The Cancer Letter

In the Headlines: Missing record of NCAB meetings restored to NIH website


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In this episode of The Cancer Letter Podcast, Jacquelyn and Paul talk about the first meeting of the National Cancer Advisory Board, the uncertainty of cancer registries, and about choosing what to cover as the Trump administration “floods the zone.”

At the time of recording, the recording of the two June 10 NCAB meetings had been taken off the videocast website, raising concerns about the availability of public record.

“We do watch these things and we do care about these things, and I think the world needs to have these things,” Paul said “Having an entire two meetings missing, I sure as heck hope they find them. But, again, this is something that's of great importance to us and probably not many others.”

As of June 18, both NCAB meetings are now available on the NIH website

“A few years ago, really a few months ago, we would've made a big deal out of this because, this is public record. That's what we do,” Paul said.

As a near-endless stream of crucial information trickles out of Washington and out of cancer centers across the country, Jacquelyn talks about how important it is to keep up. 

“It’s the first time in my journalistic career—very short journalistic career—that it feels like we really have to be writing this stuff down,” Jacquelyn said. “We have to be recording it. People's lives are at stake, you know?”

Other stories mentioned this week include:

  • The Directors: Candace Johnson and Jonathan Friedberg on living through uncertainty at NCI, payment woes

  • Senators slam Bhattacharya for deflecting responsibility for NIH cuts, upheaval—Susan Collins: Trump’s 40% cut is “so disturbing”

  • In first NCAB meeting since Trump's inauguration, Lowy reflects on funding choices in lean times

  • CRC patients with cannabis use disorder may have higher odds of death within five years of diagnosis

  • The Cancer Letter receives nine journalism, design awards  

  • In “Bethesda Declaration,” NIH employees, Nobel laureates say Bhattacharya is favoring politics over U.S. science, health


Access the transcript of this episode at https://cancerletter.com/podcastc/missing-record-of-ncab/

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