaryimmune.org/immunocompromised-card

Action Alerts: https://primaryimmune.org/current-action-alerts

M. Elizabeth M. Younger, CRNP, PhD, Assistant Professor of Pediatrics at Johns Hopkins University School of Medicine joined us at a recent IDF forum to discuss immunoglobulin replacement therapy and the various ways it can be tweaked to fit each patient's unique needs.

The information, terminology, and opinions presented in this forum do not necessarily reflect the views of IDF, its Board of Trustees, sponsors, or donors.

To view the slideshow used in the presentation, click here: https://primaryimmune.org/sites/default/files/4-For%20Website-IDF%20Forum-Ig%20Therapy-FINAL-5.19.22.pdf

Thank you to Takeda, CSL Behring, Grifols, and Accredo for sponsoring this event.

Dr. Arturo Casadevall is a Bloomberg Distinguished Professor of Molecular Microbiology & Immunology and Infectious Diseases, as well as a recent inductee to the National Academy of Sciences. Today, he joins us to discuss his research into convalescent plasma in the fight against COVID-19.

Tammy Black sits down with IDF's new President and CEO, Jorey Berry, to discuss surprises and goals after her first few months with the organization.

When a child is diagnosed with Severe Combined Immunodeficiency or SCID, not only is the child affected but the family is as well. In this episode, we will be talking with certified child life specialist, Samantha Childs, MS, CCLS about the importance of supporting siblings of children with chronic illness, specifically SCID. This session was originally presented as a SCID Compass Lunch and Learn.