Its Not All About ME

Episode 20 = How Are You Doing? Part Two

This week having had time to reflect, consider and incorporate the experiences of fellow folk with ME, we return to the complexities of answering the simple question, How you doing? On the way we discuss “coming out” as someone with ME and ask if we are doing our loved ones an injustice when we don’t share the full details of our illness.

MUSIC – Feeling sunny by Scott Holmes from Free Music Archive

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Episode 19 – feat. KT King

This week we are joined by the fabulous KT King, author of Little Eden. We chat about the hard realities of chronic illness, the importance of good friends, how she represents MECFS in her writing and why everyone should find their Jessica Fletcher Hour.

KT King and her books can be found on linktr.ee/ktkingbooks

MUSIC – Feeling sunny by Scott Holmes from Free Music Archive

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Thanks all!!

Episode 18 – How are you doing?

This week we consider the difficulties in trying to achieve any kind of consistency with MECFS then jump into an exploration of how to answer the surprisingly complex question, ”Hey, how you doing?”.

MUSIC – Feeling sunny by Scott Holmes from Free Music Archive

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Episode 17 - The definition of insanity and hope. This week we react to the realization that we have given up on trying to recover and ponder what hope of change we should expect as we once again try to tackle the illness.

MUSIC – Feeling sunny by Scott Holmes from Free Music Archive

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Episode 16 – featuring John Peters.

Hi all. This week we had our long-awaited chat with John Peters. In a honest and passionate exchange, John shares his long experience with myalgic encephalomyelitis. Among many other subjects we discuss the viral foundation of his illness, the difficulty in processing social situations, the PACE trial and changes in medical opinion over the last three decades.

In the chat John recommends checking out the Science for ME site at https://www.s4me.info/

John can be found on twitter @johnthejack

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Thanks all!!

Episode 15 – Doctors, diets and being the expert of your own illness. This week we chat about a recent trip to the doctor and consider how it feels to be the “expert” of your own illness. Also discussed is the loss of the company of books and an update on the ongoing pacing and activity diary.

Contact us on the show at:

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Thanks all!!

Episode 14 – featuring Rosa Devine. Back once again folks. Hope you are well. After a week off due to symptoms getting a tad severe we return to chat with Rosa Devine. Rosa set the MECFS corner of the Twitterverse alight a couple of weeks ago with her comic strip on her illness and a long interview with the Irish Times (see below). She chose to come on the show and share her experience and we are mighty grateful that she did. Massive identification and some mind blowing new ways of looking at the illness. Hope you get the same impact!

Rosa’s comic and interview with the Irish Times can be found at https://www.irishtimes.com/life-and-style/health-family/chronic-fatigue-syndrome-it-was-like-a-switch-had-been-flipped-i-couldn-t-stand-up-1.3791330

Her website is at https://rosadevine.com/

Her Irish language comic is at https://greannan-an-lae.tumblr.com/

Contact us on the show at:

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Thanks all!!

Episode 13 – This week we share experience of Couch to 5K training, celebrate the upcoming Millions Missing week-long event and chat about the painful first time having to use accessible seating at a concert. Brutal honest experience as always.

Contact us on the show at:

@0allaboutme

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Thanks all!!

Episode 12 – This week we are joined by Retha from the MECFS Foundation South Africa. Retha shares her experiences of living with MECFS including raising children while ill, scheduled resting, ME in South Africa and talks about the foundation she set up to help others who have the illness.

Retha and the organization can be reached at:

Twitter - @mecfs_sa

Facebook – MECFS Foundation South Africa

www.mecfssa.org

Contact us on the show at:

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Thanks all!!

Episode 11 - This week we mix gratitude with a raw and recent experience of the true powerlessness that this illness can bring.

Contact us on the show at:

@0allaboutme

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Thanks all!!