Welcome to From Care to Cure, a podcast from the Massachusetts General Hospital Frontotemporal Disorders Unit.  This episode features a conversation between Dr. Brad Dickerson, Director of the MGH FTD Unit, and Katie Brandt, the Director of Caregiver Support Services and Public Relations in the Unit.  They discuss what care planning is and what steps families should take after someone receives a diagnosis of a frontotemporal disorder or related condition to ensure the wishes and personhood of the person with FTD are respected throughout the course of the disease.

If you would like to learn more about care planning, the MGH FTD Unit is hosting a four-part webinar series throughout 2025 on the Care Plan Trifecta, looking at the medical, home and advocacy communities as a framework to implement a care plan.  Learn more about it at the MGH FTD Unit’s website (https://ftdboston.org/2025/02/19/care-plan-trifecta-webinar/) and YouTube channel (https://www.youtube.com/watch?v=lyOht4481y8&list=PLVKGfYzi1DDoAK9q4oQizYhLizn1CX2yo&pp=gAQB).

You can search for support groups appropriate to your situation at AFTD (https://www.theaftd.org/living-with-ftd/aftd-support-groups/) and the Alzheimer’s Association (https://www.alz.org/event-search?category=Support+Groups).

The MGH FTD Unit clinical research program is committed to providing the highest quality of care while we work tirelessly for a cure for FTD, atypical and young-onset forms of Alzheimer’s Disease and related neurological disorders. You can learn more about the MGH FTD Unit at www.FTDBoston.org.

We would like to thank Bernie Metzger for our beautiful music, an excerpt from Bernie’s composition Ramblings An FTD Journey, inspired by his wife Karen Zander’s journey with FTD.

Amy Almeida is our producer.

From Care to Cure is made possible by generous contributions from donors to the MGH FTD Unit.  If you would like to support our work, visit www.FTDBoston.org/Donate. 

Please follow, like and share From Care to Cure so that we can raise awareness, funds and hope that the cure of tomorrow is not so far from the care of today.