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This week we have a guest -- and a guest co-host. Kate DeBartolo and Justin Magnuson help with the very large conversation around how to talk about our plans and wishes for ourselves in the event of chronic illness. Go gently into this conversation and emerge with a deeper connection to your full humanity
About Our Guest: Ms. DeBartolo oversees The Conversation Project, IHI’s public engagement initiative to help people share their wishes for care through the end of life. In addition to leading The Conversation Project team and operations, Ms. DeBartolo manages and cultivates relationships with national and state-level organizations that help engage the general public in advance care planning. Since starting in July 2007, she has been involved in the 5 Million Lives Campaign, Improvement Map, Project JOINTS, and many of IHI’s other large-scale initiatives. Prior to joining IHI, Ms. DeBartolo worked as a grant analyst at The California Endowment. She is a graduate of Wellesley College and currently lives in Washington DC with her husband and son.
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It's a new season, and a new format for the podcast! This season, we're bringing in more of the Healwell folks to talk compassion, equity, caring for humans, and more. This week, we talk about what it's *really* like to try to live Healwell's core values in our daily lives.
Infographic of 50 Cognitive Biases
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Cal talks with Teresa Nguyen about the very human experience of living with a disability, advocating for oneself in a world that is not often aware of your needs, and what every human can do to become more aware of the needs of other humans.
Teresa also appeared on this episode of "Terrible, Thanks for Asking"
And here is an article about navigating a relationship with a disability
About Our Guest:
Teresa Nguyen is from Denver, Colorado. She identifies as a Vietnamese-American woman with a disability and her pronouns are "she, her, hers". Teresa received her Master of Public Health from the University of Colorado Anschutz Medical Campus, and her work is focused around health care policies and systems improvement, for vulnerable populations. She has experience in both Federal and State level health program and policy development, and is currently a curriculum developer at the Colorado Office of Employment First, training on the intersection of work and health for people with disabilities. In her free time, Teresa enjoys cooking and traveling with her dog, Mylo!
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This week's conversation goes deep -- into compassion, humanity, and our fundamental connection to each other. This conversation with Ladybird Morgan and Marvin Mutch of the Humane Prison Hospice Project will invite you to deep reflection and consideration of the ways in which we separate ourselves from each other.
The Human Prison Hospice Project
"Prison Terminal: The Last Days of Private Jack Hall"( a short film)
About Our Guests:
Ladybird Morgan RN, MSW, BCST Practitioner, is one of the co-founders and the Program Director of Humane Prison Hospice Project. In addition to her 20+ years working in hospice and palliative medicine, she has a wealth of experience dealing with trauma, mental health and the painful repercussions of sexual violence. Ladybird has guided medical practitioners, families and private caregivers, as well as directors of programs and institutions around the world on how to be present to experiences that may be hard to hear or bear witness to. Her role as program director includes training and supervising the Brother’s Keepers Peer Support Crisis Counseling and Compassionate End of Life Program. Ladybird is currently a private palliative care consultant with Mettlehealth -www.mettlehealth.com and co-facilitates discussions about the practical challenges as well as the mystical realms of chronic and terminal illness through Commonweal's Cancer Care Help Program, Healing Circles, and UCSF/MERI Center's Last Acts of Kindness.
Marvin Mutch is a formerly incarcerated prison reform activist and co-founder of the Humane Prison Hospice Project. Mr. Mutch served 41 years of an indeterminate 7-year to life sentence for a wrongful conviction suffered in 1975. He was freed in 2016 due wholly to the tireless efforts of Professor Heidi Rummel of the USC Post Conviction Justice Project, Professor Emerita Susan Rutberg from the Golden Gate University Innocence Project, and Attorney Michael Snedeker of Snedeker & Short. After a lifetime of experience advocating for the humane treatment and human rights of his fellow prisoners throughout the California prison system, Marvin is now set to apply his deep understanding towards advancing the human rights of incarcerated people everywhere.
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How do the words we use affect the people we serve? What could be problematic about some of the common things we say as care providers? What happens when we listen to our words from a different perspective? Cal and Cathy welcome Anne Kelemen to the podcast to consider the question of language. (This episode originally aired in February, 2021.)
Check out Anne Keleman's CE courses:
To Chart or Not to Chart
The Power of Our Words
Anne Kelemen's articles:
About Our Guest: Anne Kelemen is the Director of Psychosocial/Spiritual Care for the Section of Palliative Care at MedStar Washington Hospital Center in Washington, DC, where she conducts patient care, teaches and participates in a variety of research activities. She also serves as an Associate Professor of Medicine at Georgetown University and as Associate Program Director for the MedStar Georgetown Interprofessional Palliative Care Fellowship Program. Prior to joining the Hospital Center staff, Ms. Kelemen instituted the first palliative care service at MedStar Good Samaritan Hospital in Baltimore, Maryland. She is board certified in hospice and palliative social work and is a board member for the Social Work Hospice and Palliative Network (SWHPN) where she currently chairs the membership committee.
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In this episode, Cal talks with Dr. Rachel Beda, a physician practicing in a concierge setting in Seattle. The conversations touches on equity, gender affirming care, the challenges of building relationship in a primary care practice, and the thorny question of "obesity medicine."
About Our Guest:
Dr. Rachel Beda is an internal medicine physician in Seattle, where she has provided gender-affirming medical care (including HRT) for over a decade. She is co-owner and medical director of Wise Patient Internal Medicine, a small Direct Primary Care clinic on Capitol Hill.
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Cal joins Kerry Jordan and Rebecca Sturgeon for a behind-the-scenes review of Healwell's Just Care: Social Justice in Health Care conference.
& so much moreListen on: Apple Podcasts Spotify
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Cal and Cathy are on their own this week, talking about all the things that have been on their minds -- like misinformation, disinformation, and the state of the world in the US and Canada. It's a free-for-all of evidence-based fun!
Resources:
Listen on: Apple Podcasts Spotify
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This week's guest is Debbie LaFond, interdisciplinary team legend. Debbie talks the difference between pediatric and adult care, and what palliative care has to bring for every human.
About Our Guest:
Deborah “Debbie” LaFond, DNP, PPCNP-BC, CPON, CHPPN, FPCN, FAAN
In the first 21 years of her career, Debbie worked as a nurse practitioner in pediatric palliative care Children’s National Medical Center before spending another 8 years serving in the role of Director of Clinical Services for the Pediatric Advanced Needs Assessment and Care Team, affectionately known as the PANDA Care Team. In 2020, Debbie joined forces with three other clinicians to found Panda Education Consultants whose mission of this organization is to develop, implement and evaluate interprofessional pediatric and neonatal primary palliative care education and mentorship in clinical practice and on professional resilience. Dr. Lafond also provides consultation on pediatric palliative care program development.
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Cal and Cathy welcome Dr. Gayle Dine'Chacon, founder of the Center for Native American Health (CNAH) and former Surgeon General for the Navajo Nation. It's about sovereignty, relationships, and awareness of our connection to each other.
About Our Guest: Gayle Dine’Chacon, M. D. is an enrolled member of the Navajo Nation. She is a Professor in the Department of Family and Community Medicine at the University of New Mexico School of Medicine (UNMSOM), where she founded the Center for Native American Health (CNAH). She served as Surgeon General for the Navajo Nation and was a member of the Advisory Council for the Office of Minority Health, US Department of Health and Human Services. Currently, she is the Executive Director of the Native American Budget and Policy Institute (NABPI) in the UNM Center for Social Policy which analyzes research and budget policies in areas of health, education and environmental justice for our native children, families and communities.
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From the publisher's feed
Interdisciplinary is Healwell's healthcare podcast about all the places and perspectives that lift us up. We say what other people aren't willing to say and we always say the quiet parts…