Did you know that rocking back and forth isn’t a symptom of schizophrenia — it’s a side effect of the medication used for treatment. It’s called tardive dyskinesia, and it’s a common result of long-term use of antipsychotic medications. 

The percentage of patients who will experience tardive dyskinesia ranges from 3% to as high as 68% and can have a negative impact on quality of life.

Dee Linde, who is a support group leader with the Dystonia Medical Research Foundation, joins and shares her incredible journey with tardive dystonia — a progressed form of tardive dyskinesia. 

Host Rachel Star Withers, a diagnosed schizophrenic, and cohost Gabe Howard discuss the effects of tardive dyskinesia, personal stories, and ways to manage it in this episode of Inside Schizophrenia. 

To learn more, visit the official episode page here.

Guest Bio

Dee Linde, MA, is a U.S. navy veteran and worked as a licensed marriage and family therapist for 15 years. Linde was diagnosed with tardive dystonia in 1997 and had deep brain stimulation (DBS) surgery in 2000. In 2002 Linde founded the DBSforDystonia Yahoo group to offer online peer support and information to those on the DBS journey. She now moderates the Dystonia & Deep Brain Stimulation Facebook group. Linde also leads the Portland, Oregon & Southwest Washington Dystonia Support Group. She has served on the Department of Defense’s Peer Reviewed Medical Research Program’s consumer reviewer panel for dystonia research applications and has testified before the Senate Defense Appropriations Subcommittee urging federal legislators to keep dystonia on the list of conditions included in the Department of Defense’s exclusive research program. Linde is a member of the Dystonia Medical Research Foundation’s Community Leadership Council, a frequent speaker at DMRF events, and a member of the Dystonia Dialogue newsletter’s editorial board.

https://dystonia-foundation.org/

Inside Schizophrenia Podcast Host

Rachel Star Withers creates videos documenting her schizophrenia, ways to manage and let others like her know they are not alone and can still live an amazing life. She has written Lil Broken Star: Understanding Schizophrenia for Kids and a tool for schizophrenics, To See in the Dark: Hallucination and Delusion Journal. Fun Fact: She has wrestled alligators.

To learn more about Rachel, please visit her website, RachelStarLive.com.

Inside Schizophrenia Co-Host

Gabe Howard is an award-winning writer and speaker who lives with bipolar disorder. He is the author of the popular book, "Mental Illness is an Asshole and other Observations," available from Amazon; signed copies are also available directly from the author.

Gabe makes his home in the suburbs of Columbus, Ohio. He lives with his supportive wife, Kendall, and a Miniature Schnauzer dog that he never wanted, but now can’t imagine life without. To learn more about Gabe, please visit his website, gabehoward.com.

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Did you know the average American can’t withstand an unexpected $1,000 bill? When it comes to paying for schizophrenia, the two biggest costs are medication, followed by hospitalization. For someone who has had psychiatric hospitalization, the average annual cost of mental health treatment is around $37,000.

Host Rachel Star Withers, a diagnosed schizophrenic, and cohost Gabe Howard search out options for managing the financial costs of schizophrenia in this episode of “Inside Schizophrenia.”  

Greg McBride, chief financial analyst for Bankrate.com, joins us to discuss the best ways to approach unexpected expenses.

Guest Bio

Greg McBride is the senior vice president and chief financial analyst for Bankrate.com, the preeminent personal finance website. He leads a team responsible for researching financial products, providing analysis, and giving advice on personal finance to a vast consumer audience. With more than 25 years of experience in personal finance, he is a subject-matter expert who has the unique ability to provide both in-depth commentary and practical advice to consumers. Through Bankrate.com's Money Makeover series, he has helped consumers plan for retirement, manage debt, and develop appropriate investment allocations.

McBride has appeared on hundreds of national cable and network broadcasts, including NBC's "Nightly News," CBS's "Evening News," and ABC's "World News Tonight," and has been a frequent guest on CNBC and Fox Business. McBride is routinely quoted by major media outlets such as The New York Times, Wall Street Journal, and USA Today, and is a regular guest on financial talk shows throughout the United States. 

McBride currently serves on the board of Money Management International of Sugar Land, TX, the nation’s largest nonprofit credit counseling agency accredited by the National Foundation for Credit Counseling, and is chairman of both the compensation committee and the investment committee. He has a distinguished record of serving on boards in the credit counseling industry.

McBride has also served on the funding board of the Consumer Financial Education Fund through the Rose Foundation of Oakland, CA.

McBride is a graduate of the University of Florida and has earned the designation of chartered financial analyst.

Inside Schizophrenia Podcast Host

Rachel Star Withers creates videos documenting her schizophrenia, ways to manage and let others like her know they are not alone and can still live an amazing life. She has written Lil Broken Star: Understanding Schizophrenia for Kids and a tool for schizophrenics, To See in the Dark: Hallucination and Delusion Journal. Fun Fact: She has wrestled alligators.

To learn more about Rachel, please visit her website, RachelStarLive.com.

Inside Schizophrenia Co-Host

Gabe Howard is an award-winning writer and speaker who lives with bipolar disorder. He is the author of the popular book, "Mental Illness is an Asshole and other Observations," available from Amazon; signed copies are also available directly from the author.

Gabe makes his home in the suburbs of Columbus, Ohio. He lives with his supportive wife, Kendall, and a Miniature Schnauzer dog that he never wanted, but now can’t imagine life without. To learn more about Gabe, please visit his website, gabehoward.com.

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Over the past few years, there has been a major shift in the ways we talk about mental health. Stories go viral about companies putting mental health first, influencers across social media post about the importance of mental self-care — but serious mental disorders, especially schizophrenia, are still being left out of the conversation.

Host Rachel Star Withers, a diagnosed schizophrenic, and co-host Gabe Howard, explore where schizophrenia fits into this new wave of mental health discussions in this episode of Inside Schizophrenia.

AnnMarie Giannino, the founder of a campaign called What Would You Miss?, joins to share how she has been working to bridge the gap of bringing serious mental health issues into our everyday conversations.

To learn more -- or read the transcript -- please visit the official episode page here.

Guest Bio

AnnMarie Giannino

What Would You Miss?

www.whatwouldyoumiss.com

Both a simple question and, perhaps, the seeds of a movement, What Would You Miss? creates a dialogue between people who struggle with mental illness and those whose lives they touch. Respondents have offered answers like “I would miss the way my dog wakes me up in the morning by gently tapping my face with his paw,” “I would miss Christmas time,” and “I would miss seeing how compassionate and caring my kids are.”

While depression and suicide are no longer as shrouded in secrecy and shame as they were even a few years ago, the topic can feel like a minefield, especially to someone who is not formally trained to handle it. When someone you love is suffering, the prospect of approaching that person and saying the “wrong” thing can be terrifying. And, if you’re immersed in the struggle yourself, the mere act of reaching out may seem like an imposition that will only drive loved ones away. Simply asking or answering the question, “What would you miss?” connects people on both sides of the dilemma, giving them a softer way to have a difficult conversation.

Inside Schizophrenia Podcast Host

Rachel Star Withers creates videos documenting her schizophrenia, ways to manage and let others like her know they are not alone and can still live an amazing life. She has written Lil Broken Star: Understanding Schizophrenia for Kids and a tool for schizophrenics, To See in the Dark: Hallucination and Delusion Journal. Fun Fact: She has wrestled alligators.

To learn more about Rachel, please visit her website, RachelStarLive.com.

Inside Schizophrenia Co-Host

Gabe Howard is an award-winning writer and speaker who lives with bipolar disorder. He is the author of the popular book, "Mental Illness is an Asshole and other Observations," available from Amazon; signed copies are also available directly from the author.

Gabe makes his home in the suburbs of Columbus, Ohio. He lives with his supportive wife, Kendall, and a Miniature Schnauzer dog that he never wanted, but now can’t imagine life without. To learn more about Gabe, please visit his website, gabehoward.com.

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What immediately comes to mind when you think of schizophrenia? Most people would say hallucinations. Hallucinations, at least according to pop culture, are the defining feature of schizophrenia. But is that true? 

Today’s episode discusses how many people living with schizophrenia hallucinate and if hallucinations are all the same. Do people in different countries or from different backgrounds hallucinate differently? Join us to learn the answers to these questions and more!

Guest Bio

Paul Fitzgerald, PhD completed his medical degree at Monash University and subsequently a Master of Psychological Medicine whilst completing psychiatric training. He then undertook a Clinical and Research Fellowship at the University of Toronto and The Clarke Institute of Psychiatry, Toronto, Ontario, Canada. On returning to Melbourne, he worked as a psychiatrist and completed a PhD in transcranial magnetic stimulation in schizophrenia. Since completing this PhD, he has developed a substantial research program including a team of over 25 psychiatrists, registrars, postdoctoral researchers, research assistants, research nurses, and students.

Professor Fitzgerald runs a research program across both MAPrc and Epworth Clinic using brain stimulation and neuroimaging techniques including transcranial magnetic stimulation, functional and structural MRI, EEG, and near infrared spectroscopy. The primary focus of this program is on the development of new brain stimulation-based treatments for psychiatric disorders. Visit him online at www.paulbfitzgerald.com.

Inside Schizophrenia Podcast Host

Rachel Star Withers creates videos documenting her schizophrenia, ways to manage and let others like her know they are not alone and can still live an amazing life. She has written Lil Broken Star: Understanding Schizophrenia for Kids and a tool for schizophrenics, To See in the Dark: Hallucination and Delusion Journal. Fun Fact: She has wrestled alligators.

To learn more about Rachel, please visit her website, RachelStarLive.com.

Inside Schizophrenia Co-Host

Gabe Howard is an award-winning writer and speaker who lives with bipolar disorder. He is the author of the popular book, "Mental Illness is an Asshole and other Observations," available from Amazon; signed copies are also available directly from the author.

Gabe makes his home in the suburbs of Columbus, Ohio. He lives with his supportive wife, Kendall, and a Miniature Schnauzer dog that he never wanted, but now can’t imagine life without. To learn more about Gabe, please visit his website, gabehoward.com.

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If you live with schizophrenia, then disclosing that diagnosis is a decision you’re going to have to make multiple times throughout your life. But, do you have to? What are the pros and cons of disclosing at work, for example? What do you actually say, and to who, at your place of employment? Will it hurt your career?

Host Rachel Star Withers, a diagnosed schizophrenic, shares her personal story, thoughts, and tips, and interviews the retired executive director from Disability Rights Ohio and licensed attorney Michael Kirkman to help navigate the Americans with Disabilities Act.

To learn more -- or read the transcript -- please visit the official episode page here.

Guest Bio

Michael Kirkman, JD, spent over 40 years as an advocate for those whom society had cast aside, including poor and minority people and people with disabilities. As a lawyer who practiced at the highest levels, including the United States Supreme Court, and who was sought out for consultation with officials at the U.S. Departments of Justice and HHS, as well as state officials in Columbus, his work improved the lives of tens of thousands of people. Prior to his retirement, Kirkman was the executive director of Disability Rights Ohio (DRO), a not-for-profit corporation whose mission is to advocate for the human, civil, and legal rights of people with disabilities. DRO is the federally mandated system to protect and advocate for the rights of people with disabilities (P&A) in Ohio. He previously served as the director and legal director of the Ohio Legal Rights Service, Ohio’s state agency P&A until 2012. Kirkman also served as President of the National Disability Rights Network from 2017 to 2020.

Inside Schizophrenia Podcast Host

Rachel Star Withers creates videos documenting her schizophrenia, ways to manage and let others like her know they are not alone and can still live an amazing life. She has written Lil Broken Star: Understanding Schizophrenia for Kids and a tool for schizophrenics, To See in the Dark: Hallucination and Delusion Journal. Fun Fact: She has wrestled alligators.

To learn more about Rachel, please visit her website, RachelStarLive.com.

Inside Schizophrenia Co-Host

Gabe Howard is an award-winning writer and speaker who lives with bipolar disorder. He is the author of the popular book, "Mental Illness is an Asshole and other Observations," available from Amazon; signed copies are also available directly from the author.

Gabe makes his home in the suburbs of Columbus, Ohio. He lives with his supportive wife, Kendall, and a Miniature Schnauzer dog that he never wanted, but now can’t imagine life without. To learn more about Gabe, please visit his website, gabehoward.com.

Learn more about your ad choices. Visit megaphone.fm/adchoices

Cognitive behavioral therapy is a proven treatment for a wide range of mental health conditions and emotional struggles, but many times is not used for treating schizophrenia. Schizophrenia’s symptoms of hallucinations and psychosis are assumed to be too complex for this type of therapy. 

Host Rachel Star Withers, a diagnosed schizophrenic, and co-host Gabe Howard, explore the types of CBT that best work for schizophrenia. Rachel breaks down her “Monster Technique” that she uses daily to help her deal with her visual hallucinations.

Guest Cornelia Larsson, licensed psychologist and psychotherapist, joins to talk in-depth about CBT techniques for dealing with audio hallucinations like hearing voices.

To learn more -- or read the transcript -- please visit the official episode page here.

Guest Bio

Dr. Cornelia Larsson is a licensed clinical psychologist and psychotherapist who spent most of her career working in Swedish psychiatric clinics. Currently, she’s a doctoral student working toward her PhD by researching psychological treatments for psychosis, and is a course coordinator in psychotherapist education at Centre for Psychiatry Research at Karolinska Institutet & Region Stockholm. She’s also a director of studies for the psychologists at the South-West Psychiatric Clinic in Region Stockholm and gives lectures mainly on cognitive behavior therapy and psychosis. Although Larsson has worked with individuals living with all sorts of psychiatric diagnoses during her career, her main focus the last 10 years have been on individuals living with psychosis and schizophrenia. Clinically, she has taken a special interest in helping individuals with distressing voices, who engage in frequent self-harm and suicide attempts, to change their relationships to their voices and thereby regain hope and quality of life.

Inside Schizophrenia Podcast Host

Rachel Star Withers creates videos documenting her schizophrenia, ways to manage and let others like her know they are not alone and can still live an amazing life. She has written Lil Broken Star: Understanding Schizophrenia for Kids and a tool for schizophrenics, To See in the Dark: Hallucination and Delusion Journal. Fun Fact: She has wrestled alligators.

To learn more about Rachel, please visit her website, RachelStarLive.com.

Inside Schizophrenia Co-Host

Gabe Howard is an award-winning writer and speaker who lives with bipolar disorder. He is the author of the popular book, "Mental Illness is an Asshole and other Observations," available from Amazon; signed copies are also available directly from the author.

Gabe makes his home in the suburbs of Columbus, Ohio. He lives with his supportive wife, Kendall, and a Miniature Schnauzer dog that he never wanted, but now can’t imagine life without. To learn more about Gabe, please visit his website, gabehoward.com.

Learn more about your ad choices. Visit megaphone.fm/adchoices

Virtual reality has moved beyond gaming and is an emerging technology in the treatment of schizophrenia and potentially in shaping the portrayal of this mental health condition for younger generations.

Host Rachel Star Withers, a person living with schizophrenia, and cohost Gabe Howard explore how virtual reality technologies are used to help people with schizophrenia.

Deepak Gopalakrishna, the founder and CEO of virtual reality therapy platform Rey, joins to share how Rey is revolutionizing exposure therapy for people with anxiety, PTSD, depression, and schizophrenia.

And later in the show, Barry Gene Murphy and May Abdalla, the producers of “Goliath: Playing with Reality,” share the inspiration behind their new award-winning virtual reality movie. “Goliath: Playing with Reality” is the true story of a man’s experience with schizophrenia, and is narrated by Academy Award winner Tilda Swinton.

To Learn more or read the transcript, visit the official episode page here.

Guest Bios

Deepak Gopalakrishna, the founder and CEO of Rey, is a highly accomplished customer-centric innovator. A seasoned entrepreneur with deep expertise in healthcare, AI, blockchain and digital innovation, he has founded and led the growth of seven companies.

With an MBA and a doctorate in genetics and Molecular biology, Deepak has the unique ability to merge the rigor of a scientist with the creativity of an entrepreneur. The vision for Rey was born: Take the best mental health clinicians in the world and transfer their methodologies into user-friendly automated digital treatments. You can find out more at www.getrey.com.

May Abdalla, the co-director, writer, and executive producer of “Goliath: Playing with Reality,” is an experimental documentary filmmaker who has won numerous awards for her work in the immersive and interactive arts. She founded the production company Anagram in 2013 to explore immersive technologies, especially in the documentary genre.

Barry Gene Murphy, the director and writer of “Goliath: Playing with Reality,” is an award-winning filmmaker and artist with over 15 years’ experience in animation, 3D and special effects, and more recently in mixed-reality works.

Goliath: Playing with Reality is Available to download for FREE on Oculus now:

Oculus: https://www.oculus.com/experiences/quest/3432432656819712/  

Website: https://goliathvr.io/ 

Discord: https://discord.com/channels/864490434927788072/874057550654472213 

Inside Schizophrenia Podcast Host

Rachel Star Withers creates videos documenting her schizophrenia, ways to manage and let others like her know they are not alone and can still live an amazing life. She has written Lil Broken Star: Understanding Schizophrenia for Kids and a tool for schizophrenics, To See in the Dark: Hallucination and Delusion Journal. Fun Fact: She has wrestled alligators.

To learn more about Rachel, please visit her website, RachelStarLive.com.

Inside Schizophrenia Co-Host

Gabe Howard is an award-winning writer and speaker who lives with bipolar disorder. He is the author of the popular book, "Mental Illness is an Asshole and other Observations," available from Amazon; signed copies are also available directly from the author.

Gabe makes his home in the suburbs of Columbus, Ohio. He lives with his supportive wife, Kendall, and a Miniature Schnauzer dog that he never wanted, but now can’t imagine life without. To learn more about Gabe, please visit his website, gabehoward.com.

Learn more about your ad choices. Visit megaphone.fm/adchoices

From smartphones to tablets, apps, and health tracking devices, technology has the ability to change the way schizophrenia is treated and challenge dated thoughts on how people with schizophrenia use technology in our daily lives. In this episode of Inside Schizophrenia, host Rachel Star Withers, a diagnosed schizophrenic, and co-host Gabe Howard, review the top 4 schizophrenia-related smartphone apps and explore what’s holding technology innovations back in the area of schizophrenia treatment. CNET senior editor, Alison DeNisco Rayome, who leads the series Tech For A Better World, joins to highlight recent advancements in the realm of technology evolution for people with disabilities. 

To learn more, visit the official episode page here.

Alison DeNisco Rayome is a senior editor at CNET and leads the series Tech For A Better World. CNET’s Tech for A Better World highlights the growing diversity of the technology ecosystem, and the people who are creating products to improve our lives and our communities.

Rachel Star Withers creates videos documenting her schizophrenia, ways to manage, and let others like her know they’re not alone and can still live an amazing life. She has written “Lil Broken Star: Understanding Schizophrenia for Kids” and a tool for schizophrenics, “To See in the Dark: Hallucination and Delusion Journal.” Learn more at RachelStarLive.com.

Gabe Howard lives with bipolar disorder and is a nationally recognized speaker and podcast host. He is the author of the book, “Mental Illness is an Asshole and other Observations,” available from Amazon; signed copies available directly from the author. To learn more about Gabe, please visit gabehoward.com.

Learn more about your ad choices. Visit megaphone.fm/adchoices

A psychologist and psychiatrist are both mental health professionals who can treat schizophrenia. But what’s the difference? Both specialities are commonly referred to as doctors and confusion often results. Today’s episode tackles the differences and touches on what a person visiting with each professional can expect. 

People with schizophrenia commonly wonder: How are they similar? Who should they see first? Do they need to see both?

Host Rachel Star Withers, a diagnosed schizophrenic, and co-host Gabe Howard, share their medical health journeys in treatment with numerous doctors and how both psychologists and psychiatrists have played an important part. 

Guest John Grohol, PsyD, founder of PsychCentral.com and a psychologist, joins to help people understand the differences between the two.

To read the transcript or learn more, please visit the the official episode page here.

Dr. John Grohol is the founder of Psych Central. He’s an author, researcher, and expert in mental health online, and has been writing about online behavior, mental health, and psychology issues since 1995. Grohol has a Master’s degree and a doctorate in clinical psychology from Nova Southeastern University. He sits on the editorial board of the journal Computers in Human Behavior and is a founding board member of the Society for Participatory Medicine.

Rachel Star Withers creates videos documenting her schizophrenia, ways to manage, and let others like her know they’re not alone and can still live an amazing life. She has written “Lil Broken Star: Understanding Schizophrenia for Kids” and a tool for schizophrenics, “To See in the Dark: Hallucination and Delusion Journal.” Learn more at RachelStarLive.com.

Gabe Howard lives with bipolar disorder and is a nationally recognized speaker and podcast host. He is the author of the book, Mental Illness is an Asshole and other Observations, available from Amazon; signed copies available directly from the author. To learn more about Gabe, please visit gabehoward.com.

Learn more about your ad choices. Visit megaphone.fm/adchoices

Flight delays, crowded airports, hotel reservations, jet lag... Travel is stressful for everyone, but especially people with schizophrenia. Host Rachel Star Withers and co-host Gabe Howard discuss the risks and rewards of traveling while having a serious mental health condition. Laura Motta, editorial director of Lonely Planet, joins to share some tips about staying safe while traveling — and some cool destination ideas.

To learn more or view the transcript, please visit the official episode page.

Laura Motta is the editorial director of LonelyPlanet.com. Previously, she was leading content teams at ShermansTravel for nine years. Before that, she held positions at Travelzoo, iVillage, and EverydayHealth, and lived in Paris. Follow her travels on Instagram.

Rachel Star Withers creates videos documenting her schizophrenia, ways to manage, and let others like her know they’re not alone and can still live an amazing life. She has written “Lil Broken Star: Understanding Schizophrenia for Kids” and a tool for schizophrenics, “To See in the Dark: Hallucination and Delusion Journal.” Learn more at RachelStarLive.com.

Gabe Howard lives with bipolar disorder and is a nationally recognized speaker and podcast host. He is the author of the book, Mental Illness is an Asshole and other Observations, available from Amazon; signed copies available directly from the author. To learn more about Gabe, please visit gabehoward.com.

Learn more about your ad choices. Visit megaphone.fm/adchoices